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Latest Celiac Disease News & Research:
Everything posted by cassP
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ARCHIVED Food Intolerance Question ?
cassP replied to glutenfreegirl's topic in Coping with Celiac Disease
ahhh, then u might want to look into helping your stomach with the acid problem... you could start with just a little Betaine HCI w/ Pepsin, and Digestive Enzymes. start with just 1 of the Betaine HCI, (you wanna proceed with caution- as these are almost identical to stomach acid. some people cannot tolerate the Betaine at all- so they are encouraged to... -
1st: you should still get your iron/ferritin checked. my Endo ran a CBC, said everything looked good- and no signs of Anemia... i asked my PCP for the test anyways- and my ferritin was below range- enough to be contributing to my palpitations & S.O.B. .... so just make sure to cross all your Ts.. 2nd- i HOPE you're right about the adrenals- as i...
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ARCHIVED Food Intolerance Question ?
cassP replied to glutenfreegirl's topic in Coping with Celiac Disease
i vote both. plus i bet there are even more reasons for additional food intolerance.... like SIBO, a recent H Pylori infection, LOW Stomach acid, etc... i recently learned this week that Hypothyroid patients tend to have LOW stomach acid- which makes perfect sense now- with all the problems with digestion my mother and i have had. and my Endo prescribed... -
H Pylori is a BIG deal- and may not simply go away with diet change and probiotics- in fact it mostly will not go away without intervention. im not so sure i would suggest for everyone to do Aloe Vera juice- it can be bad for some people.. anyways- usually western docs treat H Pylori with STRONG antibiotics for 6 weeks. sometimes 2 different kinds. its...
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ya, its ridiculous how bout things like iron & ferritin, vitamin D, B12, etc... oh and adrenals? have u had these things checked? ive been on the Stop the Thyroid Madness forums a lot - and learning a lot- but it's still so very complicated. apparently if all these things are off- then our thyroid symptoms can be a lot worse than they have to be...
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thanku everyone for your replies! Sue: i was concerned about the Celiac because it seems my digestive tract is RIDICULOUSLY SENSITIVE. i got glutened over 3 weeks ago ( im suspecting PF CHANGS)- and i am STILL recovering... also Sue- when u talk about changing your doses, and then doing T3 only for a short period of time- how did your doctor feel...
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yes- i too heard that around 20% of Celiacs get DH. i think getting a correct statistic on how many have Celiac, and how many have DH is so difficult- cause most people go undiagnosed- and then think about DH- most people have never heard of it, and many Dermatologists dont even know what it is- so it could be higher ?????
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ARCHIVED Hair Loss Worse After Starting Paleo Type Diet?
cassP replied to laura4669's topic in Food Intolerance & Leaky Gut
that is totally strange that it's happening with the paleo... maybe its a coincidence. your low ferritin can cause hair loss good luck!!! -
ps- i eat tomatoes, tomato paste, and bolognese ALL THE TIME, it had no effect on my DH in the past. i recently got the itch again on my stomach after what i believe was a glutening from PF CHANGS 3 weeks ago- and ive had a ton of citrus- it has not aggravated the DH at all. just my experience
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Low Dose Naltroxene ???? would like to know experienced input from members on here with Celiac, and maybe also Thyroid Disease. Hi, i am REALLY struggling right now- i have way too many debhilitating symptoms that often keep me secluded in my home i have Celiac and BOTH: Hashimoto's & Grave's. while the Armour is helping with many of my hypo symptoms...
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hey skylark- yes- i have just learned about the fluoride connection since being diagnosed last fall. its pretty awful. but i was under the assumption that water fluoridation was completely nationwide, no???? i have heard recently that NY is taking steps to no longer fluoridate the water, and i saw something recently in florida- that they want to not remove...
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ARCHIVED Hair Loss Worse After Starting Paleo Type Diet?
cassP replied to laura4669's topic in Food Intolerance & Leaky Gut
i dont know of any correlation... but have you had your thyroid checked??? are you already diagnosed with Celiac? or any autoimmune Thyroid condition? or LOW IRON or LOW FERRITIN?? or a vitamin D or B12 deficiency??? all of these things could cause hair loss.... and once a deficiency is pronounced or an autoimmune disease has started to progress-> diet... -
ya- many of us can relate to the stronger reactions you're talking about. i think the immune system becomes more vigilant when you take it out... someone smarter than me on here wrote about a certain type of cell that the immune system starts making when we go gluten free- so the reactions will be more amped up. i honestly think without having the medical...
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ARCHIVED Please Help Me ! Undiagnosed. :(
cassP replied to Manonfire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
what about watermelon??? that is also really good for the prostate- comparable to tomatos i think- ALTHO tomato PASTE has the most lycopene. Wheat has a HUGE negative effect on the prostate- but also like you mentioned- the constipation. my brother had painful Prostatitis too- from constipation from medication... he had all kinds of tests to make sure his... -
i dont know... but i'll just share that eye problems seem to be common in Autoimmune Disease.. of course we know that MS, and Diabetes can affect the eyes. i dont know about Celiac, but i also have Hashimoto's Thyroiditis, and Grave's Hyperthyroid- BOTH can put pressure on the eyes- which i suffered a lot from before meds. GLUTEN also aggravates Hashi &...
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ARCHIVED Could Some Corn Intolerant People Help Me?
cassP replied to Newtoitall's topic in Food Intolerance & Leaky Gut
i am very much like "srall"... as in, it affects me similar to gluten, but goes away quicker- and i dont react to trace amounts like i would with gluten. my symptoms are intestinal cramping, pain, a little tachycardia and hbp, little itchy, a little bit nasal allergies (maybe i also have a little allergy??, but no hives) -
ARCHIVED New Celiac With Two Questions- Corn And Oatmeal
cassP replied to TexasJenn's topic in Coping with Celiac Disease
i know its really hard to eliminate more foods- i have my addictions- dairy, sugar, carbs.. but sometimes in the beginning- is when you need to be more strict- because you're so inflamed- then later you could add things back in- to see what the culprits are. the first month i went a little crazy with all the "gluten free" cookies, cereals, breads, etc, etc... -
sorry if i sound like a dumba$$... but even when i look at all the pictures- i honestly cannot tell you if what i had on my foot years ago was excema or psoraisis.. but it was BAD- i first had it on the inside of my foot at age 8. went away, came back in my 20s for OVER 5 YEARS!!!! it was disgusting- i wore socks ALL THE TIME.. and itched 24/7... i would...
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ARCHIVED New Celiac With Two Questions- Corn And Oatmeal
cassP replied to TexasJenn's topic in Coping with Celiac Disease
do NOT eat the oats-they're contaminated. as far as eating Certified Gluten Free Oats, and Corn- that will be for you to find out. technically, the glutinous protein in oats and corn is not the same as gliadin. the reality is- that even tho it is not the same gluten, a good percentage of Celiacs and those with Gluten Intolerance cannot tolerate one or... -
when u said the gluten free brownie bothered u- i immediately thought that gluten free flour would be the culprit- at least it is for me. i dont know what you used- but SO MANY of those gluten free starchy flours bother many of us!! sorghum, tapioca, potato, garbanzo bean, corn, etc... i can get away with small amounts sometimes- but many times- it almost...
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ARCHIVED I Guess It's Not Celiac?
cassP replied to beachbirdie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
agree with sawyer- without the ranges- we're kind of guessing. that being said- first off- most doctors only test for DQ2 and DQ8- so your negative HLA gene test doesnt necessarily mean anything- as there are people with Celiac and NonCeliac gluten intolerance without those 2 genes. your other numbers look negative to weak positive im GUESSING. your Iga... -
ARCHIVED I Need Chocolate!
cassP replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
i sneak Almond M&Ms into the movie ALL THE TIME.. cause i cant digest peanuts AT ALL- i can do regular m&Ms, but almonds are my favorite... i havent had a problem. i also sneak caffeine free dc w/splenda in with me, cause i cant do HFCS, Aspartame or unnceccesary caffeine... God help the movie theater employee that tries to tell me i cant bring my... -
thanku irish girl im very into health, but dont always eat how i preach... i have company in town again and we wanted pf changs- so i got it... so far so good... but i DO have to get back OFF the soy for the thyroid. anyways... i guess i could ask for a SIBO test- but im afraid of it being a fiasco ... i already have a few more battles before that...
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ARCHIVED Blood Type And Food Intolerances
cassP replied to Looking for answers's topic in Food Intolerance & Leaky Gut
you just have to find out what works for you REGARDLESS of what others say... as long as you're GLUTEN FREE, who cares which route u take to find out if you need additional changes to your diet. i dont FORCE the Bloodtype Diet down everyone's throat- i only share once in a blue moon if it might help. i cant tell you how many times i bite my tongue just so... -
ARCHIVED Help! With Celiac Panel Results
cassP replied to daisymae106's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
your TTG Iga is your TTG iga antibodies. your "sufficient" Iga is your "total Iga serum" (im assuming).