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angieInCA

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Everything posted by angieInCA

  1. angieInCA
    Congrats! I can relate to your elation on realizing what has really been going on all these years and can now take control and regain your heath. Life is Good!
  2. angieInCA
    Thank you for posting this. I agree it is very informative and through in it's content. I am printing it off and sharing with family members who still don't get what celiac disease is. Angela
  3. angieInCA
    Wow Great Idea and such a simple solution, Thank you, I'm stopping by Home Depot today.
  4. angieInCA
    I eat out quite a bit (at least once during the weekend and a couple of lunches during the week with business associates for meetings) I actually do pretty well eating out even at smaller privately owned resturants without an actual gluten-free menu. I always smile nicely to the waiter or waitress and tell them that I'm going to be a bit difficult. I ask...
  5. angieInCA
    Great Post! You made my day. OMG OMG OMG We've all been there
  6. angieInCA

    ARCHIVED Flare Up

    angieInCA replied to hippo33's topic in Dermatitis Herpetiformis

    It is very possible that you are still getting traces of gluten in your diet. You have to read all the lables. Caffine will not cause DH outbreaks. But be aware that it can take months for your outbreaks to get completely under control. Just 2 weeks into the diet you still have antibodies deposited under the skin and they will continue to erupt (though...
  7. angieInCA

    ARCHIVED No Meds

    angieInCA replied to hippo33's topic in Dermatitis Herpetiformis

    Be aware that it can take months for DH to totally die down. You should see improvement anywhere from 2 to 6 weeks with a continuous gradual tappering off of constant flair-ups. Any time you accidently ingest gluten you may have flair-ups within hours to 6 weeks later. I have never taken meds for DH as I didn't want to contend with possible side effects...
  8. angieInCA
    I use ground flax seed in all baked goods. I just add a tablespoon or two depending on what I am making, pizza crust, pancakes, biscuits, cakes, bread, etc..... I also add it to my homemade salad dressings or sprinkle it on salads, I put it in potato salad and cole slaw. You could even add itt o scrambled eggs. I find it has no taste when add to recipes...
  9. angieInCA
    Sounds like a blood sugar crash to me also. Which can happen in times of extreme anxiety also.
  10. angieInCA
    Don't you just hate when you do that to yourself? I always say If I wanted to feel bad I would have done it on something I really like Yes, my deep muscle and joint pain comes back when I get glutened and stays around four to five days.
  11. angieInCA
    I had severe rashs when I was a kid that ran up and down my arms and down the back of my legs. I don't remember what was done about them but I do know I was never diagnosed with DH till I was 48. All my life I would get rashes or itchy bumps and I saw countless Dr.s and Dermatologists and none of them ever tested me for DH. I was given pleanty of creams...
  12. angieInCA
    Funny, I felt the same way at first but soon realized that researching on this board convinced me I was right and my Dr.s were wrong. I can't begin to thank all the people on here that helped me in the beginning.
  13. angieInCA
    Finally found them at Albertson's in Camarillo. $4.69 each. Haven't tried them yet as I am still grain free.
  14. angieInCA
    I by no means claim to be an expert on DH but I think the jury is out on this as much as they are on how "rare" Celiac Disease is. I should have stated may or may not have celiac disease of the gut. DH is considered celiac disease of the skin and not all people who have DH have gluten-sensitive enteropathy. If you go to the AOCD site Open Original...
  15. angieInCA
    You can go to a dermatologist that is familiar with DH and DH testing (not all are) for a skin biopsy. THey test the skin surounding the blister area not the blister itself. If you have DH you are Gluten Sensitive or Intollerent or Allergic and you may or may not have Celiac Disease. As with Celiac Disease they only way to really treat DH is to live...
  16. angieInCA
    It sounds like DH to me. I have had blisters everywhere. Watery blisters that have come up in clusters or singlely. THey are very deep, very itchy, and sore to the touch. I have had them on my face, neck, scalp, ears, torso, arms, shins, lips, toes. fingers and vaginally. I've had them on the palms of my hands and the soles of my feet. Fortunately...
  17. angieInCA
    I guess you could say I self-diagnosed about 4 years ago but listened to Doctors who laughed and said it was not possible and couldn't get the tests I asked for. I listened to those I thought all wise and continued on my merry way of eating Gluten and trying to find out what the heck was wrong with me for the next 3 years. Finally, after not being able...
  18. angieInCA
    Debilitating Fatigue took control of my life for years before my diagnosis. It also took several months before I even started to feel close to normal. About 3 months ago I started getting bi-weekly B-12 injections which has helped tremendously. I also take 1mg of folicate acid daily and a daily dose of SAM-E. Also, remember that he is dealing with a...
  19. angieInCA
    Amen! And it all depends on how bad you are willing to feel on any given day.
  20. angieInCA
    I have not found them yet in West Ventura County.
  21. angieInCA
    OMG.....You Are ME!!!!!!! I know my Dr. was getting so tired of me coming in and saying something just isn't right can we test for______(fill in the blank)__________. I had tests for everything I could think of and some that the Dr. thought of. I know they tested me for cancer 3 times. Scans galore, 3 MRI's in 4 months, 2 colonoscopies in 6 months....
  22. angieInCA
    I've suffered from migraines my entire life (first one at age 10). I would get them in clusters 2 to 3 times a month. After going Gluten free my migraines disappeared. If I get glutened one of my first signs is a headache.
  23. angieInCA
    NO! NO! NO! At least for me anyway The longer I am on a gluten-free diet the worse I feel after an accidental glutening no matter how small. My last accident was a couple of bread crumbs in my peanut butter (CC'd by a family member). I was very sick for four days and the symptoms seemed worse than ever before. To help me stay on course I imagine...
  24. angieInCA
    I agree. I was always very "healthy" looking even as a child. Meaning I always had about 5 lbs extra weight. I could eat anything I wanted and never gained past my "normal" weight. The only "Celiac Look" I had was a pouchy tummy. No mater what I did it never went away. But I had all the curves to hide it, big breasts, rounded hips and butt and great...
  25. angieInCA
    I vote we start a new thread.
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