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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi Squirrel, Maybe it's time to stop eating fried foods in restaraunts? Some things just aren't worth the risk. There aren't many restaraunts I will eat in. And if I do go to a restaraunt (rare) it is usually the same ones. But I haven't eaten deep-fried food at a restaraunt in many years. Typically restaraunts use the same oil for all fried foods...
  2. GFinDC
    Sorry, I don't have any idea. Some hospitals in the USA let you look at results online. I don't know if the NHS allows that though. I hope they told you that if the blood tests are positive that an endoscopy is the next step in diagnosis. You need to keep eating gluten until all testing is complete. (I have no stock in bread companies) Welcome...
  3. GFinDC
    I think you are on the right track too. Regardless of doctors opinions. you can choose to eat gluten-free if you want to. They may have lots of initials after their names and big bank accounts, but they don't control your diet. It's not unusual for people to continue having symptoms for months after going gluten-free. But don't let that discourage...
  4. GFinDC
    Hi Moleface, I think you meant to say you had an endoscopy? A colonoscopy is not used to diagnose celiac disease, but an endoscopy is. Endoscopy looks at the first 5 feet or so of the small intestine. The medical community has an imperfect record for diagnosing celiac disease, They don't get it right sometimes. That is probably why most people...
  5. GFinDC
    Hi Kyle, I found some threads on Thalland by doing a search. https://www.celiac.com/search/?q=thailand&fromCSE=1 and the Phillipines https://www.celiac.com/search/?q=phillipine&fromCSE=1
  6. GFinDC
    Hi Sarah, Are you sure the fiber products and other vitamins etc are gluten-free? It's real easy for gluten to get in our diet at first. Everything needs to be checked. Drinks like tea, coffee, etc also. The mucus sounds like an inflammation issue, ie a reaction to something in your diet. All of us are individuals, so what is ok for one person...
  7. GFinDC
    Hi Sarahcat, I've had pain and aching in the abdomen before. Some of it sharp pain and some dull aching. But people get a wide range of symptoms with celiac disease. So it's hard to diagnose by symptoms alone.
  8. GFinDC
    Hi Sabine, It doesn't really matter if they understand, as long as you protect yourself by not eating their food. Ask yourself how many conditions your friends have that you have really delved into and studied up on to learn all the ins and outs of it? Are you up on all the latest treatments for diabetes? Heart disease? Arthritis? Not many people...
  9. GFinDC
    Ack!!! Well, it seems typing is one of the things that causes me issues too!
  10. GFinDC
    Hi Plumbago. I have trouble swallowing food sometimes. I think that was caused by a vitamin deficiency, maybe B-12 or Vitamin D or both. I take vitamin D supplements to try and keep my levels up. I don't know if my swallowing problem will ever go away completely but it does vary some in severity. I know that it's not sleep apnea but maybe there is...
  11. GFinDC
    Hi Peter, Recovery from celiac damage can take quite a while. I had about 5 years of symptoms before I felt like things settled down. Some of that was due to other food intolerances that I didn't know I had, and some due to being stubborn and taking too many risks with the gluten-free diet. Your digestion may never be just like it was before, but...
  12. GFinDC
    This thread has some discussion about the EMA titer. https://www.celiac.com/forums/topic/66463-endomysial-ab-iga-screen/ Yes, the IGA test sounds high. The lab should provide a results range to match them up against. It only takes one positive antibody to have celiac disease. Although there are different types of antibodies, IgG, IgA etc, all...
  13. GFinDC
    We have members on the forum who don't have the usual gene markers but do have celiac disease. There are also many people walking around with the usual genes who don't have celiac disease. There be more genes that can affect celiac than what we know at the moment. They don't know everythi9ng about celiac disease yet.
  14. GFinDC
    Hi Anna, Lots of good advice/comments so far. It seems to me that anxiety or not, you have your head screwed on pretty well. You are taking a thoughtful approach to the symptoms you have, and trying to find a reasonable diet approach to improve them. That's good! I used to have anxiety, but it did go away after a while on the gluten-free diet...
  15. GFinDC
    I agree, it's probably related to improved nutrition. I.E. better absorption of nutrients. My hair didn't turn brown after going gluten-free but my finger nails and toe nails started growing faster. I also used to have a series of little bumps in a line on some nails. Those are gone too.
  16. GFinDC
    Hi Audra, I don't know about in children, but adults can certainly have depression and anger, anxiety and other negative feelings with celiac disease. Insomnia is sometimes (perhaps often) a problem also.
  17. GFinDC
    Hi, Welcome to the forum! The answer to your question is yes, damage may not be visible to the naked eye but can still exist. I hope her doctor told her to continue eating gluten until the testing is completed. That is important for getting accurate test results.
  18. GFinDC
    It can be celiac because 84% of the people with celiac disease in the USA are not diagnosed. If celiac disease caused us all to break out in purple and yellow stripes it would be easy to identify. But it doesn't and instead presents with a a multitude of varying symptoms for different people. You had a positive on one antibody test already. That's all...
  19. GFinDC
    Hi, Just to clarify terms a little. An endoscopy is used to check for celiac type damage to the small intestine. A colonoscopy is done to check for diseases or damage to the large intestine. The colonoscopy is not used to test for celiac disease. So it makes a difference which was done. Sometimes a gastroenterologist will do both an endoscopy and colonoscopy...
  20. GFinDC
    Hi LFA1, The Medicheck labs look ok, but I don't see total serum IgA listed. Total serum IgA is needed to verify the patient actually is capable of making IgA antibodies. If the person can't make IgA antibodies then the IgA anti-gliaden tests are invalid. You should definitely not go gluten-free until all testing is completed. If you did go gluten...
  21. GFinDC
    Hi Amber Kay, Your itchy hives could be DH (dermatitis herpetiformis). You can read up on DH in the DH section of the forum. You will find tips for how to deal with it there that might help you. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  22. GFinDC
    Hi Monica, You may have celiac disease. Your description of your symptoms certainly matches. To be tested they have you eat a small amount of gluten for 12 weeks before the blood antibodies testing. And 2 to 4 weeks for the endoscopy test. During the endoscopy they take 4 to 6 biopsy samples of the small intestine inner lining. They check those...
  23. GFinDC
    Wow, it's good you got away from him then!
  24. GFinDC
    Hi Brandi, Lots of people on the forum have had sleep issues relating to celiac disease. You can search for insomnia and find threads about it. Celiac damage can cause mal-absorption of nutrients. When our bodies don't have enough minerals and vitamins things can get pretty wonky. Some us of even get grouchy. Poor sleep may be related to that...
  25. GFinDC
    Hi, They test for DH by taking a small skin biopsy from clear skin next to a lesion. A dermatologist is the person to go to. Don't have him quit eating gluten until all testing is done though. He needs to eat enough gluten each day to keep the antibodies active. A half slice of regular wheat bread should to it.
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