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Lisa16

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Latest Celiac Disease News & Research:

Everything posted by Lisa16

  1. Lisa16
    I also saw the 50% number on a website and the man was citing medical textbooks as his source. I am cf and gluten-free, but the casein took me a little longer to figure out. Recently I was at a gluten-free baking class and the instructor had been gluten-free 18 years. She said it took her about 10 years before she could eat a little dairy and that she...
  2. Lisa16
    Other non-supermarket brands to consider (they are gluten-free): NARS smashbox (mascaras are not gluten-free) bare minerals (huge thread here) shisheido ECO Nvey (check mascaras-- may not be) 100% pure (not mascara) Guerlain (see safe list posted on threads here) T. LeClerc (I ahve an email verifying gluten-free status) Chanel (see lists posted...
  3. Lisa16
    For all the kitchen aid fans-- is it worth it to get the higher wattage? I was told the watts tell you how powerful the motor is and I notice there is a huge range on the kitchen aid models (and that the price goes up about 100$ per 100 watts.) The biggest ones seem to top out around 600 watts but they also cost more than my computer did. I was told in...
  4. Lisa16
    This one is tough because companies are not legally requried to put that information on the label. They are volunteering it. So even if you buy the brand that doesn't say that, you still might be getting something from shared lines. I guess I feel better about a company who says this because I view them as trying to be more responsible towards consumers...
  5. Lisa16
    Thanks takala for posting the longer version that actually details the research. I appreciate it. :-)
  6. Lisa16
    Richard-- it's not the doctor, it's the reporter.
  7. Lisa16
    Oh, I was particulary amused by the doctor's idea the the "gluten itself has changed." It is a protein with a specific molecular structure and that specific structure defines it. If this is the state of the research at Mayo, we are all up to our necks in doo-doo!
  8. Lisa16
    I caught the tail end of this story when I turned the radio on this morning and I had to find it on their website. It is rather badly written (ie "people with the disease are four times more likely to die than people without the disease"-- ha! Are we not all going to die one day? Sheesh! That is the part that made me look it up. The other funny part...
  9. Lisa16
    Some of my spellings might be off a bit, but I bet you can find the places online and make a great trip. check the dates for the transhumance (sheep migration). If you catch that wrong you are looking at HOURS in the car while thousands of sheep sawrm around you car. I was there in June, as I recall. Yes the set menus were strict when I was there. ...
  10. Lisa16
    I would do as much of the grocery store thing as possible. You will probably find (it has been some time since I was there and I was not diagnosed at the time) that most restaurants have a "set menu", meaning you have options for three courses that are set. That usually reflects the food they have prepared. The choices are usually fairly limited...
  11. Lisa16
    The other plant is called jambul fruit (jambullah) in English. I guess these plants actually have a plant insulin and they are now doing some serious research with the bitter gourd. Knowing you, you have some nice jambul fruits growing in your backyard at this very moment :-) While looking for the jambul in English, I found this website: Open Original...
  12. Lisa16
    Yes indeed-- I looked up ragi and found that it is the same thing. It is a kind of brownish-red color and the English translation is "finger millet." It is a kind of "folksy" food for them. Jay prepares this as a kind of pancacke or bread using coconut milk, baking soda and salt. They are not too bad. He also tried microwaving this mixture in a dish...
  13. Lisa16
    Hi Tim. You have gotten good answers about which specific tests to request-- these are called a "full celiac panel." They will be expensive (my mom's were several hundred dollars last year), but your insurance should cover the blood tests. If you read a few older threads (you can search here,) you will see that there are no false positives. There...
  14. Lisa16
    Dang, Ken! I admire you for being brave enough to travel like that! One day you will have to give us all your travel tricks and tips. I bet you have some dandy recipes to share. I envy you the spices and achar-- I hope it all turns out to be wonderous and safe! We just got whole nutmegs, star anise, cinnamon bark, coriander and a kind of millet...
  15. Lisa16
    Hi Lynnie! I am glad you found the recipe okay. Well, I think both spellings are correct-- the one with an "o" is probably specific to Sri Lanka because my Thai cookbooks use the sambal spelling. And the jars always say sambal too. I think my recipe is much hotter than the bottled kind. I think the main difference is vinegar or tomato added in to...
  16. Lisa16
    Oh it is really easy to make! The trick is getting the right kind of peppers. There are hundreds of styles, so you can monkey with it until you find the one you like. Then you will have your own personal sambol :-) If you click on my user name (on the topic listing) it will take you to a profile page. Under the picture, you wil see a link at the bottom...
  17. Lisa16
    I live with a Sri Lankan and this stuff is indispensible. There are some barnds that are perfectly safe. I have found out you can safely use harissa too, from Mustafa's. I also make my own sambol (SL spelling I guess)-- I have a recipe on my webpage.
  18. Lisa16
    An intestinal biopsy can miss celiac. If I were in your shoes, I would go completely gluten-free for at least one week and watch what happens. If you get better, then you know. Sometimes it takes longer than 1 week, esp[ecially if you accidentally get a little bit. The idea of going gluten-free and then trying wheat again (in large quantity) will...
  19. Lisa16
    Thanks for the link! Mimommy, maybe this is nature's way of correcting a collosal blunder we made when we decided we could eat the stuff in the first place!
  20. Lisa16
    The plain ones and the oprganic ones have a very simple ingredients list-- potatoes, oil, salt. I truly don't think it is gluten in these. However, the point about the vinegar is well taken and there are some people here who react to spices too. Perhaps it is a question of sensitivity.
  21. Lisa16
    I have tried the organic (light yellow bag), plain (the dark brown bag) and thai spice (the orangey-red bag). I have found that I cannot eat very many of these or I am in trouble. It isn't a gluten reaction (multiple bout of D in a short period for me) exactly, so I suspect it is the carbs or the oil. I think these are made on dedicated lines.
  22. Lisa16
    You know, I googled this condition just now and came up with a wikipedia article (flawed, from the looks of it.) It is called "protein-loss enteropathy" there and in that article it says one of the causes is celiac. But there were other causes listed, including a structural abnormailty of the intestine and giardiasis (sp?)-- those bacteria that cause D...
  23. Lisa16
    I recently ran into a young woman who had a condition called protein enteropathy. She said that this condition wipes out the vili and, because the vili are gone, can result in secondary celiac. Apparently with this condition you suffer from malabsorbtion of proteins and fats. She suffered terrible edema from this condition as well. She said she...
  24. Lisa16
    The good people at Dave's are a lot like the folks here in that they are very knowledgeable. There are also lots of forums for things like canning, living frugally, landscaping-- even home-schooling! They have saved lots of my plants and helped me many times.
  25. Lisa16
    In general it has to run its course and a doctor cannot do very much for you. There are some things you can try: Eat some whole cloves for the burping (they help me for a bit and then I have to eat more) Try to take some gluten-eze. This is an enzyme that supposedly keeps you from digesting the gluten. I find it is helpful for accidents, even though...
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