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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    EXTREMELY unlikely. That "shortened villi" and positive blood work is a POSITIVE even if your consultant doesnt think so. And you have a Sister with confirmed Celiac. Almost any doctor here in the U.S. would dx you with Celiac based on those 3 factors alone. Have you had a genetic test performed? Also, your B12 is still quite low. If you Google B...
  2. ShayFL
    That is great news!! But I must admit I got really excited when I saw "Grainless" and then was disappointed because they do use grains (rice). It is a bit of a deceptive name, though their cause is AWESOME!
  3. ShayFL
    Im in the last camp also. I have not had the FLU since I was a kid. I dont believe for one minute that our immune systems forget. True, you will get a different strain of influenza, but the body "remembers" what needs to be done. Vaccines arent natural and not only do they contain mercury and other chemicals, they also have constituents of "egg" which...
  4. ShayFL
    Get a copy of your Thyroid labwork and make sure they tested TSH (3rd generation), Free T4, Free T3 and BOTH antibodies. If they didnt test these you didnt get proper evaluation. And even if they did, many of us (including me) were told we were "normal" for years (me 12 years) when in fact I was very hypothyroid. Finally got a new doctor that used the...
  5. ShayFL
    Iron is one of the leading causes of overdose in children. They dont need very much. I highly recommend getting him tested. They can do a simple pin prick test or a blood draw.
  6. ShayFL
    Celiac and Hypothyroid can both lower the Ferritin dramatically. So can heavy periods, surgery and and bleeding ulcers.
  7. ShayFL
    But you'll have a hard time getting it up with those pills. They are HARD to digest. You can ask your Doc. for intravenous if he wants to get it up fast. Otherwise, you will be taking those pills for A LONG time and they are an irritant. Google "iron supplements" and learn about them. The ones I have mentioned arent costly and are better...
  8. ShayFL
    Consider the SCD Specific Carbohydrate Diet as it is very healthy and supplies much needed fiber which your current diet is lacking. You get easy to absorb carbs that wont feed the bad bacteria in your gut plus it is naturally gluten-free. www.pecanbread.com This is a good place to learn about it. It talks a lot about Autism, but if you buy the book...
  9. ShayFL
    THE ABOVE POST IS SPAM!!! O.k. you are on one of the hardest to absorb and digest Iron tabs. Floridix Iron (liquid) gluten-free formula or Solgar's Gentle Iron......no upset tummy and absorbs very well.
  10. ShayFL
    I though you had thyroid labs for me to look at. Cuz you mentioned being hypothyroid. Are your meds gluten-free? Did you check? Are you Diabetic? GP is associated with Diabetes. And Diabetes is associated with Celiac. This is a common triad.
  11. ShayFL
    I think it is fine to "ready" yourself, get through Thanksgiving and then take those 2 weeks to get used to all of the effort the diet takes. There are no real rules with regard to timing. It is up to you how you want to proceed. This is th model I use. So far I have been happy with it. And it makes "serving sizes". http://www.(Company Name Removed...
  12. ShayFL
    What thyroid med are you on? Did you call to find out if it is gluten-free? Armour and Synthroid are gluten-free. Generics might not be. Post your labs. Let us look. Thyroid is my bag.
  13. ShayFL
    Welcome to the boards!! Many of us have been in your shoes. I want to address the food/money issue. If you are accustomed to eating mostly processed foods, it will be a lot harder for you to adjust. However, eating gluten-free does not have to be more expensive than not. Im actually saving money because I dont eat out anymore. Plain meats...
  14. ShayFL
    A mother's instincts probably have more value than a medical degree. Yes, you can decide to take your daughter's health into your own hands. BUT and this a big BUT, by bypassing the biopsy, you may not get an official diagnosis. And at some point when your daughter is perfectly healthy, some doctor will question the diagnosis because it was only bloodwork...
  15. ShayFL
    Read the instructions, most test like that have a "window" of time from which you can read results. Any results out of that time frame are invalid. I wouldnt rely on a home test alone. If you are truly Celiac and take that test and it says NEG, you could be doing yourself great harm by continuing to eat gluten. Please go to a doctor, discuss your...
  16. ShayFL
    Try either Floridix iron (liquid) they make a gluten-free bottle and it says it on the label or Solgar's Gentle iron. Both are very absorbable and easy on the body.
  17. ShayFL
    I would nix the dairy too for now so the tips of her villi can heal fast. She will feel better sooner. Smoothies are a great idea and if she refuses make popsickles with them. I know it is cold now and popsickles might not be a big hit. But you wont have to waste the fruits this way. You can just lightly thaw and blend in the blender again. You...
  18. ShayFL
    No test is 100%. How old is your daughter? Under 6 it would be VERY unlikely to be a false POS. Also, if you are going to have the endoscopy SHE MUST KEEP EATING GLUTEN!! DO NOT take her off of gluten. Feed her her normal diet until the biopsy is complete. You can go gluten-free right after the procedure. By taking her off of gluten now, the intestines...
  19. ShayFL
    I should be able to report back by Saturday night.
  20. ShayFL
    I suppose if you can tolerate eggs and eat the SCD yogurt, you could manage it. After the introductionary phases, certain beans can be added in. It would be doable, but a lot less variety.
  21. ShayFL
    You can get B12 at any healthfood store. I like Jarrow 5000 mcg sublinguals. You want to dissolve it under your tongue so it is absorbed directly into he bloodstream. It is non-toxic. You can take mega doses and whatever your body doesnt need gets removed into your urine.
  22. ShayFL
    Being a vegetarian, you will want some expert guidance. A health professional or buy a good book: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/s/ref=nb_ss_gw?url=s...p;x=14&y=26 I am on SCD, but you arent eating meat, so that would be tough.
  23. ShayFL
    If only we could refuse to pay for crappy service. So sorry this happened to you. I got crappy service from an ENT once. He is an "expert" and "world renouned" but he treated me poorly. I was paying out of pocket.....nearly 700.00. This was 12 years ago and I didnt have a job. So I wrote him an emotional letter telling him that he should be ashamed...
  24. ShayFL
    Do you share their pots and pans? Their wooden spoons? Their cutting boards? Is any form of wheat flour EVER used in the kitchen? That fine powder gets everywhere and you cannot clean it up. It can settle on dishes, dish towels, cups, strainers for dishes, countertops....it is an ultra fine powder and you can even breath it through your nose or mouth...
  25. ShayFL
    Kimis be gentle with your body. It got hurt real bad and you trained it to eat only one meal a day. So be patient with it while it heals and you will have to retrain it to eat at other times. Start simply by eating a small piece of fruit for breakfast for instance. Keep your evening meal as usual. Once this sits fine, try adding a little snack at lunch...
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