-
Posts
2,252 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by ShayFL
-
ARCHIVED Testing Results
ShayFL replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
RESULTS ARE IN!! Read EVERYTHING I write here BEFORE you make up your own mind. Bottom Line For Me: A Waste of Money Why? Both food items that were known gluten-free tested NEG as expected. Whole Wheat pasta tested High POS as expected. BUT the Wheat based Soy Sauce tested NEG. The WHOLE point of these tests is to detect minute amounts of gluten... -
ARCHIVED Testing Results
ShayFL replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
Lisa, You would need to call Elisa and ask them. They just said that the test was not designed for non-food items. That doesnt mean that it wouldnt work, it just means that they cannot vouch for the validity of testing on non-food items. Im just eating lunch now, and should be able to test within a few hours and have the results. I will take picture... -
ARCHIVED Help - Still High Numbers - Contamination!
ShayFL replied to ashtonjames's topic in Parents, Friends and Loved Ones of Celiacs
I agree with Fiddle-Faddle. He is getting it somewhere and school is a likely source. And if you keep gluten foods in the house, he will get to them. He needs 100% gluten-free for a few month to "withdraw" from gluten. Yes, it is like a drug and there is withdrawal. He might be edgy and moody during this time. Metabolites of gluten fit into our opium... -
ARCHIVED Help With Diagnosing Thyroid Issues With Celiac!
ShayFL replied to Paeldi's topic in Related Issues & Disorders
Sadly, both Endo's in Tampa failed me. It took a regular M.D. to properly diagnose me and treat me. I hope you have better ones in your areas. But if not, dont give up!! A good M.D. can be a godsend. -
ARCHIVED Extreme Underweight Issues
ShayFL replied to Ms. Skinny Chic's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been on the SCD (Specific Carbohydrate Diet) and have gained weight nicely. Gluten Free with lots of healthy fats. Casein is not gluten, just so you know. You may have a problem with casein, but it is not gluten. -
Could be food sensitivities or blood sugar issues. I used to get "coma" feelings. Mine was always after eating sugar/fast carbs. Carmelized onions = sugar. That's why they taste so yummy!
-
ARCHIVED Adrenals Back From Lab
ShayFL replied to BRUMI1968's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have used saliva exclusively for my adrenals. Years ago, I was a mess and the saliva reflected this. I knew my adrenals had healed because I wasnt "jumpy" anymore and I could handle stress again. My doctor who is an M.D. believes in the saliva and she is the one who has me do them now and again to monitor. And I had them tested before I started Armour... -
It was an Historic race from the beginning to the end. It makes me proud to know that my daughter can run for president if she wants to. There is no longer a glass ceiling.
-
ARCHIVED Iron
ShayFL replied to num1habsfan's topic in Gluten-Free Foods, Products, Shopping & Medications
I took the Solgar Gentle Iron for 3 months (3 pills a day 75 mg Iron) and my Ferritin went from 10 was the lowest to 18. So based on what you are telling me about the Floravit, I can hope for much better results this time. I am taking twice a day as well. Thank you. That is my Gracie...our first dog that is a "Momma's Girl". She is a rescue. -
ARCHIVED Testing Results
ShayFL replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
But Lisa only that one time, that one test, on that one package with that one lot number was safe. Any new bag/jar/bottle would need to be tested again. -
ARCHIVED Testing Results
ShayFL replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
Im going to test mine tomorrow after my book club meeting. I will have free time then with no distractions. If they are accurate, then I could see them being useful for people who are very sensitive and eat packaged foods. But you would have to test each new bag/jar/bottle if it has a different lot number. If you buy a gallon of orange juice a... -
ARCHIVED Iron
ShayFL replied to num1habsfan's topic in Gluten-Free Foods, Products, Shopping & Medications
I had heard the Floravit was very good at getting the Ferritin up, so I switched about 2 weeks ago to it from the Solgar Gentle Iron. So glad to hear how fast it is working for you. It makes me hopeful!! Cant wait to retest next month. -
I recommend that you look for a local Celiac support group. Mine is great!! About 12 people or so show up every two months. We discuss all sorts of things and the "old pros" guide us newbies. Which restaurants are safe, where to get certain foods. The leader brings samples of foods she gets from manufacturers. It is really a great thing and you can...
-
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
On the rare occasion I ask Hubby to cook, he asks, "So what are you aloud to eat this week?" He has been really good with me. I cannot complain. He has also learned that when I am just blowing steam, that I dont expect anything from him but a sounding board and a hug if I need it. He has changed A LOT since I met him. He has compromised and grown... -
I wash my hands a lot and I have trained myself not to touch my face except at night when I am washing up. If I have a nose itch, I get a tissue or just rub the outside with the back of my hand. Ditto for the eyes. Just rub with the back of my hand if need be. The rare times I fell a little tingle, I drink some Emergen-C, then I start spraying colloidal...
-
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
The diet is actually quite good once you can eat most of the legal foods. It has forced me to be more creative and I have come up with some pretty delicious dishes. But it is certainly more fun with the baked yummies. -
ARCHIVED My Mom Was Just Told She Has Celiac.. I Need All The Info I Can Find
ShayFL replied to Katie7249's topic in Coping with Celiac Disease
Now is the time for you to get tested. NOW. Do not go gluten-free until after you get tested or it can invalidate the tests. Make an appt. today for the bloodwork. Make your home gluten-free for Mom but keep eating gluten yourself until you can get tested. There are MANY symptoms to Celiac. I only listed a tiny few. There is also "silent Celiac... -
ARCHIVED My Mom Was Just Told She Has Celiac.. I Need All The Info I Can Find
ShayFL replied to Katie7249's topic in Coping with Celiac Disease
Celiac is for life. I know it is overwhelming right now, but you will get used to it. Eating gluten-free can be very healthy and you might want to consider it yourself. Have you been tested? Celiac is genetic. Some get the skin issue like your Mom and some get GI. And a smaller percentage just get neurological symptoms. Think of your own health history... -
ARCHIVED 3 Weeks Gluten Free Now I Feel Lousy
ShayFL replied to cat3883's topic in Coping with Celiac Disease
Yes it is. We all want healing to be on a continuous upward line. But the truth is that there are "ups" and "downs" along the way. I didnt start feeling good at all until about 6 weeks in. And for 3 or 4 weeks I felt like hell. I was starving all of the time, unable to sleep well and weird pains, bloating and some very strange looking things in my toilet... -
ARCHIVED Testing Results
ShayFL replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
All I am testing is the accuracy of the test strips. Nothing else. At 63.00 for 4 test strips (cost, shipping and FL sales tax), with the possibility of sometimes getting an invalid result, thus needing retesting, I could not afford to use these all of the time. Not to mention they are COMPLETELY impractical for public use (which is the only time I would... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
This diet is set up to heal food intolerances by healing the gut. Not true food allergies. If you are IgE allergic to eggs, you musnt ever eat them. Im not allergic to eggs. I have been tested by skin prick and ELISA and both were NEG. I have not noticed any side effects to eating the muffins. I think my stuffiness is due to seasonal allergies... -
ARCHIVED Could It Be Something Else ?
ShayFL replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
T4 should be at midrange or a little higher. T3 should be upper range and can actually be a little over (for some people to feel well). You are still low. To get a complete picture, you need: TSH (3rd generation) FREE T4 FREE T3 And BOTH antibodies for thyroid. Your Ferritin is decent. If below 50 some people have trouble taking thyroid meds... -
ARCHIVED Could It Be Something Else ?
ShayFL replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Think Thyroid! And you MUST get those thyroid antibodies tested. I was severely hypothyroid with neurological symptoms at a TSH of 2.8 and I was STILL hypo with a TSH of 1. I am now .08 and finally the last of the nero symptoms are gone. I always knew when I needed to raise my thyroid meds because my muscles would start twitching. Mostly in my legs... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
I tried to cut out the eggs for a week. But I caved yesterday. I made SCD pumpkin muffins. Let's face it, the diet is poo without some of those baked goods. -
ARCHIVED Flu Shots, Mercury, And Leaky Gut
ShayFL replied to frec's topic in Food Intolerance & Leaky Gut
My daughter has only had 1 ear infection and it was a doozy. So bad, that I GOT IT TOO!! We both had the most horrible ear infection. She was only 2. So we went to the doctor who Rx antibiotics for both of us. I asked him what would happen if we didnt take them. He said your body will fight it off and that will be the end of it. So I never filled that...