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ShayFL's Achievements
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Hi!
Response to the diet is the only 100% accurate way to know.
The Celiac panel usually consists of antibodies to gluten and gliadin and your overall IgA antibody level. If they only test IgA antibodies and your total IgA come in deficient, then will need to retest for IgG antibodies.
Post your results when you get them. Ask your doctor for a copy of the labs. We will need to now the reference ranges as well.
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Light olive oil works well. It is ultra refined and does not have the strong taste of regular olive oil.
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Nuts are VERY hard to digest. You could make almond milk and hazelnut milk which is easy to digest and a good source of nutrition. Raw almonds/hazelnuts must be soaked overnight to get rid of the enzyme inhibitors....pureed with water in a blender and strained.
You want to avoid all grains/legumes and too much fiber. Hard to digest.
Try steaming your veggies rather than eating them raw.
No fried/greasy foods at all.
Take digestive enzymes with every meal.
Dont drink too much water with a meal.
Eat 6 small meals a day and avoid large meals at all costs.
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Scratch Teff...it is a grass too.
So you have buckwheat and quinoa for grains and all those yummy tubers to eat.
Yucca is also good with garlic and butter. Very carby.
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Hi Garth and welcome!
I did some research for you (but you will probably wish that I hadnt). There are fruits that cross-react with grasses that can cause symptoms in people allergic to grass pollens. Here they are:
Grass Fruits
melon, watermelon, tomato, orange, kiwi
And this information will be hardest for you to digest:
Food production
Agricultural grasses grown for their edible seeds are called cereals. Three cereals
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I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......
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I was going to suggest hazelnuts. But if it is ALL tree nuts...you could try corn meal. But I would soak the corn meal for 30 minutes prior to using. I am thinking this in my mind as I do when I experiment all of the time with baking. I am not saying it would work, but if he tolerates corn, this is what I would try.
OR you could buy hulled hemp seeds and give em a quick whirl in the coffee grinder or food processor. This would give the same consistency.
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Of course, there's always consequences. I know she doesn't live with you so it's hard, but maybe there's some sort of support you can take away - like an allowance or her clothes budget or something. Hard to monitor, and it's still ultimately her decision so I don't know.
I think this would backfire big time!! Better to let her learn about life the hard way. We do our children no favors by forcing them to see things our way. It never works and all it will lead to is resentment.
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I agree with Jestgar!!
I made chocolate chip cookies today and my daughter ate one and said "Mom are you sure these are gluten free?" Well of course they are!! You really cannot tell a difference. Especially if you can still use real butter and real sugar. I dont eat those...so the cookies I made today was just for my DH and DD. On a scale of 1 to 10 on my desire to eat one (10 being strong desire)...I was about at a 3. I continue to be surprised at just how little I want junk anymore. I am eating whole foods now and loving them. Fruits taste so sweet now.
Anyway, I would bake gluten-free of whatever you normally bake and let em try to figure it out.......
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I had appendectomy when I was 13. It had actually burst and I needed exploratory surgery to make sure my organs were all o.k. I also got peritonitis. Anyway....around 18 I started having horrible gas/bloating/pain all of the time. Especially when going to the bathroom. Gas pains literally left me weak and unable to walk sometimes...covered in cold sweats.
By 22 I had had enough!! They did a laparoscopy and found I had just as you have....adhesions EVERYWHERE like a woven basket my doctor said (it was from the appendix ordeal). Well they cleaned it all up and I have not had that kind of problem since.
You might see if they can "clean" you up too.
I am mostly neuro symptoms, but after going gluten-free, my BM's are down to 2-3 a day from 5-6 and I hardly ever have gas anymore. I will get bloated and gassy if I eat TOO MUCH fruit. So I am limiting the fruit to 2 servings a day. Mostly berries, but I love peaches too. The occasional banana/kiwi/cherries. But like I said...I will bloat up if I overdo the fruit.
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I just need to find he rice paper!!
She could make pasta salad (gluten-free pasta of course) with veggies, meat and dressing. Then no need to heat.
I am not sure if she is uncomfortable storing things in the company fridge or actually heating things up.
Does she want something she can keep at her desk so as not to use the company fridge?
If so, a good quality lunch box is in order. And she can use ice packs to keep her spring rolls or pasta salad cold.
Tuna, Egg and chicken salads are another good option. Mix em up and pack lettuce leaves and veggies to eat with them.
Fruit!!
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It could be gluten or Applebees. A few years ago I got extremely sick (food poisoning) from Applebees. So bad, that I have never gone back. Gluten doesnt effect me that way, so I know it was bad food.
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If it were me, I would go off Vinegar for about a week and then test it with vinegar on a salad or something. But make sure no gluten/dairy/carmel coloring with the same meal. Then you will know for sure.
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I usually just do stuff and see how it turns out. Rarely is something bad and has to be thrown out. Sometimes it comes out ok and other times a "great" find was made.
If you reduce the sugar, I would put in equal amounts of flour to keep the texture right.
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I see we were looking on the same old threads....It appears that some do. So you would need to ask the restaurant or make your own at home. Of course the wrap is wheat (gluten) and is a no no.
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B's girl...give him coconut milk and coconut fat. Very healthy for him.
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I have learned that the only thing I can control is what I buy at the store and stock my house with. I cannot control what my daughter (12) eats when she is at school or with friends. I have taught her strong principles about eating healthy and she eats healthy at home.
She will make her own way and learn. For instance every year my daughter's school has a Christmas dance. 2006 she got sick and had a lousy time because she ate the food and drank the soda there (we dont buy soda at home). So this year when I picked her up she said she had a great time and that she knew to only drink water and not eat or drink the junk!! Made me feel proud that she made her own good decision without my help.
Of course I never want her to be hurt or sick, but allowing her the freedom to choose (and pay consequences if that is the case) is what make her become her own person. She is not "my person". God has just blessed me with the opportunity to love her and be loved in return.
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Since your son has diabetes, you need to be careful with processed gluten-free foods, they tend to be very high glycemic and will shoot the blood sugar right up. They lack fiber which is part of the problem.
I know you have your hands full with a 4 yo and a 9 mo baby, but if you can experiment with some high fiber bread baking, this would help. There are tons of recipes online. Choose brown rice over white. If you are going to use potatoes research has determined they are best eaten cold or with vinegar (like potato salad) for diabetics. Reduces the blood sugar spike.
Emphasize high fiber fruits for dessert. Nuts are great for diabetics and nut butters are much easier to digest (almond, hazelnut, etc.)
Make sure he stays hydrated which helps with blood sugar.
And he should be on a good gluten-free multi-vit (age appropriate).
We are here when you need us!
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Pos blood and biopsy is the gold standard Dx.
You may not have nasty symptoms to deal with (be thankful), but what you are doing for yourself is preventing cancers and auto-immune diseases that are associated with Celiac.
You can expect to live well into your 80's or MORE without these extra cancers and diseases.
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It is easier and cheaper if everyone goes gluten-free if you stick to basic foods and do not rely on processed foods (breads, cookies, etc.).
My DD and DH are not gluten free. But my house is a gluten-free zone. I already had a fridge/freezer in the garage and now there is a very small microwave out there. The few gluten foods that they want are kept out there and eaten outside. None of my food is out there except huge sealed bags of nuts.
I just stock my pantry with gluten-free foods that I know they like. My daughter who is 12 really loves to make her own sushi. So I keep those things in stock for her including little cans of salmon, nori, etc. They both eat oatmeal for breakfast or eggs with veggies. Fruits and nuts are another inexpensive gluten-free breakfast/snack food I keep well stocked.
I keep par-boiled brown rice handy, cans of beans, cans of meat. We discovered a locally made plantain chip that is gluten-free and they are cheap.
I do some baking with gluten-free flours and such, but it isnt necessary.
Corn tortillas will come in handy too for making sandwiches and wraps.
It does not have to be expensive.
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Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.
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We are happy to help you out. Just let us know what you need.
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That's right. My D went away with gluten-free, but learned that xylitol gives me D. So not gluten related at all as the xylitol is a gluten free product. I checked. Ditto for the gluten free gum with xylitol. Even small amounts give me D.
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A good large Thermos can go a long way. Heat at home and put in Thermos so it is still warm at lunchtime.
Gastroparesis And Raynaud's Syndrome
in Related Issues & Disorders
Posted
The Gastroparesis is really a nerve issue. Any supplement that helps the nerves can help. CaEP is a good one (a form of calcium) and Thiamine. If you can find liquid supplements that may be best for now.
Your doctor can inject you with a lot of th B vitamins (or find a holistic doctor who will). This bypasses the digestive process (which you are impaired right now). They can also give you magnesium and others with an IV.
This might just give your body the push it needs to heal.