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ShayFL

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Latest Celiac Disease News & Research:

Everything posted by ShayFL

  1. ShayFL
    You may simply not be eating enough calories. Try avacado with salads or as a snack. Nut butters on rice cakes. Maybe have a simple breakfast of fruit/protein smoothie. OR the nut butter/rice cake breakfast. Just a little something. Lunch Dinner PLUS 2 snacks. That should help a lot. Use a nice olive oil salad dressing and throw on some olives if...
  2. ShayFL
    That is pretty fast! What are you eating? Let us help you figure out how to increase the energy intake of your food.
  3. ShayFL
    Mine were never super bad, but I noticed in the last few years them getting darker. Now on Floravital and have been taking Iron for 6 months and they have faded considerably. Of course I went gluten-free 6 months ago too. My gut says it is the Iron since I was low prior to gluten-free.
  4. ShayFL
    For those wanting a commercial yogurt starter with only Acidophilus and no fillers. Just whole milk and active acidophilus. I found Erivan yogurt today at Whole Foods: Open Original Shared Link
  5. ShayFL
    It may be hard to get all traces of gluten out of that bread machine and pasta maker if used even once before. Clean...clean...clean and clean again. Maybe you will get lucky. Gluten is insidious......So if you make bread or pasta with them and get symptoms of "glutening" dont use them again.
  6. ShayFL
    Unfortunately a biopsy cannot tell what specific intolerances have caused damage. Other foods can rarely cause flattened villi, but most often a food culprit is gluten. While they are in there, they often look for other things. Ulcers, damage to the esophagus, etc. Enterolab does a stool test for intolerances: Gluten, Dairy, Egg, Soy and Yeast. They...
  7. ShayFL
    I think you should work on where you might be getting the gluten first. All efforts will fail until you get it out of your diet. I am just shy of 5'4 and was down to 113 through all of this. I used to be in the 130's and I looked healthy. My D cups went to a low C. Completely deflated. I am now up to 120ish. And my boobs are back. But I am 100%...
  8. ShayFL
    Welcome to the board! First, there is no need to buy expensive ready made gluten-free items. There is an abundance of naturally gluten-free foods at every grocery store. PLUS he can heal faster and feel better eating natural foods. Save the highly processed gluten-free foods for later when he is all healed. All meats (without marinade or rubs, etc...
  9. ShayFL
    I've used Enterolab and I believe it is helpful. However, the blood already shows Celiac, so it would be a waste of money for the stool. However, a genetic test is a good idea. It DOES NOT dx Celiac. Just to be clear. But if your daughter has Celiac gene(s), this is just one more piece to the puzzle to keep you firm in your decision to go and stay gluten...
  10. ShayFL
    I use this one: Open Original Shared Link
  11. ShayFL
    No she was talking about the POS on your list. Things that shouldnt have gluten but do (like the paper plates). Based on my test results I personally would have little faith in your NEG list. Cuz according to my experiment, there would need to be a fair amount of gluten in a product for it to come up POS. So those could be avoided. No harm in that. ...
  12. ShayFL
    Maybe your house rule should be that only family members are allowed on your computer. This will leave no doubt as to the culprit if it happens again. Pre-teens and teens are naturally curious about sex and the Internet has made access to the most vile of fetishes available to anyone. My daughter will be 13 in January. She has her own computer. It...
  13. ShayFL
    I would like to see Mike make available the "black list" of foods as promised.
  14. ShayFL
    The only one that tested POS for gluten was WHOLE WHEAT PASTA. Was there any doubt there? No....I would only be impressed with it detecting "trace" amounts or "smaller" amounts like one would expect in soy sauce. So just like the company claims, if a product tests NEG then you cannot assume it is safe for you to eat (Celiac). You could use Mike...
  15. ShayFL
    I just sent this to Kikkoman. Their website really makes a big deal about how they answer consumers questions quickly and accurately. They also make a BIG DEAL about the ingredients they use and proper labeling for allergens. The have a big write up about their quality control for a consistent product. So here is what I sent them: Hello, I am Celiac...
  16. ShayFL
    If I didnt get VERTIGO and MIGRAINE when I eat gluten, I would just make a stir-fry with the Kikkoman and see if I got D. But there is never a "good" time to have VERTIGO for 3 - 4 days. Everyone makes up their own minds. I have said this repeatedly. This is just my experiment and my observations. And my OPINION is a waste of money. I PERSONALLY WILL...
  17. ShayFL
    How long gluten-free? You might still be in the withdrawal phase. Lots of strange things can happen.
  18. ShayFL
    Did the restaurant use "fresh" water to boil your pasta? Sounds like a dumb question, but it isnt. I ate at a restaurant where the manager is Celiac. The server seemed well versed. I got glutened. They boiled my asparagus in pasta water. Doh!! You gotta ask......
  19. ShayFL
    Unfortunately it isnt so cut and dry. There is no number on the bloods that can correspond directly with damage. Some have high numbers and no damage on the biopsy. Some have low numbers and completely flattened villi. You do need to ask yourself a question though. Since biopsy is GOLD STANDARD diagnosis, will you keep her on the diet for life if you...
  20. ShayFL
    Down to 10 ppm. I used the same tests Mike uses.
  21. ShayFL
    Yes, I plan on copying and pasting my post here directly to them. They said on the phone that the items I was testing were suitable. I made sure. I am certain they will come back and say that the amount of gluten in the soy sauce must be below 10 ppm. What else could they say? But I personally have gotten sick from soy sauce (vertigo and D). So...
  22. ShayFL
    Wow!
  23. ShayFL
    I use if off and on when I feel the need. I am drinking it right now. I have never heard that aloe is dangerous. If you eat/drink the latex and the bitter alkyloids then yeah, you can get into some trouble. George's removes those irritants. Incidentally a part of aloe called betamannon cured me of pre-cancerous cervical cells. Aloe is my friend...
  24. ShayFL
    I just use Ivory bar soap.
  25. ShayFL
    Some Celiacs react to casein (milk protein) the same as gluten. Dairy may be why you have not healed and now the tips are damaged enough for you to have symptoms when you eat dairy. I would suggest dropping the dairy at least for 3 or 4 months and see if you dont feel better and start gaining weight. I am eating baked goods made from almond meal (SCD...
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