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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi, Any positive on a celiac antibody test is worth exploring further. It only takes one antibody type to cause damage to the body. I hope the doctor told you that the testing requires her to eat at least some gluten every day. The tests are accurate if gluten is not being eaten daily before hand.
  2. GFinDC
    Hi Katie, Vitamin D is one common deficiency for celiacs. The B vitamins are another and some minerals like copper, selenium, manganese, boron iron should be looked at. Some doctors will diagnose on positive endoscopy and response to the gluten-free diet with improvement in symptoms. There is also a gene test for celiac genetics. But almost...
  3. GFinDC
    You sound like you are on the right track. By bilateral rash I assume you mean she has a rash on both elbows, knees, hands or other? A symmetrical rash like that is typical of DH (dermatitis herpetiformis). DH is a skin condition that only people with celiac disease get. They test for DH by taking a skin biopsy from clear skin next to a lesion. The biopsy...
  4. GFinDC
    https://www.bbc.com/news/health-49551337 Not really a related condition to celiac but interesting as it involves nutritional deficits caused by eating a limited diet. Teenager 'blind' from living off crisps and chips By Michelle RobertsHealth editor, BBC News online Experts are warning about the risks of extreme fussy eating after...
  5. GFinDC
    Hi Keight, Yep, it's a good idea to take it easy on your gut when you have celiac disease. While healing easy to digest foods and low spiceyness is good. Some times avoiding sugar and carbs helps to limit gas/bloating. Pepto Bismol and peppermint Altoids or peppermint tea can help too. You might want to try avoiding dairy for a few months also...
  6. GFinDC
    All celiac testing requires you to be on a gluten containing diet. That includes the endoscopy. The U of Chicago recommends 12 weeks on gluten before the blood antibody testing and 2 weeks before the endoscopy. During the endoscopy they take 4 to 6 biopsy samples of the first part of the small intestine lining. Those samples are checked with a microscope...
  7. GFinDC
    Every celiac should react to rye. It is one of the 3 common triggers for a celiac reaction. Oats are a known trigger for a subset of the celiac population. Wheat, rye, and barley are the celiac primary reaction triggers. Amaranth Buckwheat Chocolate Coffee Corn Dairy, i.e. milk and cheese (alpha-casein, beta-casein...
  8. GFinDC
    Hi Keight, I was fatigued before going gluten-free but also found it hard to sleep. Racing mind and such. Some things that helped me are time on the gluten-free diet, selenium, and vitamin D. Lately I am taking boron and calcium citrate. You are correct that malabsorption can cause fatigue. Caffeine also causes me fatigue after drinking it for...
  9. GFinDC
    Hi Chris, There is a thing called FODMAP intolerance that they think causes some NCGS (non-celiac gluten sensitive) people problems. They (researchers) think it may explain a lot of the NCGS symptoms people have. NCGS can cause symptoms similar to celiac disease but not show up on celiac tests. There are more people with NCGS than there are with...
  10. GFinDC
    Celiac disease is an auto-immune condition. I imagine you got some immunizations as a child or sometime? Probably got a shot for measles or some such? Well, if so, you are still immune to measles. And probably tuberculosis if born in the USA. If your immune system were to "forget" it had learned to fight measles or tuberculosis, you could get those...
  11. GFinDC
    https://www.google.com/search?q=celiac+doctor+savannah+ga&rlz=1C1CHBF_enUS806US806&oq=celiac+doctor+savan&aqs=chrome.3.69i57j33l3.8750j0j8&sourceid=chrome&ie=UTF-8 Maybe you can find one by talking to other people with celiac in your city? I am not in Georgia so can't be more help than that. Usually with celiac disease they...
  12. GFinDC
    Nightshades can cause joint pain in some people. Nightshades are tomatoes, potatoes, peppers, and eggplant. Soy is a top 8 allergen so not a great thing to add to your diet. There is so much soy in the foods we eat already that many people react to it. The antibodies to gliaden (gluten protein) decline if we are not eating gluten. So the tests for...
  13. GFinDC
    Short answer, yes! You may find yourself getting sick from just about any food during the healing process. Even if the food does not contain any gluten at all. Why, Why, Why you ask? Here's why. Celiac disease damages the small intestine. The normal surface area of the small intestine is about the same as a tennis court. Imagine a...
  14. GFinDC
    The endoscopy is considered the standard for diagnosis of celiac disease. Positive endoscopy and positive blood antibodies and positive response to the gluten-free diet should leave no doubt in your mind that you have celiac disease. But, you said you felt worse after going gluten-free. So, here's the rub. Many of us take months or more to heal from celiac...
  15. GFinDC
    Hi Jennifer, Your doctor can test your vitamin and mineral levels now. That way you know if you are low on anything besides vitamin D. You may want to take some boron to help your calcium and vitamin D levels. Boron extends the life of vitamin D in the body and also helps bone absorb calcium. https://www.healthline.com/health/brains-bones-boron ...
  16. GFinDC
    Pork chops. Chocolate rice cakes with peanut butter. And water.
  17. GFinDC
    It looks to me like the admin combined your 2 accounts under chocolatesunrise. So you are good to go and your real name is not visible now. Thanks Scott! (admin).
  18. GFinDC
    It looks like Frodo had an endoscopy there. https://www.youtube.com/results?search_query=endoscopy+experience+uk
  19. GFinDC
    We try to discourage people from using the real names on the forum. But Facebook sign-ins may require that I suppose. So if the accounts are combined I suggest chocolatesunrise be the account name.
  20. GFinDC
    Hi Chris, That sounds rough! My brother has peripheral neuropathy. He has type 2 diabetes. He craves sweets and carbs too. I've tried to get him to stick with meats and veggies and nuts, but he came with a built-in stubborn streak a mile wide. He is half blind from diabetes but still won't give up his sweets. It's entirely possible to have...
  21. GFinDC
    Hi Chris, I am not sure what you mean by nerve pain, everyone tends to describe things in their own way. But there are celiac related effects that could cause nerve pain. One is known as peripheral nueropathy. Gluten ataxia is similar and caused by an autoimmune attack on the brain. People with gluten ataxia may have difficulty controlling their...
  22. GFinDC
    A GI visit is a good idea. Crohn's or ulcerative colitis are possibilities also. The D could be caused by celiac disease, or something else. People with Crohn's sometimes do better on a gluten-free diet. Lots of sugar (fruits) could be a problem for any of those conditions. Lots of fiber can be a problem for Crohn's. Nuts can be hard to digest and tend...
  23. GFinDC
    Hi Brittany, There are a lot of people who are gluten-free without being diagnosed celiac. For some they chose not to be tested for insurance reasons, others were tested and did not get a positive result. That can be true because there is a much larger number of people with NCGS (non-celiac gluten intolerance) than there are with celiac disease. The...
  24. GFinDC
    Lots of videos on making hominy at youtube. I made some using Mrs Wages pickling lime once. It took a long time just letting it soak overnight on the stove top. But I haven't suffered from pellagra since! It's a miracle ! Then again, I don't exactly remember ever having pellagra anyway, so maybe it's a coincidence. https://www.youtube.com/results...
  25. GFinDC
    Have you been checked for a stomach ulcer? Orange juice is acidic and can make an ulcer feel worse.
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