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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi, First off, get a new doctor. One that isn't so stupid. The gluten challenge is 2 to 4 weeks for the endoscopy test. The blood antibodies tests require a 12 week gluten challenge. Second though, there is an extremely itchy rash called DH (dermatitis herpetiformis) that some celiacs get. The testing for DH is to take a small skin biopsy sample...
  2. GFinDC
    It's a good idea to check with the seller of the turkey on the gluten status. Glaze packets in the USA are usually not a problem as you can simply throw them away.
  3. GFinDC
    Hi, you posted a blog, You are more likely to get responses by posting a thread in the forum section. https://www.celiac.com/forums/forum/13-celiac-disease-pre-diagnosis-testing-amp-symptoms/
  4. GFinDC
    https://www.celiac.com/search/?q=vertigo&fromCSE=1 I suggest reviewing some of the threads in this search link. I think you'll agree the answer is "Yes, people can have vertigo as a celiac symptom". It sure doens't sound like any fun to me.
  5. GFinDC
    Did you get a copy of your antibody tests results that you can share? There are ranges for each test that vary by lab. Sometimes doctors only do a couple of the screening tests and don't do the full blood tests with all the different antibodies. And sometimes people are IgA deficient and none of the IgA tests are valid because of that. You should...
  6. GFinDC
    Hi, Celiac disease is an auto-immune condition. So you should be aware that even a tiny amount of gluten can cause the reaction to flare. And because the immune system is serious about it's job, the reaction can keep going for weeks to months. So we need to be careful about avoiding cross-contamination as happens in shared peanut butter jars, mayo...
  7. GFinDC
    Hi, You only have to be positive on 1 antibody test to have celiac disease. One kind of immune cell attacking your gut can do plenty of damage. They are powerful little buggers! People don't get over celiac disease, although that was thought to be true in the past. What does happen is sometimes a person's immune system will take a break from...
  8. GFinDC
    Something doesn't make sense here. The process for a gluten challenge is to eat gluten every day for 12 weeks before the blood tests and 2 to 4 weeks before and endoscopy. Not eating gluten before the testing is the wrong thing to do. The celiac testing depends on the antibodies being active and at detectable levels. So you should eat at least a small...
  9. GFinDC
    What you need to know is that going back on gluten for a gluten challenge is often worse than not going off it at all. His symptoms and pain will probably be worse later than they are now. Many people don't complete the gluten challenge because of this. So, it isn't something that I would suggest doing later. Doctors often don't consider this aspect of...
  10. GFinDC
    Ok, if he isn't eating any gluten for the 2 weeks before the endoscopy, there is a chance he won't show a positive result. So you may as well prepare yourself for that possibility. Since the PED suggested he go gluten free now, maybe he can assist in getting an immediate GI appointment so the test will be valid? If not the endoscopy may be a waste of money...
  11. GFinDC
    Hi, It's important to keep him eating at least some small amount of gluten daily until all the testing is completed. The testing usually includes an endoscopy to take 4 to 6 biopsy samples of the small intestine lining. Those biopsy sample are checked for damage characteristic of celiac disease. You might find he does better if you take him off...
  12. GFinDC
    Hi Chris, It sounds like celiac to me. It is worth staying gluten and doing the endoscopy / colonoscopy before going gluten-free. Right now before you go gluten-free is the best chance of being diagnosed correctly. Going off gluten reduces the antibodies the tests measure and causes inaccurate results. The endoscopy is important because they...
  13. GFinDC
    Hi Breaux! Welcome to the forum! I hope you enjoy your time here and can learn some helpful things. There is a sticky thread in the Coping With Celiac forum section called Newbie 101 that has some tips for you.i Other than that we generally suggest people stick to whole foods for at least a few months and avoid dairy. Eating out in restaurants...
  14. GFinDC
    You should be ok with most canned veggies if they don't have gluten ingredients.
  15. GFinDC
    Hi Hannah, Your symptoms could be related to celiac disease, or something else. One way to find out is to stay strictly gluten-free and see if they go away. I'm guessing you got the usual doctor's advice to go gluten-free. The truth is it is much more involved than just saying that. You need to spend some time learning what gluten is and where...
  16. GFinDC
    Another thing that is often low for a celiac is Vitamin D. Might be good to ask the doc what your levels are.
  17. GFinDC

    Day 7 of gluten-free

    GFinDC commented on Ms. A's blog entry in Ms. A's Blog

    It's much simpler to stick with whole foods, or at least foods with 3 ingredients or less. You don't have to spend all your shopping time reading labels that way. After 6 months gluten-free or so is a good time to start expanding your diet choices.
  18. GFinDC

    Day 9 of gluten-free

    GFinDC commented on Ms. A's blog entry in Ms. A's Blog

    Hmm. Did the Japanese steak house have a gluten-free menu? Do they cook their gluten-free steaks on a cleaned surface or the same surface as gluteny foods? How about the spices they put on the food? Are they gluten-free also? Another worthwhile question, do they even know what gluten is? Any wheat, rye or barley or derivative such as malt? Do they...
  19. GFinDC
    Hi Betty, Welcome to the forum! I don't have DH myself, but we do have members with it who check in fairly often. Hopefully you'll get responses from them. In the meantime though, you can try searching for info using the magnifier near the top right side of the forum banner. It should be under your user name. You may find some old post...
  20. GFinDC
    Hi, You don't need to eat a lot of gluten to keep the immune reaction going. A 1/2 slice of regular bread should do it. And you can eat that at any time during the day. So if it works out better for you at night or in the morning then that's the time to eat it. Another thing you can do is to stop eating all dairy for now. Dairy is often a problem...
  21. GFinDC
    Hi Emily, Welcome to the forum! It sounds like you didn't have the endoscopy? That's ok, I didn't have one until years after going gluten-free. But it is the final part of a celiac diagnosis. The problem is, you have to be eating gluten for 2 to 4 weeks before the endoscopy, and 12 weeks before the blood antibodies tests. Without doing that...
  22. GFinDC
    Hi JA, Doing reasonably well here. We are getting 7 inches of rain over the weekend they say. So waiting for the creek to rise and go over the highway now. May be a slow Monday if it is still flooded. I guess we are getting what Wisconsin and PA got last week. I put the chicken feed on the sidewalk under the roof, so the chickens can eat out...
  23. GFinDC
    Sam is downstairs, watching TV. Not that it's any of your beeswax!
  24. GFinDC
    Hi, You didn't really answer the question about if you are celiac and if you are eating gluten-free? It sounds like you are saying you have celiac but weren't eating gluten-free because you had no symptoms? This is just guessing since you didn't answer those questions. So, going on that assumption, you may have been a "silent celiac", a person...
  25. GFinDC
    Right, allergy testing is a good next step. Allergies can suddenly become more serious reactions and that can be dangerous. So make a point of getting to the allergist right away. You may need to carry an EPI pen with you if they get bad.
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