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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    I volunteer to help if it's needed. You'll also need to be careful of kissing contamination. Wifey is probably going to test her pastries sometime during the day. She needs to brush and rinse her mouth before you kiss to avoid you getting exposed. You should wash your hands before eating if there is gluten in the house. Also if there are...
  2. GFinDC
    Hi Alice, No way that will work. They do that sometimes with allergies, injecting a small amount of the allergen into the blood stream to build up a tolerance. Putting it in your stomach is not the same thing. I think it is fine for you to research and learn about celiac treatments, it is good to know what's in development. There are things happening...
  3. GFinDC
    The endoscopy results are rated according to the Marsh scale. The damage to the villi will usually repair after a while on the gluten-free diet. It may take some time to totally heal though. Some people get better faster than others. Liver problems are higher for celiacs than non-celiacs. So reducing or eliminating alcohol may be a good idea. Thyroid...
  4. GFinDC
    [quote name=Wendie ' timestamp='1330626233' post='777524] I have been reading posts for a week or so trying to get a handle on the gluten free diet. I do not have celiac. I have everything else but not celiac.
  5. GFinDC
    Well, I opened my mouth and stuck my foot in again. I ended up drinking caffeine last night and survived. It doesn't usually cause me a problem unless I drink it for a week or so straight. Here's what I did, some of you may like this. So I have been drinking herbal teas (caffeine free) for a while now. I took to keeping a kettle of hot water on the...
  6. GFinDC
    wow, they are really getting into gluten-free in a big way!
  7. GFinDC
    I wasn't trying to scare you, at least not a lot, on the brain stuff. But you are right it is scary. Gluten is also at least somewhat linked to pschizophrenia, (that's hard to spell) and can be linked to depression also. It can affect any part of the body, not just the gut. The stuff about the brain was just to reassure you that yes, depression from eating...
  8. GFinDC
    You probably will need to be on it for a couple weeks to find out if it affects you. Some things don't happen right away but build up over time. But you may be just fine too. We are all individuals and react as individuals. Personally I can't do caffeine of any kind but I never had the GI symptoms from it that you described. So we is different.
  9. GFinDC
    There are tests for celiac disease. But you do need to be on a full gluten diet,not gluten lite or off gluten for a while before hand. The blood antibodies are one set of tests, but there is also the endoscopy with biopsy. The doc should take 5 or more biopsy samples during the endoscopy.. They look at them under a microscope to check for damage to the...
  10. GFinDC
    Maybe it is something simple to fix, or a temporary situation Krypto. Anyway, I hope so. Let us know what develops with the new doctor if you don't mind. Welcome Colleen. Good to have you here. Your story of a slow diagnosis is unfortunately pretty common. Maybe that will change someday. A good way to start the gluten-free diet is with...
  11. GFinDC
    Hi, There is also Enterolabs testing which is around $200 I think. They do stool testing for antibodies. In Canada there is a self test kit you can get called Biocard. There are gluten-free foods your family would probably like. Tinkyada pasta is gluten-free and not expensive, and many people like it. Fruits, vegetables and meats are gluten-free...
  12. GFinDC
    Lovely stuff indeed. I had read about some of these but not all. Certainly makes you think twice about processed foods. Thanks for sharing!
  13. GFinDC
    Great, good to hear some people got in the survey. I didn't take it until today when they sent me a reminder. Dang slow on these things myself.
  14. GFinDC
    Yay! Barry's back! Good to see you back in the throng Barry. By the way, it did take me quite a while to get used to the idea of being gluten-free. I made plenty of mistakes at the beginning myself. But we can all learn from each other. Not so sure about the FB page though, those things wear me out after while. Glad you are with us!
  15. GFinDC
    The NFCA is conducting a survey on gluten in medicines but it ends tomorrow. Open Original Shared Link
  16. GFinDC
    The NFCA is conducting a survey on gluten in medicines but it ends tomorrow. Open Original Shared Link
  17. GFinDC
    Just a quick pop-in for KarenG. Hi Crayon, this electronics site has lots of neato stuff the robotics club might like. They are having a sale on some items per their recent newsletter. I don't remember if I told you about this site b4 or not. Meh, probably, but who knows? Open Original Shared Link Open Original Shared Link
  18. GFinDC
    Hi Bea, I am not smart on oxylates myself, but did some reading based on your info. Seems like they are a possible problem for some people anyway. Of course we are all some people so no reason they couldn't be an issue. The Whole Foods site has a little table listing oxylates levels in some foods. Thanks for posting about them! Open Original Shared...
  19. GFinDC
    @BarryC Hi Barry , I hope you are doing better on the gluten-free diet. We all want you to succeed on it. Even dabblers are welcome here. There are plenty of people who are dabblers at first, it is not unusual. gluten-free is a big change for sure. But you can do it. @sfamor, Hi sfamor, Barry asked for a bit of chiding and maybe he did get...
  20. GFinDC
    Neat idea. I was thinking from the title it would be about corn muffins with salami and cheese bits in them. But these are simpler and grain free. Thanks!.
  21. GFinDC
    Here is another one that may help. I won't pretend to understand everything on this page but it i may be helpful. It is about renal tube acidosis (RTA) and discusses various causes of it. It is a condition that leads to kidney stones and other problems. They list 4 types of RTA and discuss them. The basic gist seems to be too much acid in the kidneys...
  22. GFinDC
    That sounds good Anette. Seems like the gluten-free diet has made a big improvement then. That's what I was wondering about, the parathyroid glands. So they are ok. How about the magnesium? That's another possible gotcha. My understanding (which is vague) is you need to have magnesium and potassium as well as calcium in your diet. They all work together...
  23. GFinDC
    Caucasian with a little Cherokee Indian thrown in. Irish, British and German ancestry too. My cat is gray though. Poll didn't mention cats but why leave them out?
  24. GFinDC
    Cooking once a week is probably a better fit for you. You could get a kitchen timer to set while you are cooking so you don't forget things. Cooking in a pressure cooker or crock pot is easy and there is little chance of it burning. Try searching for snacks on the forum, there are plenty of easy things to make and eat.
  25. GFinDC
    I met an African American celiac at one of our local groups meetings a while back. Your doc has bad information. The doctor's diagnosis is helpful for some people to encourage them to stick with the diet. Others don't need that. Right now there is no treatment for celiac disease except the gluten-free diet, so a diagnosis doesn't get you much in the way...
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