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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Laurel, DH is diagnosed by taking a small biopsy sample of skin next to (but not on) a skin lesion. You can go to a dermatologist for testing. You don't need an endoscopy to test for DH. DH is a presentation of celiac where the antibodies attack the skin. Some of us have additional food intolerances beyond just gluten. There is a possibility...
  2. GFinDC
    You need to be eating gluten for the tests to be accurate. So don't stop eating it before all testing is done. There are members on the forum who test positive on just one of the antibody tests. So you might test positive if they would give you the complete celiac panel, but it sounds like they won't. Many doctors don't seem to understand the...
  3. GFinDC
    Did you doctor test your for celiac disease? If not you should get tested right away, as the testing is not accurate if you have been gluten-free for long.
  4. GFinDC
    Interesting article! I imagine there are a lot of people out there taking olmesartan who would benefit from reading it.
  5. GFinDC
    Hi Aquaguy, It's good that your symptoms improved from going gluten-free. That's great to have a diet based solution to a health problem. I think your stool symptoms could be caused by inflammation in the gut IMHO. It could be celiac disease causing your symptoms but could be something else too. If you aren't willing to be tested then stick with...
  6. GFinDC
    Hi Lacylou, If you haven't been gluten-free for very long, you should get the blood tests done ASAP. The antibodies in the bloodstream decline when we go gluten-free and the tests become inaccurate or even useless eventually. Anxiety is symptom some people get from celiac damage. It may be related to deficiencies in vitamins or even gluten ataxia...
  7. GFinDC
    Hi Filmnut, Some people want the diagnosis, but to others it doesn't matter. I am not officially diagnosed myself, but I know how gluten affects me and am not willing to go through the full diagnostic process. I know I can safely eat gluten foods, so there's no point in setting my health back just to get a DR's approval to be gluten-free which I already...
  8. GFinDC
    Hi Emilia, You need to eat gluten every day for 3 to 4 weeks before the endoscopy, and every day for 12 weeks before the blood tests. Your symptoms do sound like they could be caused by celiac disease, but they could be caused by another food intolerance issue too. If you look at people's signatures under their posts you'll often see multiple food...
  9. GFinDC
    Hi gluten-free Hoagie, Nerve symptoms seem to be slow to resolve. It may take quite a while for them to go away. Celiac disease is an autoimmune condition. That means the bodies own immune system attacks and does damage to the body cells. It can take months for the immune system to stop attacking once it is activated. And the immune system is very...
  10. GFinDC
    Hi Sue, https://en.wikipedia.org/wiki/Sjögren_syndrome Wiki has quite a write-up on SS. They mention ANA testing as a possible diagnostic. .... Blood tests can be done to determine if a patient has high levels of antibodies that are indicative of the condition, such as antinuclear antibody (ANA) and rheumatoid factor (because SS frequently ...
  11. GFinDC
    Hi Pericello, It does take some adjustment to get used to the new diet. Most processed foods are loaded with multiple questionable ingredients like emulsifiers, food colorings, stabilizers, flavor enhancers, etc these days. Soy is often added and also dairy and wheat or barley malt. A good rule to follow at the beginning is to not buy any food with...
  12. GFinDC
    I am very glad to hear you aren't a mutant! And the folic acid isn't a big problem either! Thanks for letting us know.
  13. GFinDC
    Hi Pericello, Welcome to the forum! Celiac disease is not easy to diagnose. They have a series of antibody tests they do and then an endoscopy. But not every person with celiac disease passes the antibody testing. Some of us don't make IgA type antibodies much at all. So the standard IgA antibody tests are useless for those people. Others...
  14. GFinDC
    Hi, It is possible to celiac disease with only one positive type of antibody. Some people only test positive on IgG or IgA, but they have celiac disease. So getting the full celiac disease test panel is a good idea. The doctors might understand the severity of your symptoms better if you recorded them on a calendar and bring that with you. A...
  15. GFinDC
    Tito's corn made vodka is gluten-free.
  16. GFinDC
    Hi Sue, It's good to do an elimination diet, but I am not sure your doctor gave you the best plan for one. Celery is one of the top food allergens in Europe. I am not in Europe but I react to celery and also parsnips. It would be better not to include any of the known common food allergens in your elimination diet IMHO. https://farrp.unl.edu...
  17. GFinDC
    Hi Sueps, That's rough stuff for sure. I had a similar thing with a long recovery. 5 years and still didn't feel very well. It seems there are a few possibilities. You are eating something that your body reacts to. You have another condition going on. Since the food issues is something we can control and change, I'd like to think that...
  18. GFinDC
    Set up your food truck about a 1/4 mile outside city limits. Maybe near a park or in a truck stop parking lot etc.
  19. GFinDC
    That sounds nice Squirmy, sitting on the steps absorbing the vitamin D with your woofer. Sure seems like a good way to get it to me. I found a page listing RA forums that might be helpful. Maybe some sleuthing on them will turn up a clue. https://www.healthline.com/health/rheumatoid-arthritis-forums#1
  20. GFinDC
    Lactose intolerance is fairly common in untreated celiac disease. So it is reasonable to expect it may improve after being gluten-free awhile. Soy intolerance is a different thing and there isn't any reason to expect it to go away. But then again it might. Soy is a top 8 allergen in the USA.
  21. GFinDC
    Hi Squirmy. I don't know the answer, but being a man that won't stop me from talking about it! Therefore, somewhat dubious thinking lies ahead. First off, could it be the arthritis has flared up? Maybe the extra folic acid kicked off an arthritis flare for some unknown and irritating reason? Here's a short article on supplements to...
  22. GFinDC
    Hi welcome to the forum! When you say you were re-tested, do you mean you had follow-up blood antibody testing, or an endoscopy? If you had the blood tests, what tests and were the results lower than the original tests? To be honest, it doesn't sound like you were being serious about keeping gluten out of your diet the first 5 years? If that...
  23. GFinDC
    Hi Jennifer, A positive is an indication of an immune system reaction. The biopsy is usually sent to a lab for microscopic examination. Sometimes the damage is severe enough for a visual determination. but more often it is found under a microscope.
  24. GFinDC
    Hi Rita, I think you got some good explanations already. But yes, any positive antibody is a problem. Some people will be positive on all of them, some won't. We are individuals and can differ in how our bodies respond to things. Usually the DGP tests are considered more reliable and accurate. Another thing to have checked is vitamin and mineral...
  25. GFinDC
    Hi Jennifer, You could very well have celiac disease. Anemia in iron or B-12 is a common symptom. Also common are deficiencies in fat-soluble vitamins like vitamin D. Vitamin and mineral levels are something your doctor should test for you. Gut pain and stomach pain is common too. Celiac disease is an autoimmune condition where the immune system...
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