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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED My Story- Can Someone Help Me?
mushroom replied to Charlee22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Charlee, and welcome to the forum. Your symptoms are certainly compatible with celiac, as is your elevated IgG result. Your biopsy may or may not be positive; make sure they take at least five samples, and then it depends on the experience of the gastroenterologist in recognizing celiac areas, and just plain luck also if the damage is minor, that... -
ARCHIVED Dazed And Confused
mushroom replied to ohsroac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since genetics are involved in celiac disease, it is certainly possible you could all have it. If your daughter has it (discussed below) then she had to have gotten a gene from either you or her father as I understand it (no genetic expert here! although there are others here who will answer) No wonder you are confused about a "weak positive". You would... -
ARCHIVED Cutting Out Dairy
mushroom replied to LandonL's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I luv hemp milk. -
Good for you for not giving up on it. I am so glad you are succeeding because it is really terrible to be addicted to something that is so harmful. I can't tell you how many times I *tried* to quit smoking. It was only when I decided I *had* quit smoking that I succeeded. May good health and happy lungs be yours.
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ARCHIVED Getting Very Discouraged!
mushroom replied to susiequsie's topic in Coping with Celiac Disease
As a long-term member and gluten-free eater, you would of course have expected the celiac test to be negative. If you are absolutely sure there is no cc going on (and I just discovered it can be tricky; had a gluten eater guest in the house over Easter and she ate four slices of gluten bread she brought with her--my Dh and I ended up with diarrhea for a couple... -
ARCHIVED Recently Diagnosed
mushroom replied to D Angel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This stood out in your post D Angel. I wondered if you are in the habit of consuming a lot of fruit prior to gluten free; could it be a fruit "overload" that is causing your hives? Or a particular fruit in large quantities? Just a thought. -
That is the sincere hope of all we self-diagnosed celiacs; that we can educate at least our own doctors It is too much to hope [sigh] that they might in turn educate their colleagues, although my PCP did state that the subject is under much discussion in the medical community here.
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ARCHIVED 7yr Old Daughter Has Symptoms
mushroom replied to Wispyshadow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Great news! -
ARCHIVED Recently Diagnosed
mushroom replied to D Angel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, and welcome. Gluten free breadcrumbs are available or you can make your own from gluten free bread. You could try flaxseed. The worst of the withdrawal, etc., is often over in two weeks; you just have to stick with it because it is different for each person. As for the hives and itching (new symptom apparently), this happened to me after going... -
ARCHIVED The Flour Report - Attributes Of Several gluten-free Flours
mushroom replied to RiceGuy's topic in Gluten-Free Recipes & Cooking Tips
Confusingly, sweet rice flour is sometimes called "glutinous" rice flour, not to be confused with gluten, merely referring to its sticky qualities. That's what it was called at my Asian market. -
ARCHIVED Could This Be Dh? I Have To Ask....
mushroom replied to nasalady's topic in Dermatitis Herpetiformis
Dh went gluten free at the same time as I did (of course, just for me, he said, but he also had "issues"). Then after about 8 months cheated with beer and french bread and thought he was getting away with it. Then out popped this rash on his forehead, so itchy, with blisters... He didn't get any psoriasis-looking things though, and I would certainly recognize... -
Here's my story. Ankles and feet began swelling big time in my late 30's; used to be a problem only when I pulled an all-nighter before then. Blood pressure went up at same time, was on BCPills. Started taking diuretic; have done so for last 30 years--"idiopathic edema". Salt makes not a wit of difference although I have always been low salt. Don't do...
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ARCHIVED Sublingual B12 Without Sorbitol?
mushroom replied to Blondie's topic in Coping with Celiac Disease
Sounds a bit like, "you can't have one breadcrumb?!!! -
ARCHIVED Antibiotic Use And Malabsorption
mushroom replied to pbc+celiac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Before I went gluten free I had a continuous UTI. I would take a full course of antibiotics and still not test clear. So more antibiotics...more gut problems, less absorption, a continuous vicious cycle. It took more than six months gluten free before the UTI's went away, even with taking cranberry tablets all the time, and lots of them. So yes, I agree... -
ARCHIVED Other Than Wheat, Rye, Or Barley
mushroom replied to skluever's topic in Coping with Celiac Disease
One of the allergens I see missing from your list is corn; that is a biggie for me (after soy). I also have problems with some beans, especially refried beans. -
ARCHIVED Sublingual B12 Without Sorbitol?
mushroom replied to Blondie's topic in Coping with Celiac Disease
I had the same problem. Why don't they put Stevia in it now that the FDA has given its seal of approval? -
ARCHIVED What Does Blood Test Mean If It Is Inconclusive?
mushroom replied to fullofhope19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We are talking about you have been through this whole work up and had all these tests, and this has been going on for years where you have been telling him your multiple symptoms, and he comes up finally with this grand pronouncement: "YOU HAVE IRRITABLE BOWEL SYNDROME." We are like, yeah, I know that, by why? -
ARCHIVED Do The Silicone Baking Dishes Work Well For gluten-free Goodies
mushroom replied to Crystalkd's topic in Gluten-Free Recipes & Cooking Tips
Are you able to line the pans with baking paper? If so, that could be the answer to your problem (except with things like muffins -
ARCHIVED Possible Gluten Linked To Cataracts
mushroom replied to nrg4me's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have the blue eyes and fair skin and have *always* worn sunglasses. -
ARCHIVED Getting Diagnosed
mushroom replied to mikehall117's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What is that nonsense? I am assuming it was damage to the villi? Damage is damage; how much damage does he want you to have forevvinsake? -
ARCHIVED Worchestersauce And A1 Sauce
mushroom replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I was so hoping that A-1 was not gluten free; I can't stand the smell of it and Dh consumes it like it was, well, sauce. So every year when we come back I am condemned to A-1 again, sometimes on poached egg!!, a double whammy -
ARCHIVED Wanna Help Me Pay It Forward?
mushroom replied to SGWhiskers's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, we can certainly have bacon, as long as we make sure it is gluten free. And I cook mine in the microwave Scrambled eggs can be done in the microwave too, but you do have to stir them 2-3 times. -
ARCHIVED Vitamin B12 Tablets Hurt!
mushroom replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used to be really lactose intolerant (long before I realized I was gluten intolerant), but since going gluten free I am beginning to feel more comfortable with lactose; can even drink a couple of cappuchinos in a row and not have a problem. I am even getting cocky enough to consider some ice cream sometime in the near future (with Lactaid tablets at first... -
ARCHIVED Help/guidance From Some Experienced Celiacs! Please!
mushroom replied to LandonL's topic in Coping with Celiac Disease
My goodness, Welda, your post just made me realize how different we all are in this disease we share. I actually shuddered when I read what you eat, "and continue on with soy protein, tamales, refried beans, corn tortillas, corn spaghetti"... All the above would have me writhing on the floor (all day!). I don't know if you remember the thread I started... -
What Scully said. The flamin' nerve of it!! What you wanted was to rule out other things, not diagnose celiac. What did he see??? How frustrating.