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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi, You could call the GI office and let them know that your symptoms are bad, They may be able to fit you in for an earlier appointment. Other things to do are to choose the time of day when you eat your gluten dose. Some people may do better eating it in the morning and some may do better eating it at night.. You can also stop all dairy...
  2. GFinDC
    And an article on boron sources in foods. https://www.algaecal.com/algaecal-ingredients/boron/boron-sources/
  3. GFinDC
    Hi April, Yes, they are separate tests. The most common test done is the ttg IgA screening test. But the complete celiac disease test panel includes all the other tests too. Some people only react on one type of test and not others. So it is best to get the complete celiac panel done. My guess is you didn't get the complete test results. The total...
  4. GFinDC
    Hi April, Your result is a measure of total or serum IgA. The total IgA test is done because some people don't make IgA at all or very little IgA. So for those people the regular anti-gliaden IgA tests are meaningless. Your total IgA test at value at 129 is within the normal range of people who do make IgA type antibodies. So any IgA tests you get...
  5. GFinDC
    I don't eat Barilla pasta myself. But then it's seldom that I eat any pasta. The old if it makes you sick don't eat seems to apply here. Barilla does say their pasta is certified gluten-free. It would be interesting if gluten-free Watch Dog or some other group did a test on it though. The Barilla website has a contact us page for questions. Maybe...
  6. GFinDC
    Hi Squirmy, Just wondering how you are doing on the DMARDs? I've been having some hip pain lately and doing some research on it. My sister sent me this link about Boron in the diet and joint pain. I thought you might be interested in checking it out. https://draxe.com/boron-uses/?fbclid=IwAR3FAP6gb-xAEERFV8ADW-9Lwo7XmWiRgTT_Ydx2B6CWDQuR8XJfWN...
  7. GFinDC
    Another thing you can look at for a possible celiac indication is vitamin/mineral levels. Celiac can impair the ability to absorb nutrients and that may show up in vitamin and mineral levels being low. Some common ones to be low are vitamin D and B-12. IF you were to go gluten-free for 6 months and your vitamin levels recovered it might mean there was...
  8. GFinDC
    You may have developed an intolerance to oats. A small percentage of celiacs react to oats like they react to wheat, rye and barley. The thing to do is avoid all oats if that is the situation. But they put oats in a lot of gluten-free products so there's lot of processed foods to avoid.
  9. GFinDC
    Hi, It sucks getting glutened. I hope you feel better soon! Cutting out dairy was a good idea. You could also try cutting out oats. And any spicy foods like hot peppers. Your symptoms of feeling hungry sound familiar to me. Maybe try some psyillium husks with water to bulk up and reduce hunger. It might help. Pepto Bismol can be soothing...
  10. GFinDC
    That's nice to have follow up by the doctor. They should monitor your vitamin and mineral levels for sure.
  11. GFinDC
    Yeah, a little a little strange. A GI can order the blood antibody tests. Do ask for the full celiac antibody panel. They sometimes just do a single antibody test and it doesn't catch all people. There are DGP IgA and DGP IgG tests that should be done. Also total serum IgA and an EMA test is good to have also.
  12. GFinDC
    To follow a forum section, go to the forum section, click the green plus sign to add your follow preference. The green plus sign should be near the top right side of the forum topic listing. Get to the forum section list by clicking on Forums in the header at top of a page.
  13. GFinDC
    Yes, I've had problems with vitamin D levels for 10 years. My doctor just recently told me they are finally up to 58 so I can stop taking the 50K pills every week. But I will continue the 1000 IU pills daily.
  14. GFinDC
    Recovery from celiac damage is not always a straight line up. It can be a series of periods of progress and retreat. Symptoms can come and go. Because celiac is so variable with the symptoms it can be hard to diagnose. Some people have no GI symptoms at all, but still have celiac. Every time you ingest any gluten your immune system is re-triggered...
  15. GFinDC
    The GI suggests you may have celiac or some other condition. Your biopsy shows some signs of celiac but it is not severe enough damage to be a clear diagnosis. So he suggests you get serological (blood antibodies) testing. Usually the blood antibodies are the first thing people do, then the endoscopy. If your blood antibodies confirm anti-gliaden...
  16. GFinDC
    It is normal to have continuing symptoms for quite a while after going gluten-free. Celiac disease is an autoimmune condition. The immune system does not stop making antibodies the minute you go gluten-free. It may continue to produce antibodies as long as it wants. But probably it will taper them off after a month or so. But everyone's body varies. ...
  17. GFinDC
    Hi sbuck, It's not unusual for a celiac to have bad digestion for quite a while after going gluten-free. It's sometimes described here as being on a roller coaster of symptoms. With symptoms getting better and then getting worse and so on. Going gluten-free without testing isn't a great idea though. To get the celiac testing you need to be eating...
  18. GFinDC
    Hi, No, those symptoms should subside within 6 months. However, that timeline depends on being really near perfect with the staying 100% gluten-free. Every bit of gluten can spark a renewed immune system attack, and drag out/delay the healing process for weeks to months. A lot depends on the individual and how much damage they had to start out. ...
  19. GFinDC
    Hi, One month is really just starting the gluten-free diet and the healing process. At 6 months you are probably more likely to have made some progress IMHO. But keep at it, because the gluten-free diet gets easier after time. Your digestion may be somewhat touchy or easily upset for the first year. You are adopting a whole new diet and your...
  20. GFinDC
    You could also be reacting to the coconut. You could get a plain coconut and crack it open and eat it. That would tell you if you have a coconut intolerance or reaction.
  21. GFinDC
    Hi Daphne, I don't know much about lupus but I know it is a serious disease. I suggest you find a different doctor and get a 2nd opinion on it to be sure.
  22. GFinDC
    Welcome Patricia! The reason bananas helped children with celiac disease is because they don't have any gluten in them. So that is the only thing that bananas have going for them as far as a baby food goes. Today it would be better to get a pre-made formula of any brand that is gluten-free instead of just banana flour. However for yourself or...
  23. GFinDC
    Well, that's ok, and probably a good choice. If you do have a wheat allergy, you should be careful not to eat any wheat. Allergies and celiac disease are not the same thing. Allergies are typically IgE immune responses along with histamine response. Celiac disease is typically an IgA and or IgG immune cell response. The different types of immune cells...
  24. GFinDC
    Hi Dixie, White bread is made from wheat flour. So you have been eating wheat whenever you ate white bread. That may not be all bad though. If you are going for celiac disease testing, you need to have been eating a normal gluten (wheat, rye, barley) diet for 12 weeks before blood antibody testing. The other main test is an endoscopy with...
  25. GFinDC
    Hi Shannon, You can't get glutened from corn itself. But if you added any seasonings to it I'd definitely check those for possible gluten.
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