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angieInCA

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Everything posted by angieInCA

  1. angieInCA
    Oh My Gosh, I also have tingling in my lips and tip of my tongue, also the tip of my tongue is now numb.. My tongue also swells and becomes rippled around the edges. (yes, I have been tested for many allergies). The swelling and rippeling usually happens with an anxiety attach and can last for several days. You are so far the only other person I have seen...
  2. angieInCA
    Thanks for the responses. Gemini, I have been gluten free with a clean diet and a gluten free kitchen (the whole family went gluten free in the house when I was diagnosed) since 2008, so it has been 5 years. I am very careful and I rarely get accidently glutened, but it does happen sometimes. That is one of the reasons the Doctors are surprised I was having...
  3. angieInCA
    Hi all, Over the last few years I've been having some deep muscle pain and tingling in my hands and feet. Around August of last year I started developing insomnia, debilitating exhaustion, agonizing nerve pain all over but especially in my hands and feet, an inability to regulate body temp and extreme myalgia pain all over my body to the point of having...
  4. angieInCA
    My sister and nephew were recently diagnosed with Fabry Disease. They were both tested for celiac some time ago and the results were negative but they were eating gluten light at the time. I will be tested for Fabry disease on Monday. My sister and nephew has the same intestinal issues as a celiac and feel better when they are gluten free. We believe...
  5. angieInCA
    I have to go to Las Vegas quite frequently for business (about 4 times a year). I have stayed at several different hotels from the main strip to the old strip. I have never had a bad experience. All of the resturants are pretty well versed in food "allergies" and gluten free. I find reaturants to be a bit easier than buffets. Don't hesitate to ask if...
  6. angieInCA
    Wow! I love your analogy! May I have your permission to use this in the future?
  7. angieInCA
    A positive DH diagnosis is a Positive Celiac Diagnosis...period.... My blood tests came back very weak positive after being gluten-free for 6 weeks and my GI said it was possible I was just intollerent and we scheduled a endoscopy for a month later in which he wanted me to start eating large amounts of gluten for the test. The very next week I saw the...
  8. angieInCA
    I was not a big beer drinker before except for an occasional Guinness or one of the Sam Adams brews. I Like Redbridge!!! I never liked waterd down lite beers, I always liked beers that had full flavor so for me it's good
  9. angieInCA
    I too was never hungry, would have to remind myself to eat. I was not anemic and regular blood testing showed nothing irregular. Yet nothing explained the terrible pain I was experiencing (constant migraines, debilitating back, leg and arm pain). Since diagnosis and more indepth testing it's been uncovered that I have Pernicious anemia and totally void...
  10. angieInCA
    I was one of those that had normal weight for most of my life until about 6 years ago. Suddenly i started putting on unexplained weight. The Dr's just said I was over 40 and it was to be expected. I lived on a diet. For over a year I lived on 1200 calories a day and gained 20 lbs. All told by the time I was diagnosed I was 50 lbs overweight. My GI...
  11. angieInCA
    I was the person who had a cold every 6 to 8 weeks. I caught everything coming and going. I would get a sinus infection 2 to 3 times a year and it would develope into bronchitis. I had the flu at least once if not twice a year. I've been gluten-free for just over a year and I don't remember the last time I was sick. I haven't taken an antibiotic in over...
  12. angieInCA
    My work is geting ready for their Holiday Feast that they have catered for our whole company (70 employees). The office manager came to me on Thursday and asked me to help with the Menu so she could make sure there were pleanty of Gluten free options. She had already contacted the caterer and they assured her they would be very careful and make sure the...
  13. angieInCA
    It helps that his son is Austic and Gluten free, he really understands the need to keep my work area clean. People walk around the office eating gluten stuff all the time and he tells them to keeep it away from my area.
  14. angieInCA
    I had my keyboard and mouse replaced with new at work and NO ONE is allowed to touch it by orders of my boss
  15. angieInCA
    OMG! That is exactly what I said to my Dr when he first threw out the possible IBS diagnosis to me before testing. He said' "It's probably just a case of IBS". I said, "Doesn't that mean I'm Basically Stumped and just want to write a perscription?" and "Isn't IBS really just a symptom of something else really going on?" He then said "I guess we could...
  16. angieInCA
    One thing I want to add. I just hit my 1 year mark of being Gluten Free and I still have days where I find myself trying to navigate through this whole process. But I expect it will be that way the rest of my life. I just keep telling myself everytime I get glutened or I have a bad day that this will get better. And I continue to learn something new...
  17. angieInCA
    My earlier post talked of changing ones focus to help cope with the loss of gluten and favorite foods. This was a must for me. My first trip to the grocery after my diagnosis (which was fastly approaching the 2 hour mark) ended with me having a total hysterical crying fit in the middle of the store and me walking away from my cart with just 3 things...
  18. angieInCA
    I make cereal bars with Fruty Pebbles or any of the gluten-free Rice Chex and marshmellows. Just follow the recipe on the marshmellow bag. I add chocolate chips and chopped almonds. So far the Cinnamon and Chocolate Rice Chex have been the favorites in my house. I'm not sure if the Peanut butter chips are gluten-free but they would be great with chocolate...
  19. angieInCA
    The best advice I ever received was from my internist after my diagnosis. She said I needed to realize that I was going through a life changing event much like a death of a loved one. That I would go through the 7 stages af grief and the best thing for me was to recognize this and embrace it and allow myself to go through it. She also suggested that I...
  20. angieInCA
    My full sized Yorkie went grain free about 2 months ago. I figured it was a no brainer since I was the one feeding him and giving him treats. Murphy is 14 and weighs about 15 lbs and has always had skin/itching issues. Within in 2 weeks all the itchingness was gone and he is more calm but now has the attitude and energy of a 2 yo pup. I am currently...
  21. angieInCA
    This sounds very much like my last reaction to the iodine test. The (what I called a large patch of tiny blisters) area was about the size of a nickle because I only did a small bandage. The blisters were microscopic but scabed over quickly then when completely dried out it peeled off much like I had burned myself. If it was not hurting or itching it...
  22. angieInCA
    My blood tests came back in the negative to low positive range. My DH test was positive. I opted not to have the GI biopsy...no need. Positive DH test confirms Celiac Disease.
  23. angieInCA
    Fried Green Tomatoes has always been one of my favorites! Slice tomatoes thick (At least 1/2 inch) Dip in beaten egg Then dredge in cornmeal mixed wih a little cornstarch then dip in milk (can use almond milk) then dredge in corn meal again. Fry in deep lard (can use veg. shorting) that come at least half way up the sides. cook till lightly...
  24. angieInCA
    I was told for years I had Herpes even though all tests came back negative for any know Herpes virus. I knew I didn't have it and kept seeking Dr. after Dr. opinions. Took me doing the research and calling till I found a Dr who knew what DH was and how to test for it.
  25. angieInCA
    Your body is talking to you. Listen to it. Going gluten free is hard and your body doesn't rid itself of all the toxins over night. It takes weeks to get your body adjusted to the fact it's not going to get poisoned anymore. While your gut is healing you need to give it simple easy to digest foods. It will make it so much easier on your body. Doesn...
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