-
Posts
8,702 -
Joined
-
Last visited
-
Days Won
98
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by mushroom
-
I have to add that I had to get help from my doc to get some sleep because every muscle would be totally rigid and tight. He gave me Valium and it got me through (only took it at nights).
-
ARCHIVED Food Labeling
mushroom replied to Sarah J.'s topic in Gluten-Free Foods, Products, Shopping & Medications
As you seem to have seen, this has been a topic of hot debate. Some don't bother about gluten in things unless it is likely to get in their mouths (chap stick, lipstick, etc.); others get topical reactions (DH) from gluten containing products, some do think it can be absorbed through the skin. I am a fence sitter on this one. I choose to avoid those that... -
ARCHIVED Drinking With Celiac Disease
mushroom replied to LandonL's topic in Coping with Celiac Disease
Wine (both colors), white rum, cider. -
Thanks
-
ARCHIVED Gold Crowns, Macular Degeneration, No Vitamin D
mushroom replied to SandyStPeteFL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't forget those in the south too -
Yep, VERY cold turkey. There was no other way back then
-
ARCHIVED Food Labeling
mushroom replied to Sarah J.'s topic in Gluten-Free Foods, Products, Shopping & Medications
No, no, at the moment I think it is 20, but that may change. -
ARCHIVED Scientific Poster Help
mushroom replied to SarahBrock's topic in Coping with Celiac Disease
I agree. Imagine going into a room full of every kind of goodie you could imagine, all made with: phyllo pastry like spanikopita, regular pastry like pies both sweet and savoury, or just plain flour like , biscuits , cream-filled cakes, chocolate goodies, muffins, croissants, watercress sandwiches, whatever floats your boat, and not being able to eat a... -
Well, I've sorted the vitamins, especially B12, D, folate--they are all overflowing now Just bought some Multi-Mins and will work on those next. However, one of my docs says, "Those are psoriasis nails." Working on that, too, with Humira. Maybe I will get my screwdrivers back??
-
ARCHIVED Gold Crowns, Macular Degeneration, No Vitamin D
mushroom replied to SandyStPeteFL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the bleeding irritated gums adjacent to crowns--long ago, pre-gluten-free. I argued a long time with my periodontist about metal allergy; he finally recommended replacing them with ceramic crowns and, miracle of miracles, gums cleared up. Huge numbers of celiacs have low vitamin D and also osteopenia/osteoporosis. -
Lisa, do you have a link to that? My google search failed to come up with anything later than Jan 2007.
-
Can I relate to that!! I always had the strongest greatest nails in the world. Could open anything with them, use them as a screwdriver, whatever. Now I keep them short because they spit both ways, are so thin, have ridges both ways--A MESS! Right ear rings almost constantly; didn't start until gluten free. Cramps in soles of feet (stupid doctor told...
-
However, it is difficult in the kind of situation I have. We have one particular couple that we eat with, used to be their place then ours. Now it has to be ours because we can't (Dh and I) both go somewhere to dinner and say we will bring our own Kind of defeats the purpose.
-
ARCHIVED Food Labeling
mushroom replied to Sarah J.'s topic in Gluten-Free Foods, Products, Shopping & Medications
Even NZ needs to learn from Oz. I was in the market yesterday (a private one, not one of the big chains) where I have never purchased ham. I looked at their packaged sliced ham, and the ingredients included "thickener". The butcher happened to be stocking the counter and I asked what the thickener was. He asked if I were a celiac and then said, "Well... -
Digestive enzymes contain lipase (to digest fat) protease (for protein) cellulase (for cellulose), etc. They replace the enzymes which our pancreas is not producing enough of. Probiotics promote a healthy gut, but do not digest the food.
-
ARCHIVED Possible Crohn's Or Refractory?
mushroom replied to duckface2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A warm welcome to the forum even if you are not feeling well enough to respond. You poor dear, you really have been through the wringer. You must be suffering horribly. I have only some quick questions and possible insights to offer. You mention you had a yeast infection. Where was the yeast? Was it overgrowth in the gut, or somewhere else, and... -
ARCHIVED Sensitivity To "healthy" Foods
mushroom replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Really??!! I just bought some Rooibos tea today--a new tea shop has opened up in the mall and the guy had no customers except me and he talked me into it. I haven't tried it yet. I wonder what effect it will have on me?? Will let you know. I can't drink caffeinated teas and this seemed like a good idea--comes from South Africa. He had two kinds, a plain... -
ARCHIVED I Need Your Brilliant Top Tips...
mushroom replied to GeordieLass's topic in Gluten-Free Foods, Products, Shopping & Medications
I love it. l You are describing the schizophrenia I go through every year, alternating between colonial British (much the same thing) and U.S. I cook and eat completely differently in New Zealand and U.S. (But in NZ, none of those awful baked beans on toast, my breakfast nemesis as a child--along with oatmeall{at least now I know why} and I also don't do... -
And true happiness is if she understands what she reads!
-
ARCHIVED Will I Ever Have A Normal Immune System?
mushroom replied to lizajane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It will probably sound familiar to quite a few, maybe not quite that bad, but... I had to quit my bridge club because people would come in all the time with the sniffles, I would end up with a major cold followed by chest infection and antibiotics. It got to be real old. Dh was the same, only his specialty was sinus infections. In middle of summer we... -
Vent away, scream if you want, just don't puff. I always left a pack of cigarettes sitting on the coffee table in the living room from the day I quit. I knew that I would have to resist them wherever I went, so I thought, might as well start doing it at home. Nothing would have made me open that pack. You go girl!!
-
ARCHIVED Reaction? Heart Racing, Itchy Throat, Panic Attack?
mushroom replied to yumyummum's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I don't know about a temporary rapid heartbeat; this was one of my worst, most constant symptoms. Not just rapid but pounding. It sure used to make sleeping difficult Don't get that any more. -
ARCHIVED Australians And New Zealanders Hellooooooo :)
mushroom replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
My humble opinion is that, yes, we do suffer from what could be described as irritable bowel syndrome, but WHAT is causing the bowel to be so damnably irritable? Once they tell me their opinion on that I might listen. Otherwise, it is just a description of my symptoms, like your skin is red and irritated and he says, "you have a rash." Hello??? "Doctor... -
I have never understood why drugs should be exempt from the food labelling laws. These are things you are prescribed, reach for (whatever) when you are desperately in need. You are not sitting back and looking at the menu and saying, "Hmm, should I have that tonight? It could be delicious. Is it something I can/should eat?' You are in *need*, you don...
-
ARCHIVED Australians And New Zealanders Hellooooooo :)
mushroom replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
That's the way it goes; it certainly doesn't take a medical degree after five years of medical school to say, "You've got IBS" (boom!!! icon here). If I had $5 for every time I have been told I had IBS I would own my own Pacific Island (not in the Fiji archipelago thank you) and be staying out of the sun (skin cancer you know, I've had a million of them...