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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Unfortunately, I can't severely limit my iodine because of the thyroid meds. And thanks for the kind words....but it may be too soon to celebrate. I had four invasive tumors removed in the past year--the last only five weeks ago. Hopefully, I've beaten it this time....but I'm feeling weary. I was cancerfree for four years, and then out of the blue...
  2. rosetapper23
    Squirmingitch, In answer to your question, I developed Hashimoto's after I finished my chemo treatments for breast cancer in late 2007. I also thought that avoiding iodine for so many years might have caused it to fail, but, as you know, Hashimoto's is an auto-immune disease prevalent in celiacs. I'd like to blame the chemo, too, but my doctors have...
  3. rosetapper23
    Supposedly, the biopsy is the "gold standard" for celiac diagnosis, whereas the bloodwork can result in false negatives. I'd definitely place him on a gluten-free diet immediately, especially since he's already had the blood drawn. With a positive biopsy, he really needs to concentrate on healing his gut.
  4. rosetapper23
    Pricklypear, That's very interesting.....so there's an iodine connection in your family, too.
  5. rosetapper23
    I SO agree with Mushroom! Grains contain exorphins, which have addictive qualities. Food manufacturers in the U.S. know this, and it is one of the main reasons that so many processed foods contain gluten-containing grains. I completely understand your addiction, because I had no digestive complaints for the first 35 years after my celiac was triggered...
  6. rosetapper23
    Yes, IrishHeart, I should have made that clear....however, I try to recommend the Metagenics product whenever I can. It helped me tremendously....and I no longer need to take it for digestive health. It made me feel as "right as rain" within just a few weeks of using it, and I used it for at least a year before giving it up because of finances. However...
  7. rosetapper23
    Pondy, I can highly recommend Metagenics UltraClear Sustain Medical Food ("Nutritional Support for the Management of Leaky Gut Syndrome"). My doctor prescribed it for me (but I believe anyone can buy it) four years ago, and it made me feel completely "normal" after only a short period of time. He had promised me, "I'll make you feel as though you don...
  8. rosetapper23
    I would love to see more research on this topic. I'd like to know if other people connected the rash to iodine and eliminated only that. If no one else has, then my son and I are the only evidence that this may be the case. Probably everyone else learned first that they had celiac and eliminated gluten. Also, when I say that I eliminated iodine, I mean...
  9. rosetapper23
    IrishHeart, Yes, this article brought back memories.... But I have to tell you that parts of it made me wince. For one thing, the "expert" cited in the article considered celiac a rare disease. Second, he stated that false-positives are common with celiac disease (and, in this case, the patient tested positive THREE times!). So, the "expert...
  10. rosetapper23
    Yeah, I did! I knew I had breakouts due to iodine, so I'd avoided iodized salt and salty snacks since I was about 20 years old. Then, when I moved to a new area when I was 30, I began to be covered with DH all over my face and neck. I was tortured for four years while dermatologists treated me for severe acne (even though I told them it itched like crazy...
  11. rosetapper23
    You should wait until you get the results of your bloodwork. If you test positive for celiac, you almost definitely DO have celiac. If the biopsy is scheduled for some future date that is unacceptable to you, it's a personal decision as to whether or not you wish to continue eating gluten in order to have the biopsy. Remember, the gluten will continue...
  12. rosetapper23
    You can test your theory that it's DH by eliminating iodine temporarily to see if you can get the last of the blotches to go away. For DH to occur, you need both gluten and iodine. For me, the DH is triggered more by iodine than by gluten, and I was able to control it for 15 years by eliminating all iodine while continuing to eat gluten (I didn't know I...
  13. rosetapper23
    At the annual celiac conferences that I attend (always held in different states), there are updates on the various promising treatments that have been ongoing for a while. The approval process takes many years. So far, in my opinion, the vaccine that has been developed in Australia is the most promising and may be the first treatment to become available...
  14. rosetapper23
    It sounds as though you're suffering from nutritional deficiencies. Take a look at this list of deficiencies to see if anything "fits": Open Original Shared Link
  15. rosetapper23
    Okay, this is a complicated issue, and I can only speak to what I learned at a celiac conference. The physiology was a little over my head, but the basic concept was this: There are junctures that line our intestines. When you don't have celiac, they open very briefly to allow nutrients and small molecules to pass through the intestinal lining. With celiac...
  16. rosetapper23
    If the granddaughter should cheat sometime in the future and her "rash" reappears, you could have a dermatologist do a biopsy (on the clear skin adjacent to the lesion--not the lesion itself, or it will come back negative). If she has dermatitis herpetiformis, then you have your answer--she has celiac....and if she has it, all of you who are "gluten intolerant...
  17. rosetapper23
    I agree about taking her off dairy initially, and you should also know that many celiacs are unable to digest soy products (except fermented types like gluten-free Tamari sauce, which is a substitute for soy sauce). Some of us are also sensitive to oats (even the gluten-free type) and iodine.
  18. rosetapper23
    To be honest, I would really like to retire there....but because my breast cancer returned this past year (twice), there's no chance that they would accept me because my disease would "tax" their social medicine system. **sigh** I really do love the utopian lifestyle there, and my daughter is trying to become a permanent resident. If she's successful,...
  19. rosetapper23
    I'd like to add joint pain, foggy brain, headache, stuffy nose, puffy eyes, dizziness, and sleeplessness.
  20. rosetapper23
    The simple, short answer is, yes, I've been glutened by Trader Joe products. It's been hit-and-miss with them, and my last run-in convinced me that I can't eat their so-called "gluten-free" products without the possibility of cross-contamination. I truly wish I could trust them because I LOVE their ginger snaps...but I was terribly glutened the last time...
  21. rosetapper23
    I agree that you need to be tested for common nutritional deficiencies. Since you're having neuropathy issues, be sure that he tests for B-12 and ferritin. Also, Vitamin D and Folic Acid can be low in celiacs.
  22. rosetapper23
    Doesn't it make you feel "normal" and not like a second-class citizen to be able to eat anywhere and for people to understand what celiac and gluten are?? I just got back from Australia, and I literally ate my way through the continent: pizzas, hamburgers, sandwiches, Brazilian barbecue, etc. Some Australian friends came back with me, and when I took them...
  23. rosetapper23
    Perhaps the iodine was used as an antiseptic? If so, they can use alcohol. I only allow surgeons and doctors to use alcohol on me. Maybe someone else knows if iodine is also used internally for such a procedure.
  24. rosetapper23
    I believe that current law DOES require that they inform you about whether or not the product is processed on equipment or in a factory where wheat is also processed. Anyone out there know otherwise?
  25. rosetapper23
    I can only say that I have been glutened by some Trader Joe's products that contain this statement. I assume it's from cross-contamination.
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