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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Do you have any rashes? If so, you might have Dermatitis Herpetiformis, which a number of celiacs have. The reason why I mention this is that people who suffer from this type of rash are sensitive to iodine, which can be found in iodized salt, dairy, seafood, and asparagus. I become terribly ill from eating anything with iodine in it. And I agree with...
  2. rosetapper23
    Yes, I should have allowed for the caveat that friends who are extremely knowledgeable or gluten free themselves are fine for fixing me meals. My neighbor eats gluten free nowadays even though she doesn't have celiac...and after a few "mistakes" where I was accidentally glutened, she has been a wonderful source of welcomed dinner invitations. These types...
  3. rosetapper23
    IrishHeart, Thanks so much for the feedback on Curamin (or Curaphen?). I had suggested it to another poster here, and she mentioned that it didn't seem to help her. It's helped my mother and me quite a bit....so I'm glad you're seeing some benefit from it, too. Yay! If you're interested, there are several other things I take for bone/muscle/connective...
  4. rosetapper23
    As for eating at friends' homes, my advice is to always bring your own food. This especially applies to potlucks! Never, NEVER eat at a potluck. You'll need to warn your friends ahead of time that they don't have to cook or prepare food for you because you firmly believe that it is too overwhelming to expect a person to make a gluten-free meal without...
  5. rosetapper23
    I don't know much about the GAPS diet either, but your diet sounds lacking in healthy saturated fats. A diet needs to be balanced with the three macronutrients: carbohydrates, proteins, and saturated fats. If you don't get enough fat, your body has difficulty absorbing fat-soluble vitamins. Please add avocados, organic cheese and butter (if you can tolerate...
  6. rosetapper23
    Yes, I agree with you that the fact that you're black and overweight has contributed to doctors' inadequate response to your symptoms. However, even if you test negative for celiac, I hope you'll try a gluten-free diet on a trial basis to see if you feel better. And I hope you'll also consider taking calcium and magnesium supplements. Please keep us...
  7. rosetapper23
    LOL! Apparently, my typing has been adversely affected!
  8. rosetapper23
    I've read that most celiacs are overweight rather than underweight. Doctors are soooo not up to date with the medical research on celiac.
  9. rosetapper23
    AVR1962, Don't give up hope--you may heal and not have to continue taking so many supplements. I was fairly healed for nearly five years, but then I became so sensitive to gluten, even the slightest gluten contamination caused destruction of my villi. Because of a glutening in April 1910, I've developed a lot of severe vitamin deficiencies that simply...
  10. rosetapper23
    Have you tried avoiding iodine? Many of us with DH cannot control outbreaks without eliminating iodine as much as possible. Iodine can be found in iodized salt, some dairy products (especially soft cheeses), seafood, salty foods like french fries and chips and nuts, and asparagus. It appears to take BOTH gluten and iodine together to cause a flare-up of...
  11. rosetapper23
    Most doctors are extremely ignorant about celiac...and people who can develop celiac. I personally know at least a half-dozen Black people with celiac. A lot of doctors won't test people who are overweight either because they falsely believe that celiacs are all skin and bones. In looking at a site that lists the symptoms of nutritional deficiencies...
  12. rosetapper23
    I take Armour Thyroid because I need both T3 and T4, and I take one capsule of BioSil per day. Of course, drops may be better for you, though, since you're currently having absorption problems. I sure hope you follow through on requesting iron infusions. You seem like a good candidate for them--and shame on your doctor for not being knowledgeable enough...
  13. rosetapper23
    If you intend to avoid iodine, it can be found in some dairy products, iodized salt, seafood, and asparagus. It's not a good thing to totally eliminate it, but it seems as though you might be sensitive to larger amounts, like in salty foods. Do you get a reaction when you eat seafood?
  14. rosetapper23
    I take practically the same vitamins and minerals! I was also extremely ill for two years before being diagnosed at age 47. I'm now 54, and I still have some residual symptoms (night blindness, pernicious anemia, Hashimoto's, neuropathy, B12 and D deficiencies, ongoing zinc and manganese deficiencies, etc.). Regarding magnesium, please know that this...
  15. rosetapper23
    Yes, it's possible that the chocolate contained barley. I oftentimes shop at a healthfood store that is recognized for its large gluten-free section. However, it also has bins of nuts, grains, and chocolate-covered sweets. One day I looked at what the chocolate contained and was floored to see that every single bin of chocolate-covered berries and nuts...
  16. rosetapper23
    I just read up on what can cause ataxia, and it appears that a deficiency in manganese can cause it. I came to believe that I was low in manganese because my tendons had become floppy....so I know it can happen....and now my tendons are healthy again. You might try supplementing with chelated manganese to see if the ataxia improves. When it comes to celiac...
  17. rosetapper23
    Whey protein sounds like a good idea--just make sure it isn't soy based. A lot of celiacs can't tolerate soy. In addition to protein, he also needs healthy fats. Will he eat an avocado? I'm sorry to hear that he's having problems withdrawing from Dilaudid. That stuff is terrible! I wouldn't be surprised to learn that it's at the root of his continuing...
  18. rosetapper23
    All good suggestions, but I added the B vitamins and Biotin and nothing happened. It was only when I took chelated zinc and BioSil that my hair regrew. It was absolutely emotional for me to see new growth all over my head! I wish this same thing to happen to you... As for the iron, your doctor does NOT understand that you're unable to absorb iron. ...
  19. rosetapper23
    First, I hope that you're now receiving iron infusions to get your iron level up. Second, yes, I've had the thinning-hair issue. Mine apparently was caused by a combination of thyroid problems, low zinc, low B vitamins, and low silicon. I ended up taking chelated zinc, a fantastic silicon product called "BioSil," and a co-enzyme B complex vitamin. I also...
  20. rosetapper23
    You did everything right...and he was totally wrong. I agree that he's probably feeling stressed out, but you handled the situation the way it should have been handled. Your calling the restaurant to request gluten-free food was not out of line, and you should remind your nephew that you are simply looking out for your own meal and not other people's meals...
  21. rosetapper23
    It looks to me like you took two steps forward and one step back--that's a whole step forward! Seriously, I totally understand about the pizza at work. The rest of the world does NOT understand that one size does not fit all. The first five years after being diagnosed with celiac, I felt bitter every time my boss ordered in pizza for everyone. However...
  22. rosetapper23
    Please have your doctor test for low Vitamin B12--this can cause heart palpitations. And, yes, low Vitamin B12 can be caused by celiac.
  23. rosetapper23
    You might try giving your brother L-glutamine, which a number of celiacs take (in a smoothie) to help their guts heal. Also, I went to see an integrated medicine doctor (practices both allopathic and homeopathic medicine) because I had cancer, and he told me he could make me feel as though I didn't even have celiac. I didn't believe him, but after taking...
  24. rosetapper23
    Black olives, rice stuffing, mashed potatoes, sweet potatoes, peas, chocolate, truffles, whipped cream (for the pumpkin pie!), stuffed celery, and lots of stuff I can't think of!
  25. rosetapper23
    You say that you're taking B12--is it sublingual? Are you taking enough? I would suggest testing your level, because your symptoms are dead-on for a B12 deficiency. I get all of those symptoms when my level is low...and although I used to get B12 injections, I now prefer chewing on sublingual B12 three times a day. A nice benefit is that my lifelong acne...
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