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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I reacted to even the rice chex. I mainly stay away from processed foods. I seem to react to extremely low levels of cc.
  2. dilettantesteph
    I figured it out by keeping a food diary. I kept track of not only what I ate, but what brands they were. Some celiacs are sensitive to lower levels of gluten than others. Some of us have problems with cc from shared facilities and some of us don't. Some of us have other food intolerances. A food/symptom journal was invaluable for me. I wish you the...
  3. dilettantesteph
    Gluten makes me very depressed. In it, I think that it is because this life is so difficult. After I get out, I realize that it was the gluten talking. I hope you can get out of it.
  4. dilettantesteph
    I have had ongoing problems with the gluten free diet as well. I went to an unprocessed food diet. I source my grains carefully and sort and wash before consuming everything. It is amazing where you can find grains which look like gluten containing grains. I started avoiding coatings on produce and things grown on straw or with gluten containing slug...
  5. dilettantesteph
    When I looked it up, I found it was a different kind of rye. It was discussed here before with references. http://en.wikipedia.org/wiki/Ryegrass'>Open Original Shared Linkgrass "Ryegrass should not be confused with rye, which is a grain crop." Open Original Shared Link
  6. dilettantesteph
    It depends on your level of sensitivity. Some celiacs bake with flour for their families with no issues. Others can't enter a bakery. I am one of the more sensitive. I try to avoid the flour aisle.
  7. dilettantesteph

    Hi :) & Thanks. I really hope so too.

  8. dilettantesteph
    There are other skin conditions associated with celiac disease: Open Original Shared Link It may be one of those.
  9. dilettantesteph

    ARCHIVED Candy

    dilettantesteph replied to Knoppie's topic in Super Sensitive People

    I had problems finding a honey which I could tolerate. I don't handle much at all in the way of processed foods. It is not at all typical to have problems with honey. You could do an elimination/challenge study if you are concerned.
  10. dilettantesteph
    Different celiacs respond to different levels of gluten. A study by Fasano was used to show that most celiacs don't react to 10 mg per day: Open Original Shared Link In that study one of the participants suffered a complete relapse and dropped out. This study was used to support the 20 ppm limit. Some of us do react to these items, like the guy who had...
  11. dilettantesteph
    I had problems with a lot of kinds of honey. The one I get is expensive, but I can eat it without getting sick. It's called rare hawaian organic white honey.
  12. dilettantesteph
    I find the results consistent with my reactions. Then again, I've never had cat food.
  13. dilettantesteph
    I was biopsied for microscopic colitis myself. I had problems getting relief too, until I kept a detailed food journal, ate unprocessed foods, and kept track of where each food came from as well as what it was. It was difficult, but the results are worth it.
  14. dilettantesteph

    ARCHIVED Candy

    dilettantesteph replied to Knoppie's topic in Super Sensitive People

    Sorry I can't help very much. I react to almost everything too. My list of processed items I can have is pretty short. I don't try new things very often any more. The closest I come to candy these days is one particular honey which is expensive but delicious. I used to give my kids those lollipops and we didn't ever notice a big reaction. That was...
  15. dilettantesteph
    I like honey off a spoon. It's my treat. Also fresh berries with yogurt.
  16. dilettantesteph
    I have very frizzy curly hair. It can look like a big afro friz, or I can make it into ringlets with the right products. I was worried about hair products too. I started using my hand lotion in my hair. After all, it looked a lot like those hair products. I apply it to wet hair and it's been working well, and that's one less product to worry about.
  17. dilettantesteph
    I just looked those up and they look delicious. Even among super sensitives, sensitivity levels vary, so just because someone else can eat it doesn't mean that you can, unfortunately. I think that it can be difficult for dedicated facilities to get super pure starting food materials due to farming practices which can include crop rotation and shared...
  18. dilettantesteph
    It depends. Small amounts bother some, but not others. It would do it for me!
  19. dilettantesteph
    If you want to get tested, and you don't want to go back to eating gluten, you need to get tested right away. Do you have a general practitioner who could test you? Are there private testing companies in your country?
  20. dilettantesteph
    I have that problem with gluten cc. I had it big time pre diagnosis. It came and went for quite awhile when I was learning about what diet worked for me. It helped me to keep a food/symptom journal tracking everything I ate.
  21. dilettantesteph
    Good catch Kareng. I agree completely. I'd concentrate more on keeping him healthy rather than making the school help him when he misses school.
  22. dilettantesteph

    ARCHIVED Cereal

    dilettantesteph replied to GFreeMO's topic in Super Sensitive People

    You can buy a cheap dehydrator and make your own dried fruits easily. That helps with fear of cc.
  23. dilettantesteph

    ARCHIVED Cereal

    dilettantesteph replied to GFreeMO's topic in Super Sensitive People

    Homemade dried fruit; cheese if you can do dairy.
  24. dilettantesteph
    I am so sorry. It is so hard, because a sick child isn't a slow child, necessarily. How do you get your child enough challenge to be interested in school when he misses so many classes? How is this going to translate to college and career? It is such a worry. What are you doing to try to keep him more healthy? Our school did agree to keep a desk...
  25. dilettantesteph
    I've managed this a few times. I bring a cooler that plugs into the car, and a mini microwave. I make up meals in advance and put them in individual containers. You can freeze things that you won't be eating for a few days. You can also bring dehydrated mixes for soups. Nuts work well, I crack, wash, and roast before leaving. Coffee I wash and grind...
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