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burdee

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Everything posted by burdee

  1. burdee
    After my white blood cell count decreased even more and I seemed to get one cold after another, my doc suggested arabinogalactin powder. I take a teaspoon dissolved in a cup of water 2x daily. Arabinogalactin is the source of echinechia, but works faster and better than any echinechia product I ever tried. Within 20-30 minutes after taking Arabino, my cold...
  2. burdee
    I'm in Seattle. However, there is a fantastic support group which meets in Bellingham. See Open Original Shared Link The leader is Kelle Rankin-Sunter. The website will give you info about support group meetings. Also the Gluten Intolerance Group of North America is located in Auburn. Contact them at Open Original Shared Link for questions you might...
  3. burdee
    Also many people with celiac disease damage have 'leaky gut' syndrome. People with 'leaky gut' often get painful reactions from alcohol based sweetners, like sorbitol, mannitol, xylitol, maltitol, etc. Table sugar can come from sugar cane or sugar beets. Many people have cane sugar allergies, which can be diagnosed by ELISA (IgE, IgA and/or IgG mediated...
  4. burdee
    I always assume I can't eat the airline meal (if one is offered), because I have 6 allergy restrictions besides gluten intolerance. So I bring in my carry-on luggage (my backpack or large purse) a peanutbutter and banana wrap on a rice tortilla or canned sardines and rice cakes plus a variety pack of dried fruits. I usually pack in my checked luggage a couple...
  5. burdee
    I was diagnosed with candida (fungus infection) by a Metametrix Lab microbial profile stool test in 2009. My doc prescribed nystatin (2 capsules 3x daily with meals) for 2 months. I did NOT have any 'die off' symptoms, but I did have initial side effects of nystatin (nausea and gas) for about 3 days until my body adjusted. I've taken at least 6 more stool...
  6. burdee
    Sorry, I never flown, only driven, to Vancouver. (4 hours from Seattle.) That city has a great celiac support group and many good gluten free restaurants. However, I don't know the airport. Also I haven't visited the city in years and can't remember any gluten-free restaurants. You could google the celiac support group for Vancouver, if you'll be in Vancouver...
  7. burdee
    If your TSH is in the normal range (which yours appears to be), many docs won't do any more thyroid hormone tests. That's not to say that you might have thyroid problems. What symptoms led you to request or consider thyroid test results? You could have normal TSH and abnormal free T4 or free T3 or even abnormal thyroid antibody tests. You may need to see...
  8. burdee
    WA or BC?
  9. burdee
    I'm uncertain what you need from a doc. However, my doctor is at the Tahoma Clinic in Renton. Docs at that clinic all use a very holistic/naturopathic approach. If you want a mainstream doc to give you a traditional celiac blood test and endoscopy diagnosis, you may want to look elsewhere. However, if you want docs who look for the causes of your symptoms...
  10. burdee
    What symptoms did you describe to your doc before he prescribed levothyroxine? Did he also give you a TPOab test for Hashimoto's autoimmune thyroiditis antibodies? People with celiac often get autoimmune Hashimoto's. If your T3 and T4 levels are normal and your TSH is only slightly elevated, you may need a lower dose of levothyroxine (which is a T4 supplement...
  11. burdee
    Yes, I exercise daily (60-90 minute walks and 20 minutes of weights and yoga). Exercise helps increase endorphins which increases immunity. I actually have a great naturopathic holistic doc who prescribed low dose naltrexone, which increases endorphins and improves immunity, and arabinogalactins (the source of echinechea) to fight respiratory infections....
  12. burdee
    What kind of allergy test did you take? IgG? IgE? IgA? Skin prick? Blood test? Did you have many reactions or only a few?
  13. burdee
    I never had low WBC before this year. I also rarely got colds, and for those rare colds I could fight off cold symptoms with a good night's sleep before this year. My WBC was lower than normal in September and much lower in November. That's not a good trend. I also had all those Leukopenia symptoms like fatigue, frequent respiratory infections and developing...
  14. burdee
    Yes, because celiac disease can prevents absorption of Vitamin D and other vitamins/minerals which help immunity, we can develop deficiencies of all those nutrients which help us fight off viral and bacterial infections. I struggled through 4 years of gastrointestinal infections (8) after I was diagnosed with celiac disease, before I started taking HCl supplements...
  15. burdee
    I agree that some allergy tests (but not all) are unreliable. Any test results, which indicate you have 30-40 different food reactions, suggests that the lab, which processed your sample, has poor quality control standards. My doc told me to consider the whole pattern of allergen reactions on a test. If I had many 'reactions' I should only consider the highest...
  16. burdee
    I've eaten basically the same 2 breakfasts (with minor variations) since I was diagnosed with gluten intolerance and 6 other allergies 5 years ago: (1) peanut butter and fruit (variations) on a gluten free English muffin or (2) cooked gluten free cereal with hazelnut milk, almond butter and a variety of fruit. Until this year I ate Bob's Red Mill Mighty Tasty...
  17. burdee
    A rheumatologist will look for rheumatoid arthritis, which is autoimmune, and some other autoimmune diseases, which involve joints, etc. However, other autoimmune conditions which are highly correlated with celiac disease and gluten intolerance include: type 1 diabetes, Graves' disease and Hashimoto's thyroiditis, Lupus, autoimmune chronic hepatitis, Addison...
  18. burdee
    Hi Jason: I never had any general autoimmune test, but I had a blood test for a specific autoimmune disease (Hashimoto's thyroiditis), which could have caused my low thyroid condition. I believe docs just test for individual conditions which they consider 'autoimmune' or "your body's antibodies are attacking itself, but we don't know why" (because they refuse...
  19. burdee
    My 7 food restrictions weren't 'sensitivities' that improved with time. I had IgG and IgA mediated reaction diagnosed (by ELISA test) allergies (or intolerances if you're in that camp), in addition to gluten intolerance. I noticed with every diagnosed allergen, that the longer I abstained from that food (or ingredient) the more intense and longer lasting...
  20. burdee
    I used to make Russian tea cakes from standard (gluten containing) recipes long before I was dx'd with celiac disease. More recently I just followed the standard recipe and substituted gluten free flour (probably Bob's Red Mill flour mix) and Spectrum Naturals palm oil shortening (for the butter), but also added 1/2 teaspoon of xanthum gum per 3-4 dozen cooky...
  21. burdee
    Heart palpitations are my standard reaction to cane sugar (a diagnosed IgG mediated delayed reaction allergy). I get gas/bloating/gut cramps from all my other 6 allergy/intolerances.
  22. burdee
    I agree. Getting those silver filling replaced would be my first recommendation. My husband recently had some test results that indicated he might have heavy metal poisoning. So his doc wanted to do a more complicated (more expensive) test for heavy metals. I asked my husband whether he had silver fillings. Then I suggested he get those replaced before spending...
  23. burdee
    Hypochloridia can prevent absorption of Vitamin D and B12 from foods we eat. I was also diagnosed with hypochloridia after years of symptoms of low stomach acid. I was also rather low on Vitamin D and had a low white blood cell count on a recent blood test. Low WBC can be caused by B12 and/or folate deficiency and compromise immunity so that you are vulnerable...
  24. burdee
    I had a similar experience with Levoxyl (T4 supplement). After taking that for almost 2 months I had no improvement in my hypothyroid symptoms (esp. feeling cold, low energy and constipation). So my doc told me to increase my dose from 50 to 75 mcg. Then I got hyperthyroid symptoms (palpitations, difficulty breathing and some diarrhea). My doc then told me...
  25. burdee
    I was diagnosed with celiac and began to abstain from gluten in mid 2004. During 2006-7 I was also diagnosed with 6 other delayed reaction (IgG or IgA mediated) allergies. So I now have 7 total food restrictions (plus sorbitol, caffeine and alcohol sensitivies/intolerances). Compared to my current diet with 7 diagnosed restrictions, my original gluten free...
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