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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    This research indicates that in some people cow's milk intolerance can elevate tTG levels:
  2. Scott Adams
    My daughter loves this pizza, and is also gluten-free, and she has zero issues, however, one of my three Nima gluten sensor tests I ran on the crust did end up positive, meaning that the batch tested was over the limit. This does make me wonder whether or not they have their wheat starch act together enough for prime time. If I eat this pizza I take GliaxinX...
  3. Scott Adams
    You've made a big claim here that "Food production is out of control and no accountability by the FDA," yet you've not cited any trusted sources that indicate that aflatoxins are an issue in the USA food supply. I've citied a trusted source that contradicts what you've claimed here...and the USA and other countries DO screen corn for aflatoxins levels to...
  4. Scott Adams
    @knitty kitty sent this to me: Gluten sensitivity and epilepsy: a systematic review https://link.springer.com/article/10.1007/s00415-018-9025-2
  5. Scott Adams
    It might make sense for you to get a fasting blood sugar test done, given your issues with carbs. In diabetics, carbs are more or less the same as eating sugar.
  6. Scott Adams
    I believe the recommendation is that they take at least 4 samples, and mistakes can be made when doing the biopsies, and many people here have reported false-negative results. Also, your gastroenterologist should have let you know that you should have been eating the equivalent of 2 slices of wheat bread daily for 6-8 weeks before your endoscopy was done...
  7. Scott Adams
    Welcome to the forum. You should try to get enough of each type of fiber, and especially soluble fiber as it can decrease your risk of diabetes and high blood pressure: https://www.healthline.com/health/soluble-vs-insoluble-fiber
  8. Scott Adams
    Thank you for sharing! These looks outstanding!
  9. Scott Adams
    Thank you for sharing!
  10. Scott Adams
    Others have reported seizures here, and we do have some articles on this topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/epilepsy-and-celiac-disease/ In many celiacs the symptoms involve mostly the nervous system and brain, and these symptoms can take a long time to go away. How are your vitamin & mineral levels? Are...
  11. Scott Adams
    This is great news!
  12. Scott Adams
    "In developed countries, commercial crops are routinely screened for aflatoxin using detection techniques that are performed in a laboratory setting. Food supplies that test over the regulatory limit are considered unsafe for human consumption and destroyed." Open Original Shared Link
  13. Scott Adams
    Welcome to the forum! The rash associated with celiac disease is called dermatitis herpetiformis, and is incredibly itchy, and typically has tiny hard blisters associated with it. A dermatologist would need to do a proper skin biopsy to diagnose it. It sounds like you may have already noticed a connection between gluten and your symptoms.
  14. Scott Adams
    Once you know that there is a connection, it may not make sense to get an official diagnosis. DH is horrible and an outbreak can last for weeks.
  15. Scott Adams
    Some members have reported that their thyroid levels went into the normal range after going gluten-free, but this would require follow up testing to verify. Here are our articles on this topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/
  16. Scott Adams
    Can I assume that she is not eating gluten-free oats (around 9% of celiacs have an additional sensitivity to avenin from oats)? Also, has she tried going dairy/casein-free, as this seems to be a common issue in celiacs, especially in the first year or two of a diagnosis?
  17. Scott Adams
    Please let us know what you find out.
  18. Scott Adams
    Most of us have been glutened before, especially those who eat out. Although a bit late, this article may be helpful if it should happen again:
  19. Scott Adams
    I think you mean Cholestyramine, and you may want to verify that it's gluten-free here: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=Cholestyramine Has this been working for her?
  20. Scott Adams
    Welcome to the forum, and I'm sorry to hear about your recent issues. It's very doubtful that bottled water would contain any gluten, but if your gluten-free breads contain xanthan gum, or other gums like guar gum, it could cause IBS issues in some people: You may need to keep a food diary and try eliminating certain foods like casein/cow's milk...
  21. Scott Adams
    This came a bit late, sorry, but if it should ever happen again, you may want to bookmark this article:
  22. Scott Adams
    It sounds like you have a great doctor who is doing all of the right follow up work, which is actually pretty unusual, as many people here have shared complaints about the lack of follow up work they've received after being diagnosed. I think you should follow what your doctor recommends, unless you're concerned about getting an endoscopy again. I do know...
  23. Scott Adams
    Are you talking about whole cobs of corn, or the kernels, for example like you would get in with canned corn? In general this should not be something that you would have to worry about, as it should be naturally gluten-free. Here in the USA if there was a possibility of cross-contamination with wheat they would have to add an allergen warning in the...
  24. Scott Adams
    Welcome to the forum! Unfortunately your story sounds a lot like the follow up care that those with celiac disease here in the USA receive--which in many cases, including in my case, has been slim to none. Any follow up tests I received, for example I have gotten follow up blood tests to make sure that my tTG antibody levels went back to normal, have...
  25. Scott Adams
    Yes, and many people who have casein issues can often tolerate sheep's or goat's milk as an alternative, which I turned to for a couple of years after my diagnosis. Likewise I had to switch to duck instead of chicken eggs. After a couple of years gluten-free those additional intolerance issues faded away, although I still stick to duck eggs most of the time...
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