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cassP

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Everything posted by cassP

  1. cassP
    i totally feel for you. i live alone, so i can monitor the gluten free pretty well... i used to feel more bloated going home- untill i realized just how vigilant i had to be- my parents understood kind of what i needed to avoid- but they wouldnt realize how wheat was in almost everything- like even the "demi-glase" they would use to make the sauce for a steak...
  2. cassP
    i understand... it took me a good few months to really understand all the testing, and the dna, etc... i got 2 celiac blood panels few years ago- and never really understood them... and since most of my results were inconclusive & i didnt get the endoscopy- i still ate gluten on occasion... thinking i was just "gluten sensitive" the dna- or Genetic...
  3. cassP
    WHOA that is a long article, and i just read most of it. ummm... i think there is SOME truth within that article- but in it's entirety i think it is innaccurate. i definitely believe we have a lot more of CERTAIN kinds of diseases in our over industrialized & over medicated world compared to simpler less modern places. but it's not the main reason...
  4. cassP
    i never had growing pains..?? but on my 1st or 2nd day- my Quadriceps throb as much as my uterus does- it's the most annoying pain.. i take advil & hit my quads with my fist till it subsides. im guessing it has something to do with potassium??? idk really... i dont think it has anything to do with Celiac... BUTTTTTT i am 100% certain- that ANY menstrual...
  5. cassP
    hey- i was looking at your "signature"... you have Thallessemia??? minor or major?? im curious- i know it's linked to people from the mediterranean... but are Thallessemia genes also sometimes linked in with Celiac or other autoimmune genes??? im just wondering now... for example- i have celiac, my mom has Hashimoto's (and my mom and dad both have at least...
  6. cassP
    ahhhhh ok sorry, i can be oversensitive/paranoid sometimes... maybe too much brain damage from gluten
  7. cassP
    even if you're strictly gluten free- if you're still having a DH flare up- i would think that biopsy would be positive. but im not an expert on the DH. and i TOO would like to know how long it takes for the DH to go away after being gluten-free .... ive only been 100% gluten-free for over 2 months. i have what i think is DH right below my navel. my GI...
  8. cassP
    my calcium is powder in a capsule- maybe i should open it in my mouth???
  9. cassP
    like others have said on here- get a biopsy adjacent to your DH as soon as you can- a positive DH dx is a positive Celiac dx... then you'll never have to worry about going on any kind of gluten challenge for blood tests!! good luck with the rest dont worry yourself sick with the "people with DH have higher risks of lymphoma & cancer"... that...
  10. cassP
    the calcium helps shut the valve too??? oh i am definitely gonna start taking my calcium/mag at night again. THANKS ya- those pharmaceutical companies are wrecking our bodies Lord have mercy
  11. cassP
    i ordered mine thru Enterolab. people say its controversial & nondiagnostic. but knowing what my genes are really helped motivate me- and go back to my Gi... and now, im trying to get my family to get tested. so frustrating!! since i read about a certain diet i love and will not name here-> most of my family is so gluten lite that a blood test would...
  12. cassP
    YES!!! Broccoli Sprouts prevent the H.Pylori from reproducing and setting up camp
  13. cassP
    AHHH im very jealous- what kind of insurance do u have??
  14. cassP
    im sorry. i hope everything works out... and i hope he understands that everything will be fine. YES- it is a royal PAIN in the A to not get to eat whatever you want.. but it's not bad at all... much better than having something debilitating like Lupus or Ms, etc. its not surprising either- that he's not taking it well- i mean gluten gives me horrible...
  15. cassP
    oh we are very interested too- i love to see people's results... especially cause we all know so much about them- i hope your doctor ordered all the tests that should be done as many of them dont. depending on your blood results- you may not need a biopsy. it depends on what you need for yourself really. it's good to have your doc check for other problems...
  16. cassP
    ps- i also recently read that Melatonin can help strengthen that Esophageal Flap- so that it will stay shut and prevent Gerd... i dont know if thats true or not??? i just take it like 3 nights a week.
  17. cassP
    suck it up and live with it???? OY VEY.. these docs ...good LORD... 1st, if you want to post your blood test results- we would all help explain if they're incomplete or not... also- were you ingesting enough gluten before testing? unless you have an ulcer- antacids can do more harm than good. it messes up your digestion in your stomach- and then your...
  18. cassP
    i used to always feel BLOATED and gross after canned tuna in water, or canned tuna in vegtable broth (SOY always)... canned tuna in olive oil seemed to be ok for me. but ive now switched to canned salmon for sustainability & mercury reasons. at first it was hard, because it was more fishy. i actually did buy tuna recently cause i missed it.. and...
  19. cassP
    let me just add here from experience: stop taking prilosec!! i agree with the above posters- because i dont think prilosec would result in the aggressive watery "D"... BUT- i took Zantac for over 4 years DAILY... ended up with Hypochlorhydria.. (LOW stomach acid). my Alternative doc gave me a book to read about stomach acid- i try to preach whenever...
  20. cassP
    you said his blood test was positive. that's really all you and he need. HOWEVER, if he needs a biopsy to get motivated, or if you need it for health charts & records... then do it. i understand being scared... but as you know- it's a super super easy procedure and quick and painless. BUT at the same time- false negative biopsies occur too. i dont...
  21. cassP
    yes- i think you should print out what skylark posted AND also ask for the Igg tests on the Ttg, and antigliadin her Iga 55 or 52?? is LOW... this looks like the Total Iga Serum test. BUT- she's a child and i dont know the child ranges... for an adult- the range is 70-400. mine was a 57, and my Gi said that was "Iga Deficient" - which means if she...
  22. cassP
    I WANT TO OPEN ONE TOO!!!!! from what ive researched- it seems the government grants are only for nonprofit companies ??? but i'd love to hear some better info - i hope there's help somewhere
  23. cassP
    i understand the "poor me" thing totally. ive been craving gluten A LOT lately... yesterday at work, all i could think about was those "crispies" from Long John Silver!! when i was a kid, you could just buy a side of crispies (left over fried breading".... and ive been feeling so much better- that im starting to get that false sense of security- like maybe...
  24. cassP
    if you're not interested right now in an accurate celiac test... but you just wanna feel better & lessen your reflux before your run- then go gluten free for now- and probably dairy free, at least till you're done. i dont know all the running rules- but if you have to "Carb Up" for your training.... there are tons of other grains out there besides...
  25. cassP
    are you a celiac? or gluten intolerant? how long have you been gluten free? have you had your B12 levels checked?? alot of gluten intolerant people and celiacs get numbness/tingling in their hands &/or feet due to LOW levels of B12. my sis in law had a B12 level of 211 and she was dizzy and had the tingling in her hands and feet. ALSO-> Restless...
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