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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Really high tissue transglutaminase
Scott Adams replied to StephD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please let us know how things turn out, and good luck! -
Gluten Free Cannabis Edibles
Scott Adams replied to OnTheBay's topic in Gluten-Free Foods, Products, Shopping & Medications
I do not believe that cannabis edible products are excluded from FDA regulations, including using the term gluten-free on their packaging. -
Gluten Free Cannabis Edibles
Scott Adams replied to OnTheBay's topic in Gluten-Free Foods, Products, Shopping & Medications
I believe that the important thing is that they say "gluten-free" on the packaging, which should mean that they are safe for celiacs. -
Gluten-Free Sausage Balls
Scott Adams replied to Ginger38's topic in Gluten-Free Recipes & Cooking Tips
I've not, but look for comments below from those who have. -
Really high tissue transglutaminase
Scott Adams replied to StephD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
PS - This study is also important, and we have a summary about it that will be on our site on Monday: http://dx.doi.org/10.1136/archdischild-2021-322000 This indicated that CD can be diagnosed in children at 5x levels... -
Gluten-Free Sausage Balls
Scott Adams replied to Ginger38's topic in Gluten-Free Recipes & Cooking Tips
We do have some recipes for gluten-free biscuits in this category: /celiac-disease/gluten-free-recipes/gluten-free-recipes-biscuits-rolls-amp-buns/ -
Really high tissue transglutaminase
Scott Adams replied to StephD's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please share this study with your doctor to see if a biopsy is necessary: -
My path to self diagnosis, and the big mistake I made.
Scott Adams replied to AuroraLake's topic in Dermatitis Herpetiformis
Welcome to the forum! It is really sad that your doctors are so ignorant about DH and celiac disease, as it is one of the most common autoimmune diseases on Earth...at least 1% of people have it, and around 10% have non-celiac gluten sensitivity (no tests are available yet for NCGS). In any case, it sounds to me like you've found the culprit even... -
Welcome to the forum, and I'm sorry to hear about your DH symptoms. How well are you doing on your gluten-free diet? With DH, it is extremely important to eliminate 100% of gluten. The article below may help you with that. Also, there are lotions available with up to 5% lidocaine, at least in the USA, which could also help.
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Newbie
Scott Adams replied to huffalynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with @trents and would discontinue any diet plan that could not guarantee that their food is gluten-free. -
Chocolate issues???
Scott Adams replied to Lboisvert's topic in Gluten-Free Foods, Products, Shopping & Medications
Have you considered soy intolerance or an intolerance to another ingredient? -
I believe that the laws in Australia are even stricter than the USA for using the claim "gluten-free" on product labels, but is it possible that their beans are causing you gastric issues, as they can with many people, celiac or not? Also, it might be good to call the company directly to ask them about whether or not their products could be contaminated...
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GI Revive Powder
Scott Adams replied to emilyisglutenfree's topic in Gluten-Free Foods, Products, Shopping & Medications
A quick look at the product on Amazon indicates that it is gluten-free. I looked at the ingredients and there are no red flags. According to the makers it is: -
Welcome to the forum! For more celiacs supplementation is necessary for their recovery. A good multivitamin with minerals that includes a B-complex, D3, calcium, magnesium, etc. would likely be a good starting point. Your joint issues could certainly be related to celiac disease, but there is a chance that they are a separate condition as well, so be...
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Your initial tests on 1-21-21 definitely indicate that you have celiac disease. Looking at the 2nd test results, it is possible that you're getting small amounts of contamination often enough that you're hindering your recovery. I agree with @trents and you should eliminate oats as well. This article may be helpful:
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Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
I just want to mention that potassium can lower you blood pressure, and I believe that high levels over a long period of time can also cause kidney issues. The blood pressure med I take include potassium, and because I take it my doctor gives me a regular blood test to monitor my kidney function. -
Let us know how it turns out. Also, keep in mind that there is also a condition called non-celiac gluten sensitivity, which may be up to 10x more common than celiac disease, yet there are no tests for it at this point. In other words, if you get negative results but still have symptoms, you may still want to try out a gluten-free diet for a few weeks to see...
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Intense cravings and identity struggles after diagnosis
Scott Adams replied to celioops's topic in Coping with Celiac Disease
I also want to add that the condiments you crave are mostly gluten-free, or there are gluten-free versions of each of them, so you may not have to give them up. -
Your sensitivity level can change over time. Some celiacs report getting super sensitive after quitting gluten, and others, like myself, get less sensitive after they have fully healed their guts. It varies greatly, but this would not be a good indicator of whether or not you have celiac disease. Your initial tests would be the best indicator for that, and...
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Even one positive blood test is enough to mean that you likely do have celiac disease, but with two, the odds are very high indeed. I believe it is a good idea to go gluten-free, and you should also consider asking your first degree relatives to also get tested. Have you considered genetic testing to see if you carry any of the known celiac genetic markers...
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Possible celiac disease diagnoses
Scott Adams replied to Courts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, there should be no further testing required at this point, and starting the diet which should help relieve your symptoms would be even further confirmation of a diagnosis. If you are concerned at all about starting the diet too early, perhaps send an email or message to your doctors to let them know that you plan to do this. -
Unfortunately if you've been gluten-free for that long it would be best to restart eating gluten again daily for at least 6 weeks, then get tested, but that is only if you require a formal diagnosis to stay on a gluten-free diet. If you feel like the diet is working, and your many symptoms are improving, it is not required to get a confirmation. Also, you...
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Different celiac disease Allergy And Alcohol Reactions?
Scott Adams replied to David's topic in Coping with Celiac Disease
The liquor store guy probably means well, but likely would not be the best source for info on this. Here is an article we did recently on Absolut: