Jump to content

LDJofDenver

Advanced Members
 View Profile  See their activity

  • Posts

    265

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by LDJofDenver

  1. LDJofDenver
    Just in case some of you are fond of Progresso Soups, recent changes have made some unsafe for celiacs. When they took out the MSG some formulas/recipes changed and some that WERE on the OK list are no longer safe (such as my former favorite: Chicken with Wild Rice). Here is a link to the updated General Mills site that lists gluten free items: Open...
  2. LDJofDenver
    Hello and welcome to club. This forum is such a great tool, you'll find lots of info here, and it's nice to have the support of folks who know what you're talking about and living with. Probably check out your local WHole Foods, they've got gluten free bakeries. My favorite bread is Udi's gluten-free Whole Grain, and Outside the Breadbox makes some really...
  3. LDJofDenver
    It can be a little overwhelming at first. We
  4. LDJofDenver
    I just finished my lunch at work, which was a sandwich on Udi's bread. It's so worth it. It's the real thing. I prefer Udi's gluten free whole grain bread to their white. Maybe get one of each and see which you prefer. I thought my sandwich days were over - at least as far as taking a sandwich along for later. All those horrible gluten-free breads that...
  5. LDJofDenver
    Heck, yes! I've come to learn that anything can say "GLuten Free" on the label if they don't add gluten (wheat , rye or barley). However, many many supposed gluten free grocery items say right on the label that it's processed on equipment that also processes wheat, etc. Now I look for the gluten free items that are certified,with the little gluten-free...
  6. LDJofDenver
    Gave mine away to friends, at least all those items that my husband wouldn't eat (he is not gluten free). Perhaps call churches, as well. Do you have any homeless shelters in your area? Sometimes restaurants that don't know about gluten, especially if it's somewhere you frequent, will listen and work with you to come up with a couple safe things that...
  7. LDJofDenver
    Welcome to the club. Most of us have a history like that, had it for 10 years or more and misdiagnosed with all kinds of other things. I was being treated for each individual symptom (a pill for this, a pill for that, an ointment for the skin, etc). I feel your pain! It can be a little overwhelming at first. We
  8. LDJofDenver
    Welcome, this forum is a wealth of information. There are a lot of things you have to watch out for. But first, I want to post these links so you can check out these gluten free grocery guides, they will save you a lot of time and guessing. They list mainstream products (Kraft, Heinz, Kroger, Progresso, Hormel, etc.) by category (soups, chips, dressings...
  9. LDJofDenver
    Welcome and congratulations on being one of the lucky ones that actually got a diagnosis. I had all the feelings you had - most of all, I FINALLY knew what the heck was wrong with me! The good news is you'll find gluten-free substitutes for pretty much everything, but it will be a bit of a learning curve for the first couple months. Be aware that
  10. LDJofDenver
    I like the Outside the Breadbox items, too. But they are heavier - denser? - than the Udi's. I think that's what won me over to Udi's was their light porous bread. I've heard their cinnamon rolls are to die for, but I'm not a cinn_roll fan. There are getting to be more and more very good gluten-free products, especially baked goods.
  11. LDJofDenver

    ARCHIVED Chipotle's

    LDJofDenver replied to StacyA's topic in Gluten-Free Restaurants

    Well, it's a crap shoot. They did all the right things and even thought to change gloves, but most don't "get it" about cross contamination. (Not so sure I entirely got it either, when first diagnosed!) Don't know how much advice I can give that would change anything there, short of writing to Chipotle and suggesting they make it policy to handle all...
  12. LDJofDenver
    Thank you for this! I go to a big St. Patrick's Day party every year and the hostess makes wonderful Irish Soda Bread that I could no longer have. I'm going to make this recipe and take to the party next year! Sweet!
  13. LDJofDenver
    google: university of chicago celiac ...that'll get you a link to UofC celiac disease center where you can find explanation of the different types of blood tests, why they are used, which are reliable, etc. -- and a wealth of other celiac information
  14. LDJofDenver
    I think a lot of celiacs get/have had shingles multiple times (had them 5 or 6 times myself). It make sense in that they occur when your immune system is in the toilet, and celiac disease is an autoimmune disorder. Our immune system is already stressed. Diabetics often have higher risk of getting shingles for the same reason. You can have shingles...
  15. LDJofDenver
    I'm so happy that you've got a diagnosis. Most of us (celiacs) have similar stories of years, even decades, of misdiagnosis and frustration. Isn't it just a giant sigh of relief to finally have an explanation? Sure was for me. The good news is you're 30. I was in my mid fifties till diagnosed, so imagine the level of damage I'm dealing with. But the...
  16. LDJofDenver
    My adult son was diagnosed with IBS prior to a new GI doc making the celiac diagnosis. I think it's a pretty common catch-all for otherwise unidentifiable gut problems. My Mother has had awful digestive/gut problems all her life (I believe her to be an undiagnosed celiac), and her GI doc from a couple decades ago diagnosed her with colitis - probably the...
  17. LDJofDenver
    Thank you so much! I'm going to give it a try. Lemon is my absolute favorite thing - I used to have lemon meringue pie as my birthday "cake," before diagnosis.
  18. LDJofDenver
    Thank you so much! I'm going to give it a try. Lemon is my absolute favorite thing - I used to have lemon meringue pie as my birthday "cake," before diagnosis.
  19. LDJofDenver
    Maybe you could help her focus on what she CAN have, instead of what she can't have. My dentist's teen daughter just doesn't want to be different, to make a big deal of it, etc. To stand out. School would be the hard part, but with a bit of research you two could probably identify safe items at most of the places she's going. Then instead of always...
  20. LDJofDenver
    Certainly everyone on this forum knows it's not easy! Yes, it's easier now than over 10 years ago when my son was diagnosed, and there are more gluten-free products available. Do you know about these grocery shopping guides? They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc....
  21. LDJofDenver
    I had the vomiting part, and so did my son - along with the volatile gut, fatigue, joint pain (and more). As mentioned above, just eliminating grains wouldn't be enough if she's got celiac disease - gluten is present in so many things and there's also cross contamination that could be coming into play. If they're going to test her, they should do it BEFORE...
  22. LDJofDenver
    From what I understand, there are no false positives in terms of blood work. So if yours shows you have celiac disease, that's a pretty definitive answer. There are, however, false negatives in both blood work and intestinal biopsies. The intestinal biopsy is a couple samplings from a few areas and may (and often do) miss the area showing damage. I...
  23. LDJofDenver
    Both of the above! If you have a local celiac chapter they may have a small local-food/brands guide available. If not, get online and check out these grocery guides. I didn't know about them until a couple months after diagnosis, and it has made a huge difference in grocery shopping. These gluten-free grocery shopping guides list mainstream products...
  24. LDJofDenver

    ARCHIVED Denver Doctors Anyone?

    LDJofDenver replied to songstressc's topic in Doctors

    Ooops, must need more coffee! Forget to paste the link: Open Original Shared Link
  25. LDJofDenver

    ARCHIVED Denver Doctors Anyone?

    LDJofDenver replied to songstressc's topic in Doctors

    Good Morning, Here is a link to the Denver Celiac Chapter's physician page, hopefully it will help. I've not personally seen any of them, since I have Kaiser and have to go to their docs. If you happen to have Kaiser, I'd highly recommend Dr. Stark at the Franklin facility downtown Denver.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.