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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED I Have A New Allergy! Frustrated!
mushroom replied to pretty in paleo's topic in Food Intolerance & Leaky Gut
We all do react differently. All we can do is share our experiences and hope they help out someone else. (My joint pain is aggravated by members of the nightshade family ) -
ARCHIVED Just Diagnosed After 8 Years Of Symptoms - Scared Of Gi Cancer And Lymphoma
mushroom replied to sparksun's topic in Coping with Celiac Disease
You have been diagnosed relatively early. Many posters on here are not diagnosed until their 50's or 60's I do not see or hear cancer knocking at your door - that is for those who ignore the diagnosis and continue on their errant way. Please do not be scared of cancer. Now that you are diagnosed any additional risk (and it is not that high in the first... -
ARCHIVED Sick All Night And Today
mushroom replied to sharese28's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Perhaps the step forward you should take is to prepare all your own food from fresh, with no "gluten free" products, take it easy on the spices and hot stuff, and give your stomach a chance to calm down and start healing. Give it stuff that is easy to digest, take some probiotics and digestive enzymes to give it a helping hand. You will have less chance... -
ARCHIVED Gross Questions...new Symptom
mushroom replied to scottyg354's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Grey stool can often be a sign that you are not making enough bile and/or digestive enzymes, and therefore fat is not being properly digested. You should get this checked out with your doctor. -
ARCHIVED Please Shed Some Insight On This Blood Test
mushroom replied to karat514's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I share your frustration that they ran only this one test They did not even run the total serum IgA which would tell us if you make normal quantities of IgA and that therefore IgA testing can be relied upon. Doctors are in love with the tTG but it can be negative in people who will test positive on other celiac blood tests like the DGP (a newer test,... -
ARCHIVED I Have A New Allergy! Frustrated!
mushroom replied to pretty in paleo's topic in Food Intolerance & Leaky Gut
I react to corn pretty much the same way I react to gluten. I can handle some corn starch, but not anything that has any part of the kernel covering in it. -
ARCHIVED Is My Self Diagnosis Correct?
mushroom replied to SadPastaLover's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is currently no test that they can give you which will prove or disprove that you are non-celiac gluten sensitive. If you are sensitive to gluten and negative to celiac testing, that is your diagnosis - I'm afraid for now you will probably just have to live with it. They haven't developed any testing for NCGS yet and I am extremely doubtful that it... -
ARCHIVED My Kitty Is Sneezing!
mushroom replied to GottaSki's topic in Introduce Yourself / Share Stuff
Is she listless? Appear to have a fever? Off her food? If none of the foregoing you can maybe wait and see if she shakes it. Poor baby And poor mama -
ARCHIVED I Have A New Allergy! Frustrated!
mushroom replied to pretty in paleo's topic in Food Intolerance & Leaky Gut
Sometimes just eating a clean, whole foods diet is not enough to promote healing as fast as we would like. Sometimes we have to be more pro-active and give nature a helping hand. The three primary means of doing this that are mentioned on here are firstly, taking probiotics to repopulate the gut with healthy flora; secondly, taking digestive enzymes to... -
ARCHIVED Would Like To Start Baking With gluten-free Flour... Just Don't Know How/what
mushroom replied to Worried mommy's topic in Gluten-Free Recipes & Cooking Tips
Five years..... and I never promised you it wasn't a PITA I merely said that with time, money, and ingenuity, it can be done -
ARCHIVED Trying To Find New Ways To Cook Gluten Free Food
mushroom replied to sharese28's topic in Gluten-Free Recipes & Cooking Tips
And I developed a new love of American and British food after I found I could no longer eat Mexican, Asian, Indian, Middle Eastern, most Mediterranean (or probably even Inuit) food Although polar bear and seal meat sounds pretty good, with a side of whale .. oh, wait, that's politcally incorrect. -
ARCHIVED Bad Reaction To Gluten Free Food @ Wendy's
mushroom replied to sharese28's topic in Gluten-Free Restaurants
I believe you, Darissa, I believe you!! -
Now psillies, this is something really psilly, but I suppose it was just a mattter of time.... Great for all Texans and Oklahomans and Tennesseeans digging out from your second blizzard in a row: http://www.stuff.co.nz/life-style/fashion/8358098/Dark-times-at-Milan-Fashion-Week Yes, you've got it, admit it, you want it, ...
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ARCHIVED Very Frustrated With No Answers
mushroom replied to klv1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, it could be non-celiac gluten intolerance, which is about six times more prevalent than actual celiac disease (supposedly it is not an autoimmune response - and I say supposedly, because they don't know much about it yet). Or it could be a false negative, or you may not yet be making sufficient antibodies to measure yet. Or it is most likely that after...- 5 replies
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- bloating
- false negatives
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ARCHIVED Is My Self Diagnosis Correct?
mushroom replied to SadPastaLover's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It has been scientifically proven that after a period of not eating gluten, the gluten-intolerant body mounts a stronger response to gluten when it is reintroduced. This is why it is recommended that people get tested before they stop eating gluten, because you need to be still eating gluten to be tested, and it is usually too painful for people to go back... -
ARCHIVED Is My Self Diagnosis Correct?
mushroom replied to SadPastaLover's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The answers are maybe, maybe, and yes It sounds like you do have a problem with gluten and it may be celiac or it may be non-celiac gluten intolerance. Hopefully the testing will give you a clear answer. Accutane, like other antibiotics, kills off the good flora in the gut along with killing off the bad guys in your skin, and has been shown to cause... -
ARCHIVED 6 Year Old Son... Confused By Test Results
mushroom replied to chickpea77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is what Dr. Scott Lewey has to say: Endoscopy in celiac: What are the typical findings? The characteristic appearance of the surface of the small intestine in celiac disease include superficial ulcerations that are commonly linear, flattening of the folds, notching or scalloping of the folds and a mosaic like pattern. However, the surface may... -
ARCHIVED Test Results Back
mushroom replied to sharese28's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can read up a bit here about the meanings of test results: MEANINGS OF TESTS Open Original Shared Link -
ARCHIVED Silly Question 3 (Ra)
mushroom replied to designerstubble's topic in Related Issues & Disorders
Low Vit. D is common in both RA and celiac disease, and celiac and RA (or RA-type symptoms) often go together. I am not diagnosed celiac (never tested) but do have psoriatic arthritis which first started with very stiff hands in the mornings, pain in the elbows, fingers, neck and shoulders, toes, and in the balls of my feet (in that deep joint!). I always... -
ARCHIVED Test Results Back
mushroom replied to sharese28's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You don't give the ranges on your results but I'm assuming that everything over 30 on your tTG IgG was a positive, and I'm assuming that your IgA total serum fell within the normal range. Doctors prefer to have the IgA result be positive if you make normal quantities of IgA, but you can certainly be celiac with a high IgG too. It sounds like your doctor... -
ARCHIVED I'm New And Confused –
mushroom replied to huppa76's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most definitely. Or it could be gluten intolerance. The symptoms are pretty much the same, but celiac is an autoimmune reaction and at this time they don't believe that NCGI is. For anyone who feels better not eating wheat and feels worse when eating it, it is most likely celiac or NCGI that is causing it. -
ARCHIVED So Sick, And Not Sure Where To Go
mushroom replied to ImagineEscape's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, and welcome to the board. It does sound like gluten could be a problem for you. Most doctors don't know that gluten can make you overweight and automatically dismiss the idea of celiac in someone who isn't skinny. It actually can make you skinny or overweight. Sorry you found one of these doctors. It's no wonder we don't get diagnosed So... -
ARCHIVED The Song Name Game
mushroom replied to navigator's topic in Introduce Yourself / Share Stuff
Step By Step - New Kids On The Block