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nasalady

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Everything posted by nasalady

  1. nasalady
    Gemini...sorry about that. You agreed with the previous poster who seemed to be saying that medical research is just about trying to make excuses to prescribe more and more medication to make money for the drug companies, so I lumped the two of you together in my response. I was having a bad day yesterday. Anyway, yes it's true that I haven...
  2. nasalady
    I had negative results for both biopsy and blood work but my gastro said he had expected that because I was on high doses of prednisone and Imuran for my autoimmune hepatitis, and these drugs will also suppress the celiac autoantibodies and allow the villi to re-generate. He diagnosed me based on my response to the gluten-free diet, my family history of...
  3. nasalady
    Hi ratz, FYI, you should know that celiac disease is known to continue to cause brain damage even after the patient is gluten free! I've had lots of neuro symptoms that my neurologist believed were caused by celiac disease, so I've done a bit of reading on the subject. Here's the abstract of a medical article describing one type of celiac ataxia...
  4. nasalady
    If it's been as simple as all that for you, you're lucky. I've been gluten free for 11 months now and I feel like I've been run over by a truck. I'm in a wheelchair and am still being diagnosed with new autoimmune diseases at a rate of one per every few months. I'm seriously considering going on disability. I will never eat gluten again (and I've actually...
  5. nasalady
    Very interesting article, Gabby! I'm glad these researchers are digging into the detailed mechanisms of celiac disease to find out exactly how it manages to damage so many different systems in our bodies....thanks so much for posting it! JoAnn
  6. nasalady
    It may not be fair of me to post this here, just because I have SO many other things wrong with me besides celiac! But then again, I blame celiac for all of the other autoimmune diseases (see Open Original Shared Link, so why the heck not?? It's so disappointing because I was really beginning to feel better on the gluten free (now grain free) diet...
  7. nasalady
    People with DH frequently have negative intestinal biopsies. Most doctors feel that positive skin biopsies for DH plus positive bloodwork are sufficient. First, from the National Institute of Health (a government website - Open Original Shared Link Dermatitis herpetiformis (DH) is an intensely itchy, blistering skin rash that affects 15 to 25 percent...
  8. nasalady
    This is really interesting! The autoimmune diseases in my family come from my father's side. He was an alcoholic, and he had RA....he may well have had celiac too but we'll never know. We do know that celiac disease runs in the family, though. His father was an alcoholic too. I've often thought of alcoholism as the family curse....but now I wonder...
  9. nasalady
    I know....it's confusing! I was just answering a new post by a girl who's been diagnosed with Lyme, but she's had Hashi's for years, and she may have both celiac and Lyme. Which came first the chicken or the egg? Do you know of any current members of this board who've been diagnosed with Lyme?
  10. nasalady
    I concur with ravenwoodglass, you should double-check everything. I truly believed I was OK in the non-food department (I've been gluten free for nearly one year now)....until last week when my husband found that both my shampoo and conditioner had WHEAT in them! I absolutely do not know how I missed it but I did. I'm normally very careful; for example...
  11. nasalady
    Hi Tiff, First it was smart of you to realize that your body needs help fighting Lyme Disease; you need to be on antibiotics! I have not been diagnosed with Lyme disease, but you're definitely at the right place. I know of at least two (former) members of this board who were diagnosed with Lyme disease....it's funny, we were just "discussing" this on...
  12. nasalady
    Also... 7. Do you keep up with your field...i.e., the latest research findings in medical journals? 8. Do you believe that patients are human beings with the ability to read journal articles for themselves and UNDERSTAND them??
  13. nasalady
    Susan, that's called "meatza" in the low-carb community! There are a million variations but here's a good recipe: Open Original Shared Link Of course you have to omit the cheese or use rice cheese or whatever to make it cf. Cheers, JoAnn
  14. nasalady
    Hi Richard, There are many different types of psoriasis; one of the rarest is palmoplantar psoriasis. Here are some pictures: Open Original Shared Link As you can see, it is a blistery rash. The kind of psoriasis that I have is plaque psoriasis, which looks quite different....it sounds as though you might have the same. Cheers, JoAnn
  15. nasalady
    With several close family members diagnosed with celiac disease, you are at very high risk of developing celiac if you do not have it already. The symptoms say you probably do. False negatives are common in the standard blood tests and biopsies for celiac disease. The best way to tell if you are either gluten intolerant or celiac is to go gluten free...
  16. nasalady
    What an incredible JERK!! Is there anyway you can see a different doctor? Like an internal medicine person or something?? No one should have to go through anything like that just to be tested and get medication! This guy is on a power trip....it sounds like he wanted to humiliate you. I'm so so sorry you had to go through that! Did you...
  17. nasalady
    Ah ha!....here is the answer to your question: "When one is still eating Gluten and still breaking out with DH, the iodine test will also cause reaction. After you have become gluten-free and the DH is completely gone, it will stop working too. Eating a lot of iodine during the breakout phase can also exacerbate the reaction - so some say to eat non-iodized...
  18. nasalady
    I think it should be positive any time you have active DH blistering, even if you're gluten free....it may even work without visible DH activity.
  19. nasalady
    Another thought....have any of your doctors run a liver panel on you lately? Another condition which can be associated with celiac disease is autoimmune hepatitis (I have that too), and that seems to make me retain fluid like crazy! I certainly hope that's not the problem, but you might want to mention it to your doctor.
  20. nasalady
    Hashimoto's thyroiditis seems to go hand-in-hand with celiac disease. There's a lot of research to back that up; here's a link to a site where I've posted a number of papers about celiac disease and related conditions....there are 3 papers about autoimmune thyroid disorders and celiac, Volta 2001, Berti 2004, and Hadithi 2007: Open Original Shared Link...
  21. nasalady
    My husband seems to have BOTH psoriasis (very bad on his hands) and DH. His dermatologist initially diagnosed psoriasis and eczema, but I noticed popped blisters which turned dark purple as they healed.....the purple spots take literally MONTHS to go away. You're correct in that purple spots during healing is classic DH behaviour, and I think that's...
  22. nasalady
    Unfortunately I can relate to this....my MIL has been very unsupportive of our needs. My entire immediate family (me, husband, two small kids) must avoid gluten. She has been in denial ever since we went gluten free, constantly asking my husband if he was done yet with that "weird diet". He has tried to explain that he has to eat this way for the...
  23. nasalady
    Crimson, I can understand your frustration and disappointment! But your iodine patch test was absolutely convincing to me....and that used to be the standard test! So I think you do have your answer.... Also, you're correct about DQ7 and DQ2.2 working together to make a DQ2.5; here's a link to a thread from about a year ago which has that information...
  24. nasalady
    Marlie, there are lots of false negatives with the bloodwork! No, blood tests do not tell all! Yes, it's good to try to get a firm diagnosis, but if the tests are negative, and you have a positive response to the gluten free diet and you feel TERRIBLE on gluten, then please listen to your body! It's trying to tell you NOT to eat gluten! The only...
  25. nasalady
    Pamela's Pecan Shortbread and Shortbread Swirl Cookies are awesome! They have a delicate flavor, and are not dust-dry like a lot of gluten free baked goods tend to be. I've used the Pecan Shortbread Cookies crunched up as the basis for a crust for cheesecake....yum!!
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