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Scott Adams

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Everything posted by Scott Adams

  1. I've not heard of this specific symptom being related to celiac disease, but CD can attack the brain and nervous system in some people. You didn't mention if you have celiac disease, are on a 100% gluten-free diet, etc., but please let us know.
  2. In the test you show here it is almost 3x the cut off for celiac disease, so it is still definitely high. If you're sure your diet is 100% gluten-free (don't eat in restaurants!), you may want to try casein/dairy-free as well. I already shared this with you but here it is again:
  3. From the Experts: Join Our Virtual Monthly Meeting on "All Things Celiac" "Elite and Everyday Athletes with Celiac Disease: Eating for Fitness at All Ages" Join the National Celiac Association (NCA) and the Harvard Medical School...
  4. Marsh 3a would be considered mild damage: https://surgpathcriteria.stanford.edu/gi/celiac-disease/marsh.html Are you taking vitamin D, B-Complex, and any other supplements? Low vitamin D levels as well as others can be associated with depression. One of our moderator @knitty kitty might be able to recommend more about this.
  5. Below is more info on the gluten challenge, in case you decide to do that. I think it would be perfectly fair to call out your doctor on this and have them cover any re-testing costs, as they did give you incorrect info for your initial testing. But, if you already know you feel better without gluten, the point may be moot...why not just stay gluten-free...
  6. Creatine is an amino acid that should be gluten-free, but to be sure you may want to look for "gluten-free" on the packaging. Also, this older thread may be helpful:
  7. It sounds great, but if you plan to be a regular it's definitely worth having a conversation with the owner to get a feel for how serious they are about keeping all gluten out of their products. Ask them if they use certified gluten-free flours and other products in their baked goods, and train all staff to not bring in any gluten to work. It sounds...
  8. We've had other report very similar issues with trying to get their tTg levels to the normal range. The first thing we usually recommend is re-checking your diet for hidden gluten (see below), eliminating oat (even gluten-free oats), and milk/dairy:
  9. Can I assume that your diet is 100% gluten-free, and you are not getting contamination through meds, supplements, shared kitchen pots, eating out, etc? If so, the average time to recovery is 2 years. I had pretty severe mucosal damage and struggled for months not fully understanding sourced of hidden gluten, but after around the 2 year mark I began gaining...
  10. You are correct about being careful with psyllium. I ordered some psyllium powder from Amazon that did NOT say "gluten-free" on its label but also did not say that it may contain wheat, and it tested positive for gluten with a Nima sensor. I gave it away. Technically speaking, if it has "gluten-free" on the label it should be safe and below 20ppm, but...
  11. The average time to recovery is 2 years, but this can vary greatly from person to person, and depends on how much intestinal damage you had, weather or not you're taking vitamin & mineral supplements, are 100% gluten-free, etc. If you eat out at restaurant you're probably getting some trace amounts of gluten in your diet.
  12. In some celiacs gluten attacks the brain and nervous system, and the articles in the category below are about this. The good news is that in those who stay 100% gluten-free, the damage done can heal, but I agree that most celiacs need to take vitamin & mineral supplements to recover. /celiac-disease/celiac-disease-amp-related-diseases-and-disorders...
  13. I think it would not be very likely. Of course it may be possible if it were dropped directly on a piece of bread or something like that exactly on the spot where you drink out of the can. Something that may be more likely is that you could have gotten gluten if you eat out at a restaurant, or at a friend's or relative's house. White Claw in the USA...
  14. Welcome to the forum! It sounds like you've been gluten-free for a while due to real issues you have when eating it, which go away when you don't eat it. Given that you've already linked your symptoms with gluten, perhaps you don't need to go through what you describe as "heel on wheels" to try to get a formal diagnosis? You may find this article...
  15. The recommendation is just 2 slices worth of wheat bread daily for 6-8 weeks before a blood test, and 2 weeks before a biopsy.
  16. To me the fact that you had a positive tTG IgA twice before: tTG IgA : 16 U/mL Ref Range: 0 - 15 tTG IgA : 24 U/mL Ref Range: 0 - 15 tells me that you likely have celiac disease, no matter what the biopsy results show. If I were you I'd try a gluten-free diet and see if you get symptom relief. If so this would be further confirmation...
  17. Celiac.com 05/09/2022 - Natural Organics, Inc., is voluntarily recalling four lots of NaturesPlus Keto Living Sugar Control Capsules 90 count, because it was found to contain gluten. People who have allergies to wheat or gluten run the risk of serious or life-threatening allergic reactions if they consume these products. Individuals with Gluten intolerance...
  18. If you look at Native Americans they got wheat in their diets only in the last ~500 years or less...probably closer to the last 100-200 years. I've not seen many good studies done on celiac disease prevalence among Native Americans, but going from memory do recall one study that indicated that up to 6% of them could have celiac disease. More research needs...
  19. Were you eating the equivalent of 2 slices of wheat bread daily for at least 6 weeks before this test?
  20. I will admit that I'm not a fitness expert, but my understanding is that muscle mass is heavier than fat, so if you are converting fat into muscle, which is possible in your case, then it could account for the weight gain. Is your body getting leaner with all the fitness training? If so, I would not worry about the weight gain too much.
  21. I'm not sure what is available where you live, but here in California we can buy good frozen gluten-free pizzas at Costco, Safeway, and other major stores. Pre-packaged gluten-free pizzas and crusts should be safe, so you don't need to fully give up your pizza! I'm a thin crust fan, and use gluten-free "flour-style" tortillas from Trader Joe's to make personal...
  22. I think the best way to look at this is to look at animal digestive systems which have evolved to consume grains and grasses. They are entirely different than the human digestive system, and humans only began eating grains 12,000 - 20,000 years ago, which is a flash in the pan in terms of evolution. I believe gluten is one of the hardest things for all humans...
  23. You might be interested in this veterinarian who has contributed many articles to Celiac.com: https://www.celiac.com/profile/102790-john-b-symes-dvm/content/ and specifically these two articles:
  24. On some level it may just make sense to stay gluten-free, and if your symptoms mostly or completely go away, it means that you're on the right track...no extra money spent beyond the extra cost of gluten-free foods. If you still have some symptoms you could then keep a food diary and see if you find another intolerance, for example oats, cow's milk, corn...
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