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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Yes, unfortunately there is not test yet for NCGS, even though around 10x more people have it than do celiac disease.
  2. Scott Adams
    It would be great if you can share your results here, including the reference ranges, as each lab is different. From what you've described, you have a positive blood test for celiac disease, and this could explain your low iron issue. It only takes one positive test to be diagnosed, but the normal procedure would be to schedule an endoscopy to confirm your...
  3. Scott Adams
    The intestinal lymphoma you are worried about is still rare, even among celiacs, and the good news is that research has shown that once you go gluten-free that risk drops to near normal after a few years. The articles on this are in this category: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/cancer-lymphoma-and-celiac...
  4. Scott Adams
    Yes, Franz...and here is their site: https://franzglutenfree.com/
  5. Scott Adams
    Yes, you have 2 very strong positive test results, and even if just one were positive it would indicate celiac disease: Gluten IgG: 10.6 (Standard range <2.0 mcg/mL) Tissue Transglutaminase (tTG) IgA: 19 (Standard range U/mL <4 No Antibody detected, > Or = 4 Antibody detected) It's possible that your doctor may want you to do...
  6. Scott Adams
    Welcome to the forum! We have a PhD who has written extensively about this topic for Celiac.com, and you can find her articles here: I think you are very lucky that they're willing to go out of their way for you, and seem to understand why it's necessary. I also know just how you feel, and probably every celiac does...most of the time you probably...
  7. Scott Adams
    Given everything you've described, and the fact that you're in another country for so long, it probably makes sense to just stay gluten-free. Since you were not eating gluten for a while before your celiac tests, it's likely your results would have been much higher than were recorded.
  8. Scott Adams
    It's probably a little late for this, but...
  9. Scott Adams
    During the time period after my diagnosis when I had a temporary cow’s milk intolerance, I could tolerate sheep’s and goat’s milk. I did not have an allergy to cow’s milk though.
  10. Scott Adams
    I doubt anyone could give you a single answer that would satisfy every recipe in the book, as I believe that each recipe would require its own approach with how to replace any main ingredient used in it. To me it sounds like you might need to get a different book that does not use nut flours as a basis, but I’m sure you could figure out a way to replace n...
  11. Scott Adams
    Is it possible that you’re getting small amounts of gluten contamination in your diet, perhaps if you eat outside your home, or via a medication or supplement?
  12. Scott Adams
    Possibly. Where do those fit who are just below the cut off on their antibody tests? They don't have celiac disease, but are having an autoimmune reaction to gluten...just not strong enough to call celiac disease.
  13. Scott Adams
    Welcome to the forum. Note that you do need to be eating gluten daily for 6-8 weeks before doing any blood tests for celiac disease, otherwise you may end up with false negative results.
  14. Scott Adams
    Here are some possible ideas that have helped those with gluten sensitivity who accidently eat gluten:
  15. Scott Adams
    I've never been to Estonia, but I did a quick Google search and there does appear to be some gluten-free options: https://www.findmeglutenfree.com/ee/tallinn
  16. Scott Adams
    I agree with your doctor and your symptoms sound very typical of celiac disease symptoms. Be sure to keep eating gluten daily until all of your testing is completed, otherwise you may end up with false negative results. Also many celiacs don’t have any symptoms so the fact that you do have classic symptoms definitely means you should get a blood screening f...
  17. Scott Adams
    Another thing to know is that ~10x more people have non-celiac gluten sensitivity than celiac disease, but there is still no test for NCGS.
  18. Scott Adams
    I don’t believe I’ve heard of a cheese that would test above 20ppm. I will see if I can find this one out of pure curiosity and use my last test on it if I can.
  19. Scott Adams
    I had two skin symptoms before I discovered that I had celiac disease, and one was blepharitis (eyelid inflammation and rash), which, after going gluten-free, would flare up if I got any cross-contamination, and dermatitis herpetiformis, which was only in two spot--inside by right ankle, and on the back of my right thumb. The strange thing about the DH was...
  20. Scott Adams
    A quick visit to their site and they do have "Gluten-Free" on their package, so they are safe: https://fishernuts.com/
  21. Scott Adams
    It could be related to celiac disease, and a quick search of our forum did show that several other people had this symptom: https://www.celiac.com/search/?q="protein in urine"&updated_after=any&sortby=relevancy Here are some summaries of kidney issues and celiac disease studies: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases...
  22. Scott Adams
    I've not seen any studies done on that question, but do know from years of reading posts here that it varies greatly from person to person, and those with DH seem to have the longest recovery times, even from very tiny amounts of gluten. For those with gastro symptoms recovery seems to take days. For those with neurological or DH symptoms it can take weeks...
  23. Scott Adams
    It would be interesting to run a gluten test on it...I'm nearly out of test capsules for my Nima Sensor, so I hope the new company gets them going again.
  24. Scott Adams
    I agree with @trents and your initial diagnosis, if correct, really meant that you should have been gluten-free for life. At this point the important thing is to keep eating gluten daily until all of your testing is finished, because going gluten-free before any tests may make the results false-negative.
  25. Scott Adams
    Vitamin and mineral deficiencies are very common, especially in those who are newly diagnosed. Are you taking supplements that include a B Complex, as well as D? Have you had your levels re-checked?
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