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tom

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Everything posted by tom

  1. tom
    Hi smpalesh, I'm wondering which types of Amy's you're eating. I suppose it's been awhile since I've seen posts about Amy's frozen foods being problematic for the posters but I also haven't been reading as much here lately. For years it just kept coming up. Never saw much about their other lines. Does anyone know if they changed? Any long-timer REtry an...
  2. tom
    Hi Kocoyboy, Hope you can feel better soon, it's tough when not seeing improvements. Honestly, a week & a half is often not long enough to get settled into knowing what to avoid & to answer "where/what CAN I eat?" Is there gluten-free food at school? If you're eating much processed food, would you be able to simplify your diet? For as easy...
  3. tom
    Haven't seen anyone mention that it can be good, just in general, to let a specialist take a look under the hood, so to speak, since we already know things haven't been well. I feel better knowing I've got a baseline eval available for future comparison.
  4. tom
    Oops what'd I miss, reigning in absentia? Wayyy too busy w/ Ronaihna messin w/ his cousin Monti's head. Hope it just blows over. Ohhhh Gnikkers, hugs from me too. Screw that boiler tho, yah? Russel (hehe) awesome that the work hrs didn't change. How awful/worrisome that something as potentially impactful on your ds could be so cavalierly changed...
  5. tom
    Nope. You're right about the part that it's significant that your immune system has never had a break from gluten. There's no need to increase your gluten intake beyond the 'some every day' you're already getting. Good luck w/ the testing!
  6. tom
    I'm wondering which type of Amy's because I think I used to see posts questioning cc in Amy's frozen foods but almost never the canned ones. There's a canned Amy's gluten-free organic southwest chili I've had plenty of times w/out a problem.
  7. tom
    I've been eating Tjoe's almond butter regularly w/out issue for probably 6 yrs. Mostly the Crunchy, tho I doubt creamy vs crunchy is a factor. This label has the shared equipment warning for peanuts, tree nuts & soy. No mention of wheat. I don't know if an organic one should be any different w.r.t. shared equipment. Isn't it a voluntary declaration...
  8. tom
    I think the main thing right now for you is to INSIST on celiac testing before trying gluten-free, or the testing will become ineffective. Oh dang, just saw that you may have already had the appt today. How'd it go?
  9. tom
    Hope it's a Very Merry Christmas for all!
  10. tom
    If it didn't cause an intolerable or even highly significant rise in symptoms, I suppose that's what I'd do, but I usually shy away from giving specific recommendations. I've seen occasional but rare posts of ppl affected longer term, after the challenge, who might regret doing it, but don't recall specifics of their early challenge symptoms. Celiac testing...
  11. tom
    Hi Mirjam, if you do restart on the gluten, remember it doesn't take a lot. I've been seeing studies on it for a while & here's a new one mentioned today in the forum's Publications Section. Open Original Shared Link "Even a small amount of the protein can stir up trouble. A University of Maryland study ( Open Original Shared Link ) showed...
  12. tom
    I think it's safe to say it'd be more unpleasant if you were re-introducing gluten after feeling increasingly healthier during weeks or months 100% gluten-free. (Slight assumption in there on it being celiac) You did say you never really went gluten-free, right? That'd be why it's not particularly unpleasant.
  13. tom
    Well that's a bit off-topic & curiously defensive. Someone posted that "often ppl say 2 slices/day" & I add the single cracker quote from your fav site & that's a bad thing? (Sarah had asked whether we'd "recommend amping up the ingestion of gluten before the test" after having explained that she's never been gluten-free - it's not a "re-introducing...
  14. tom
    Yeah, I thought it'd be easy to check glutenfreedrugs.com too. Apparently Greenstone was one of 3 mfgs when it started going generic in 2006. A thread here from '06-'11 at least doesn't have anyone saying they reacted, tho it looks like Lupin wasn't in the game yet. I see Lupin mentioned as mfg of OTHER generics, but wow this really sucks...
  15. tom
    Looks pretty good so far. (Some parts under progress) From what I've seen it's all post-Dx info. The Level 1, 2, 3 architecture could work pretty well, letting ppl easily choose how detailed the info is for each topic. Open Original Shared Link
  16. tom
    And *that's* the most important thing. It can be tough to get used to eating a new way, but wow is it ever worth it as symptoms fall away. Congrats on your Dx & healthier rest of your life!
  17. tom
    And the main worst part of it is 10 hrs or less? (7am-5pm) I think it'd be unlikely for a straight gluten issue to then be ok for another month. The first thing that came to mind for me, just from the title, was that the regularity is a Lyme symptom. More than a few members here turned out to have Lyme & not Celiac. I don't mean to scare you...
  18. tom
    I sure wouldn't. You seem to be getting plenty & as more research comes out, more Drs are recommending less gluten than 2 slices of bread anyway. Some are 1/2 slice/day & one oft-quoted celiac center is saying a single cracker/day.
  19. tom
    Human error rate?? I'm not sure what this is supposed to mean & can't think of any way it makes sense. Is it saying that lab techs are inept, spilling/contaminating samples or losing vials? I just keep saying "human error rate" in my head, thinking maybe some way to interpret it will percolate forward. 30% is literally an unbelievable number...
  20. tom
    I don't think your symptoms are too mild for leaky gut problems. They don't have to be extreme. Having to figure all this out can be pretty aggravating. I remember wishing I didn't have to eat at all. A food/symptom diary can help pinpoint what's safest, what's most iffy, etc. A simpler diet is easier to track correlations of course. It only helps...
  21. tom
    Woohoo 1 out of 4 done, Shad! I remember that type of relief well. Do ya leave the wasp there as a warning?
  22. tom
    I would've title it "Misguided dreamers see way to reduce one type of harmful protein sequence as academic/scientific exercise while admitting "None of the tested materials was completely nontoxic for celiac patients"." Personally, I find the idea on par w/ the last graf's "desensitizing" celiac away, as if it's an allergy, which should, imho, be a ridiculous...
  23. tom
    Hi Jacki, Sounds like a nicer-than-usual 4 days. Are you eating gluten today? As far as whether the issue is gluten or maybe just wheat, I think that'd be something to look into AFTER a longer-term period of relief from at least the two symptoms affected in those 4 days. Since ~30% of everybody has celiac genes, the info doesn't have much value...
  24. tom
    How macabre! Is this Psillyville or a Horrorburg plot from SawXIV? Roasting our heretofore-loyal Yeti buddy? Good luck asking for a favoUr now! At least when I was found to be yeti-intolerant, I hadn't met him yet. Btw, "mammal-free" is definitely a new one to me as well. From all sides I've always seen recommendations for lamb, buffalo, yak whatever...
  25. tom
    While it's natural to be apprehensive about an endoscopy, it's really REALLY no big deal. Personally I save the phrase "invasive medical procedure" for those where the patient is cut open & something's going on inside. I had a double-hernia surgery years ago & I learned there is truly something different w/ being opened up. There's a healing period...
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