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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. Hi, Yes, celiac can cause us to react to many different foods. Imagine the stomach and intestines are made of balloons. Instead of filling those balloons with inert air you fill them with caustic gas. The balloons are now irritated and inflamed. So you add some regular inert gas but the irritated balloons are not happy to see any new thing coming...
  2. You don't have to be tested to go gluten-free. But it is easier to be diagnosed if the testing is done before going gluten-free. There is a thread called Newbie 101 in the Coping With section that may help. Recovery from celiac disease damage can take 18 months or more. Symptoms during that time can vary quite a lot. To avoid the tiny amount of gluten...
  3. Here's another take on oxalates. Some interesting points in it. https://www.thepaleomom.com/oxalate-sensitivity-real/?cn-reloaded=1
  4. Impossible to know. This article talks about some affects of gluten on the brain. But research on brain effects is very scarce. /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/case-study-indicates-that-cd8-perforin-and-granzyme-b-infiltrate-the-cerrebullum-in-gluten-ataxia...
  5. Thanks for the Glaxo response LilyR. I did use Flonase years ago and never had a problem with t myself. But I don't have a corn issue either. Now i take Afrin sometimes. There is also an eye drop product called Equate Eye Itch Relief that I've used. How about a hot steamy shower? That might help too.
  6. You sure aren't alone NA. We all started the gluten-free diet at some point and knew diddly squat about it. There is a lot to learn at first! And plenty of mistakes to make! ? I did learn eventually to keep my diet very simple during recovery. The fewer ingredients in a food I eat the better IMHO. Unless it is something I made myself, then I can...
  7. Well, if you liked that one, here's another.
  8. We have had members with gastric surgery post before. You may have to search the forum to find their threads. I don't think they are regular visitors to the forum tho. Celiac disease is an auto-immune condition. The immune system can continue reacting for weeks to months once it is triggered. Getting it (gluten) out of your system doesn't end the...
  9. Hi, Welcome to the forum! Yes, celiac disease can cause most of that and more. The ulcer could be the result of bacteria having an easier time colonizing a weakened digestive system. Excessive gas is not unusual and can cause pain in the stomach and bowels. Slow food transit is a good possibility also. Celiac disease damages the lining...
  10. Maybe have the hubby look over this list of auto-immune diseases. Celiac disease is one of them. None of them are particularly fun to have. Then again, maybe he should read this thread about what there is to love about celiac disease.
  11. In classic celiac disease, the immune system attacks the body, usually the gut lining, when gluten is eaten. This immune attack is called an auto-immune condition/disease. The immune system is mostly trying to protect you from things like germs, parasites or unknown alien invaders. So it is very powerful and can do a lot of damage to them or us. As you...
  12. Hi, I'd wait to go gluten-free until you are sure all the testing for celiac disease is completed and the results known. The reason is that once you go gluten-free the antibodies start to decline and make accurate testing difficult or impossible. Also, if you have to go back on gluten for testing later, it is sometimes much more painful than before...
  13. Hi, There are many, many possible symptoms in celiac disease. Depression has been reported by people before, and hypoglycemia. Have you been tested for celiac disease? If you want to be tested, you need to be eating gluten for 12 weeks prior to the blood tests. There is also an endoscopy, which usually happens after a positive on the gliaden antibodies...
  14. I'm sorry for your condition. I don't have DH either but have also read that stopping iodine intake including fish, seaweed or other foods that contain it like iodized salt is helpful to stop the skin reaction. I think milk is another source of iodine. I don't know why iodine makes the reaction worse but that's what experienced people say it does. Other...
  15. Somewhere on the forum is post by person who went back on gluten for 5 years. She had an emergency colostomy done one day to save her life. So, yeah, there are consequences even if you don't feel it. There's also the people who develop gut cancer and die. That's a pretty big consquence too.
  16. Hi Jenna, There are other people on the forum who had their gall bladders removed. Sometimes for no good reason. But doctors don't always diagnose celiac disease quickly and so they try treating other things instead. If you suspect you have celiac disease it is best to get tested while you are eating gluten. Otherwise the tests don't work. The...
  17. Hi, Welcome to the forum! Celiac testing is crappy, to be blunt. They just don't have perfect tests for it right now. Even the best tests, DGP IgA and DPG IgG have an error possibilty. Plus all bodies are not equal and can have varying levels of antibodies and damage. There is a small percentage of celiacs that don't produce IgA antibodies...
  18. Welcome to the forum moomoo! There was forum member years ago with the user name of GlutenWrangler. He doesn't visit much anymore but you could search for his content and maybe get something from his postings. Here's one of his threads.
  19. Hi, and welcome to the forum FN! I can also breathe much better after going gluten-free. Celiac disease is an auto-immune condition. My own opinion is that having your immune system cranked up to high volume in one area can lead to spill-over to immune reactions in other areas. For instance, I had pretty bad allergies before going gluten-free...
  20. Right, and so is bloating from excessive gas produced by poorly digested foods.
  21. I get blood like that when I eat dairy. Or did anyway. There is something called casein sensitive enteropathy that can cause irritation in the gut from eating dairy. A simple test is to eliminate all dairy for a couple weeks and see if it goes away. If not you should see a doctor.
  22. I found the Aldi wraps in my local store. The regular ones are pretty good. But now they have spinach wraps too. The spinach wraps are larger than the regular kind and also thinner. They fold real well. I usually warm them up but it probably isn't necessary. In my store they are kept out on a shelf and warm, not frozen. I had to ask a worker where...
  23. GFinDC

    So stressed?

    I suggest you post a thread in the DH ( dermatitis herpetiformis) section of the forum. You are more likely to get responses there. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/
  24. I don't know your overall health situation, so I can't say if it is worth the risk. That is a decision for you to make. The gluten challenge is 12 weeks of eating gluten for the blood tests and 2 weeks for the endoscopy. Your doc should have tested you before starting the gluten-free diet. He/she isn't following proper diagnostic procedure for celiac...
  25. Yes. It can take up to 18 months to heal the gut or more. Your body will slowly stop making gliaden antibodies over the next months. But it may take several months. The immune system is very sensitive and alert for problems. So even a tiny crumb of gluten will set off the a new reaction or prolong an existing one for weeks. You have to be aware of...
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