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angieInCA

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Everything posted by angieInCA

  1. angieInCA
    I've been thinking about his statement, I love how kids express themselves Maybe he means it hurts like a bruise or tender to the touch, that is how mine felt before it scabed over.
  2. angieInCA
    Unbelievable! My Dr used the iodine patch test to raise a blister to do a biopsy and yours totally dismisses it! I wish these Doctors would get on the same page
  3. angieInCA
    Mine was done on my arm, outside above my elbow. BUT, I have had breakouts in tha area before. I tested my Daughter in the same area because she has had breakouts in that same area. How old is your son? I would try to test in an area that is close to his normal pattern of breakout but won't be easily scratched by little hands. THe Dermatologist explaind...
  4. angieInCA
    meant to comment on this........ Watch it for a few days. If the sopt is hurting it may still develope a blisters or it my be more like a chemical burn and scab over. The biopsy is really painless. They just scrape a few skin cells of the skin surrounding a breakout not the blister itself. For years I had Dr's aspirating the blisters and testing...
  5. angieInCA
    When I was diagnosed with DH I did not have an active blister but I had an appointment with my Dermatologist so I went anyway. He did the Iodine patch test on me. He applied the iodine and a bandage and told me to come back in the morning. The patch itched and hurt all night long and wne I went in to the Dr. and removed the bandage I had a cluster of blisters...
  6. angieInCA
    In working with my endocrinologist I was put on all of these supplements as well. A few weeks later she added SAM-E which is a great mood leveler. I take a daily dose of 400 (mg?) which I get at CVS (their brand) and is Gluten free. I have noticed a hugh differance in my anxiety issues and can tell if I forget to take it.
  7. angieInCA
    I agree with this one. Not only did I find it helpful but it helped family members understand what was going on.
  8. angieInCA
    Yes, one can react to too much of anything. Especially if you have drastically increased your intake suddenly. My Stepdaughter cannot tollerate to much rice of any kind. In small amounts or maybe a serving or two a week she is OK. She cannot tollerate Jasmine Rice or White Sticky Rice at all. If she eats any of my home baked Gluten Free breads or cakes...
  9. angieInCA
    My whole problem with the "alright to cheat every once in a great while" sceanario is, while we all have the best intentions to be good on our diet, if we give ourselves a pass 2 or 3 time a year, that 2 or 3 could easily and quickly turn into 4 or 5 or once a month or everyother week before one knows it. For me, there is no other option than being...
  10. angieInCA
    My Doctor actually said kind of the same thing. Said cheating every once in a while if I could tolerate it probably would hurt too much I decided to take the advice of the good people here who have lived with this disease for years and stay far far away from the stuff. Besides, for me small accidental glutenings are just terrible to deal with for...
  11. angieInCA
    Have a nice big warm Chocolate Eclair for me with the real cream filling not the cheap icing stuff
  12. angieInCA
    Please see your OBGYN. Remember that celiac disease affects all your organs. Your uterus is an organ. The summer before I was diagnosed I had a hysterectomy at the age of 47 due to sever pain and bleeding. Post biopsy reveled I had Adenomyosis which my Dr. now says was might have been directly related to having unchecked celiac disease. Adenomyosis is...
  13. angieInCA
    Before my diagnoses I had terrible lower back pain and left hip pain that would shoot down my thigh and would inhibit my ability to walk. I had a several tests that included 2 MRIs. The Doctors were at a loss and told me that I must have sinovial cysts that would eventually put me in a wheel chair. They said there was a surgery for it to relieve the pain...
  14. angieInCA
    I had sever lower back and right hip pain to the piont it was causing problems walking. Nothing I took touched the pain. After 3 MRI sand countless tests which showed dark or grey spots, the only thing the Doctors could come up with was that I had Synovial cysts in my lower spine and hip joint which were inoperable and would eventually lead to me being...
  15. angieInCA
    I take lunch to work with me everyday. I either take leftovers from dinner the night before or I make veggie-coldcut wraps that I dip in salad dressing. I will slice fresh veggies in long thin slices (carrots, zuchinni, green onions, cucumber, basically what ever I have on hand and floats my boat that morning) lay them on a slice of gluten-free ham or...
  16. angieInCA
    fatigue and brain fog are biggies for me as well, along with deep muscle pain, shooting pain in arms and tingling and itching (DH). Starts within an hour and can last 3 or 4 days for me.
  17. angieInCA
    I start feeling tingling and itching within hours of ingesting gluten. THe blisters and rash show up 24 to 48 hours later. I agree with jststric, Honesty is the best policy. Explain you new found dietary needs and tell them not to worry about creating a special environment just for you but to please not to be offended if you turn down any food offered...
  18. angieInCA
    That is exactly what I was wondering. I know it is ""stickier" than regular white rice flour but I was wondering if anyone had used it in a small protion to help with the crumbly effect that we see in many cookie, cake and bread products. Thanks nasalady....that looks like the proportions I was thinking about. Trying a new recipe for pineapple upsidedown...
  19. angieInCA
    Can sweet rice flour be used in place of white rice flour in recipes? Not talking about gravies but for cakes and cookies and such.
  20. angieInCA
    I always have almonds in my purse.
  21. angieInCA
    I forgot to add CHIPOTLE Mexican Grill to the fast food list. EVERYTHING on their menu is gluten-free except the flour tortillias
  22. angieInCA
    I hope you have a wonderful trip! I am 60 miles North of LA so I really can't be of much help as far as actual address locations but most of these are chains you can look up locations before you go. Fast Food Baja Fresh = fresh baja mexican food. no actual gluten-free menu but there are many options and you can order with out flour tortillias, like...
  23. angieInCA
    The key word here is USUALLY. This does not mean always. Yes, DH can and is many times asymetrical. And there have been times that I have had just one blister.
  24. angieInCA
    For Taco meat you can use ground Cumin (actually what gives chili powder it's flavor, chili's git it it's kick), salt and pepper. After browning the ground beef, drain fat and seasoning and add some water and simmer uncovered for about 5 min. The amount of seasoning and water will depend on the amount of beef. I use about 1/2 cup of water to a pound. ...
  25. angieInCA
    Yes, that could possibly be DH. THe DH rash I get on my shins looks like that. The DH Rash I get on my arms and scalp look different. And the DH rash I get on my hands looks different still, so I get at least 3 different looking rashes that have all been diagnosed as DH. The one thing they have in common is that they all itch and burn like crazy and...
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