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Latest Celiac Disease News & Research:
Everything posted by AliB
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What a giggle! Our local store often has fish on its reduced section and I do come home with pieces of salmon, mackerel, seafood. Usually its expensive but buying it reduced takes the edge off a bit. Trouble is I had two nice bits of salmon the other day and decided to fry them. Please, please don't ever fry it! It was horrible. I normally cook...
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ARCHIVED Which Comes First - The Celiac Or The Diabetes?
AliB replied to AliB's topic in Related Issues & Disorders
I am type 2, but I am also on insulin. Mine, as with a lot of people, came on gradually. I started years back with hypoglycemia then ended up with diabetes, diet controlled at first, then tablets, now insulin. My Mum was type 1 from 16, my Dad type 2 from late 60's, his Mum was type 2 as is his older sister and younger brother. We obviously are a very... -
ARCHIVED Which Comes First - The Celiac Or The Diabetes?
AliB replied to AliB's topic in Related Issues & Disorders
Now that's an interesting thought Rachel. What if the Cow's milk intolerance comes first and actually triggers the Celiac? We know that many babies are intolerant of preparations containing cow's milk. Women who are breastfeeding are told to drink plenty of the stuff. It is widely recognised that a huge proportion of the population across the World... -
ARCHIVED Stupid, Stupid Doctor
AliB replied to AliB's topic in Parents, Friends and Loved Ones of Celiacs
I think it is definitely gluten that is the catalyst for his diarrhea and stomach ache issues. When he has been here during the school breaks and on a guaranteed gluten-free diet he is fine. Generally he has been better when back home and at school apart from the occasional accident and some irritability - we are never sure whether that it is a glutening... -
Oh Boy. My little grandson, Connor, is just 7. He was getting terrible bowel problems, constantly messing himself. When I discovered that I am Celiac/GI, I suggested to my daughter that she get him tested and try him on a gluten-free diet. She took him to the Doctor at the end of April (a locum) and he agreed that in view of the family link (my Mum...
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ARCHIVED Syptoms Worse After Being Gluten Free For 3 Weeks
AliB replied to AnnieZ's topic in Coping with Celiac Disease
A lot who are Celiac/GI also have a problem with dairy. The enzymes responsible for lactose digestion are produced near the tips of the villi and when the gut is damaged, lactose digestion is impaired. Yes it is possible you are still getting 'glutened' from hidden sources - after I had been gluten-free for 4 months I realised that I had been getting... -
ARCHIVED Celiac Testing
AliB replied to AliB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes it is about the fact that we are all exposed to the same things, well, in certain parts of the earth we are, anyway. But our individual reaction depends on our individual genetic weakness or vulnerability. Taking gluten away does not necessarily remove the leaky gut, but it does remove the gluten antagonist. So problems that were occurring due to... -
ARCHIVED Celiac Testing
AliB replied to AliB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, but.................. What I see is self-help groups and discussion groups and support groups, et al, for all these different diseases. They are all completely focused on their 'own' disease, like this one is for Celiac, and few of them, if any are looking at the 'wider' picture. The difference is, that it is increasingly appearing apparent... -
ARCHIVED Celiac Testing
AliB replied to AliB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am not going to argue the point with you Rachel, but I did not say that all these illnesses were due to Celiac, simply that there seems to be evidence that a lot of people who suffer with these problems do get better when on a gluten-free diet. Very often they have only discovered it either because, like my husband, whose brain-fog has gone and his Fibromyalgia... -
ARCHIVED Celiac Testing
AliB replied to AliB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It just looks to me that nearly everyone I know has a problem with gluten to a greater or lesser degree. I have had family members with Cancer, several with Diabetes, others with emotional and neurological conditions, depression, anxiety, many with stomach and digestive issues. Friends with Chronic fatigue, Fibromyalgia, hemochromatosis, blood disorders... -
ARCHIVED What Is This? Warn 0% Box Box Box Box Box
AliB replied to ravenwoodglass's topic in Board/Forum Technical Help
I know exactly what you mean! It is sitting there - all accusatory even though I haven't broken any rules, like the proverbial 'Big Brother'. The fact that I couldn't see anyone else's made it worse - it felt like I had been singled out for some reason! So, if only the Mods can usually see it does that mean that we have all been made Moderators... -
ARCHIVED Bruising... Hair Loss... Weight Gain... Help!
AliB replied to AshleyRay's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Before I discovered I was Celiac my hair was falling out all over the place. I took Milk Thistle capsules for a few weeks as they help to restore the liver. Hair loss is often a sign of a sluggish liver (if you do take some make sure they are gluten-free - mine weren't, as I discovered when I took some recently!). I have always bruised easily - that... -
Me too, I keep getting gluten symptoms yet I'm not sure where from. I'm beginning to get to the point where I'm wondering whether its worth bothering to eat! I can't quite figure out why people give cats and dogs food with gluten in. They shouldn't have it either - no wonder we keep seeing situations where dogs have savaged their owners, or worse, children...
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My daughter has recently started gluten-free. She has had odd rashes here and there, sometimes itchy, sometimes not and often gets dry skin, but currently the skin on her legs is extremely dry and flaky. She can scrub them clean, then the next day it's all back again. Creams don't seem to be making much inroad. Anyone else had this problem pre or...
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I have now been gluten-free for four months and it has taken all of that time for things to start to settle down. I realised recently that I have been getting low-level glutened all through from foods I thought were safe, like oats. It is so insidiously deceptive and it is so easy to be getting it without realising as it lurks in so many other forms....
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ARCHIVED Could Undiagnosed Celiac Lead To Rage/mood Swings?
AliB replied to ItchyMeredith's topic in Coping with Celiac Disease
My hubby has accompanied me on the gluten-free diet for no other reason than he hates being left out! For years he has suffered with Osteo-A, Fibromyalgia and Spondylosis and can be pretty miserable and irritable. Before gluten-free he would have to spend at least 3 or 4 days out of every 2 weeks, bed-bound. Since properly adopting the gluten-free... -
ARCHIVED Finally...
AliB replied to lizard00's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Depends which way you look at it - is it a genuine comment of is he being cynical???!!! Me - I read the cynical in everything!! -
ARCHIVED Diabetic ?
AliB replied to dollamasgetceliac?'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just read that article - that is very interesting and backs up my theory on the cause of Diabetes. I believe it is to do with Leaky Gut. Sugars are getting through the gut wall into the bloodstream that shouldn't be there - normally it would all be processed through and controlled by the liver. The extra sugars in the bloodstream are sending the system... -
ARCHIVED "silent" Celiac
AliB replied to psusharon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are Diabetic why have you not been tested for it already? There is a definite link between Celiac and Diabetes and all who are diabetic, particularly type 1, should be tested as a matter of course as should at the very minimum fist-degree relatives of any diabetics. The best way not to go to pieces in front of the doctor is to know your subject... -
I would not be at all surprised if it wasn't to do with Celiac/GI. Likely malabsorption - we all present differently - maybe those who went grey young ARE Celiac and just don't know it yet! My Nan, who died at the age of 64 with breast cancer was completely white by the time she was 30! Knowing now that my Mum was Celiac, I suspect that my Nan probably...
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ARCHIVED Antibody Testing - Can I Have Some Feedback
AliB replied to AliB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is so great Nora that you can get a diagnosis there just from dietary response alone. How I wish they would do that here - it would pick up so many sufferers. Those who are 'silent' would unfortunately still slip through the net, though, which is where the IgA system needs a rethink. Several Coeliac specialists believe that ANY IgA response to... -
ARCHIVED Antibody Testing - Can I Have Some Feedback
AliB replied to AliB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Antibody Testing - Can I Have Some Feedback
AliB replied to AliB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The testing procedure here does not seem to be anything as clear or well-defined as it is over there. I notice most in the States are given a 4-pronged test. Here it was only 2 and I had to ask for the later additional IgG and IgM tests. Yes they were low, but I have been virtually gluten-free for 4 months since the original ones were done. I would really... -
ARCHIVED Antibody Testing - Can I Have Some Feedback
AliB replied to AliB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
We do get help on the National Health, but only if you have an official diagnosis. Other than that we are left to fend for ourselves like you. Everything here is so expensive, and gluten-free food is exorbitant. A 125gm box of cookies (9 - 12) can cost between 98p and -
ARCHIVED Antibody Testing - Can I Have Some Feedback
AliB replied to AliB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Haven't a clue. The doc showed me the pc screen and that is all that was written on it. I really am not sure that a Total IgA or IgG was done on either test. What would the Total IgA etc be called? Just IgA or something else? Even the doctor wasn't sure. She thought the IgA test was the Total test. It's all so flippin' confusing!