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AliB

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Everything posted by AliB

  1. AliB
    There is certainly some strength in your argument Rachel, however, that does not necessarily account for the sections of newer exposees to gluten in some areas of the world who are suffering from its effects yet have never had fillings, mercury or otherwise. Young children and babies do not have fillings, yet still suffer. There is some argument in that...
  2. AliB
    I am 99% certain my Mum had it - she was Type 1 Diabetic, anaemic all her life and had me followed by a stillborn followed by 10 miscarriages. I suspect it was inherited through her Mum (died of bone and breast cancer). I am 90% convinced I have it (just waiting for a second set of tests to come back and to have a gene panel done), I am insulin-dependent...
  3. AliB
    You may undoubtedly find that dealing with the Celiac will also sort out the Crohn's, as it is almost certainly caused by the same thing. Gluten. This is a great place to come and share experience, ask questions, vent and whatever you need. You can pretty much guarantee that what ever you are going through has been experienced in some form by others...
  4. AliB
    The 'Dangerous Grains' book I am reading at the moment is a mine if information on why gluten affects so many of us so badly. Some bonds between the amino acids that make up the gliadin and glutenin are very resistant to the digestive process. Some produce the enzymes capable of breaking it down, but many more do not. Normally the proteins would be broken...
  5. AliB
    Ridgewalker (Sarah) posted this on another thread a couple days ago - it is worth pasting and saving into a document to save on your computer as the information is extremely useful. List of ingredients to watch out for in toiletries and cosmetics: Avena Sativa (Oat) Kernel Flour Colloidal Oatmeal Cyclodextrin Dextrin Dextrin Palmitate Hydrolyzed...
  6. AliB
    After having the blood test I immediately stopped gluten and dairy. Within a few days, as I was still reacting to some foods, I realised that my problem wasn't just gluten, but carbs in general so I cut right back on carbs and sugar and have kept my diet simple, sticking mainly to good, plain unprocessed meat, fish, poultry, fruit and vegetables (the Specific...
  7. AliB
    If you don't mind me saying, I would put money on your 4-year-old having Celiac. I checked out your EE link and the symptoms are almost identical! I also have a book entitled 'Dangerous grains'. In the appendix at the back are listed over 150 illnesses and diseases which have a causal link to gluten intolerance/Celiac and I am sure Eosinophilic disorders...
  8. AliB
    She is not averse to trying although she's not convinced it is the cause of her problems (unlike me!). Her eldest son who is six has had a blood test which has come back negative/borderline although her doc thinks he probably is Celiac, and he's seeing the Ped next month. She is trying to implement the diet and we both feel his younger brother would probably...
  9. AliB

    ARCHIVED Gluten Free Before Blood Test

    AliB replied to monkey123's topic in Doctors

    Depends how long you had been off the gluten. The body still retains the antibodies for a while but after a few weeks they will start to diminish. Why are these doctors so ignorant? I find the key is knowledge. The more knowledge you have, the more confident you are. When I talked with my doc yesterday she openly acknowledged that I know more about...
  10. AliB
    I have been gluten-free for 3 months. Saturday I got my first 'proper' glutening. I made some cookies with oats which I thought were safe, but whether it was the oats or whether they were contaminated I'm not sure, but after just half a cookie, within 2 hours my heart was almost busting out of my chest. I didn't sleep at all and at 4am I was emailing Terry...
  11. AliB
    Yes but, surely the lymphoma is only a risk in the undiagnosed Celiac who is not following the gluten-free diet??!!! That kind of ignorance is sheer stupidity. The whole benefit of being diagnosed is to regain health and avoid any further deterioration. If you think about it, it would be in the Insurance companies' interests to have everyone who takes...
  12. AliB

    ARCHIVED Weight

    AliB replied to really confused's topic in Coping with Celiac Disease

    I have been gluten-free for 3 months and have been struggling to keep my weight down even though I am eating little in the way of carbs. My body doesn't cope with them very well (hence the diabetes) so I am better keeping them low. I try to avoid baked goods and just stick to basic foods but I am hungry! So I know how that feels. I hope that as time...
  13. AliB

    ARCHIVED Newbie Thread

    AliB replied to debmidge's topic in Coping with Celiac Disease

    If you want shop-bought fries (chips) whilst out and about, check that they are cooked in oil that has not been contaminated by any other foods, and if they buy their fries in (or even if you buy ready to cook yourself fries) check that they have not been coated with anything that contains gluten/wheat.
  14. AliB
    As I live in the UK I don't have insurance dilemma to worry about - my dilemma is to get the doctors to actually diagnose it so that I can obtain gluten-free on prescription! However, I can't help feeling that to the Insurance Companies a diagnosis of Celiac ought to actually put your premium down! After all, if, once you start to follow the gluten-free...
  15. AliB
    when I realised I was GI I dropped dairy at the same time as gluten, as well as most carbs and sugar. I thought "in for a penny, in for a pound!". I had been tootling along fairly well for the last 3 months, getting odd reactions that I thought may be to other foods or just because my gut was still healing, but on Saturday I had a blatantly obvious reaction...
  16. AliB
    Our youngest grandson has that problem but then I have too all my life. I have always woken with a mouth like a sewage pit. It is due to toxins and infections that the body is trying to dispel via the tonsils (ever had those little 'cheesey' lumps in your mouth that smell like someone died? They come off the tonsils and are like solidified pus! That's...
  17. AliB
    Have a trawl on the internet and see if you can find some really good medical references that highlight this problem and the Celiac link - print them off and give them to her. She obviously doesn't read up-to-date Celiac textbooks - although their symptom list can be limited, fertility problems will virtually always be listed. My Mum was Celiac. She...
  18. AliB
    I am so suspicious of drugs and the damage they do - not to mention all the meddling with our food and, well, just about everything that I reckon I might just take my chances and stick to gluten-free. I reckon its the safer option. It was being given a new drug that triggered off the darn Celiac in the first place! I mean, I'm glad that happened or...
  19. AliB
    If you react to gluten then you are obviously intolerant of it so dropping it was the best thing to do. But if you did not get well on the gluten-free diet then it may be that your gut is still not healing for some reason. Sometimes it is easier to pare your diet right back to basics and avoid anything processed or commercially made and slowly introduce...
  20. AliB
    The acid test comes to - whether those who are gluten intolerant can ever eat gluten again. How do you quantify that? If some who are Celiac never display obvious symptoms whether they eat it or not, until it finally rears its ugly head - how can you tell? There are many out there who display 'textbook' symptoms. Some of them may get picked up. My...
  21. AliB

    ARCHIVED My Dilemma

    AliB replied to 7-cody's topic in Coping with Celiac Disease

    I'm not sure that 3 months was really a fair trial for the gluten-free diet. I have been on it for 3 months and it is only just now that my immune system is beginning to kick back in. Now I am getting 'proper' reactions to gluten. What it has told me is that some of the foods I have been having that I thought were safe, are not. I thought I could cope...
  22. AliB
    What I am telling my daughter who is going through a similar situation with her eldest son is that the key is knowledge. I went in to my GP today to request a retest. After a short conversation she openly acknowledged that I know more about this than she does! How refreshing is that?! As a result she applied for several tests for me although she hadn...
  23. AliB
    I was taking digestive enzymes with HCL thinking that my problem was low stomach acid but since going gluten-free it has resolved itself and generally (unless I get glutened or eat too much carbs) my digestion is fine now. I can also eat more food than I could when my damage was at its worst. I stopped most of the supplements as I didn't want to 'cloud...
  24. AliB
    I too have been following the SCD but have been allowing just a few small bits to creep in. The oats were obviously a bad idea. This morning I went back to the doctor and requested another set of tests. This time we had a good chat about it (I know more about than she does!) and she has not only asked for the tTg test again but also an EmA and an IGg...
  25. AliB
    My doctor told me that you can still have 'subclinical' thyroid deficiency even if your levels appear to be normal. How they work that out I don't know. I too have been gluten-free for a little over 3 months and was hoping my energy level would be better than it is. i have a little more but what I am finding now is that I am reacting to foods that I...
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