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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    I agree--I think you'll make a great addition to our Forum. Welcome!
  2. rosetapper23
    It sounds as though you might actually have celiac--going back and forth between diarrhea and constipation is common when eating gluten. And, yes, the blood tests tend to be unreliable, but IMO the biopsies are even more unreliable. If you do a little research, you'll find that the leading expert on celiac, Dr. Alessio Fasano, has said that you shouldn...
  3. rosetapper23
    Um...it's probably most definitely the soy and Silk products. Many celiacs cannot tolerate soy, and your symptoms match mine when I eat it. Otherwise, your diet sounds fine.
  4. rosetapper23
    Peter is right--what I meant was a "personal message" that can be sent through the Forum. The method I mentioned is one that I developed myself...so it's proprietary, and I don't wish to share it publicly. However, if it would help your son, I'm willing to share the information with you.
  5. rosetapper23
    My guess is that she's possibly sensitive to casein, soy, and/or oats. You might consider eliminating all of these items and then adding them back in one by one. Also, some celiacs are sensitive to nightshades. Personally, I'm fine with them, but I thought I would mention it in case your daughter might be someone who is also sensitive to them. I, as well...
  6. rosetapper23
    celiac can spawn a number of autoimmune diseases--I wouldn't be surprised if he also has celiac. Do you know if he does? By the way, if he needs help restoring the muscle strength in his face, send me a PM, and I'll describe a method for doing so.
  7. rosetapper23
    Yes, zonulin is the key! Dr. Fasano has been speaking of this for many years...and it is, unfortunately, highly technical. As for other autoimmune diseases that can mimic celiac, there's lupus, Sjogren's, and a bacteria-caused disease called Whipple's Disease.
  8. rosetapper23
    I'm wondering if you've done some research about what a high IgG actually means in terms of celiac. The testing can be really confusing. The information at the following link has excellent information about celiac tests, and it suggests that solely having a high IgG indicates that you may not actually have celiac. Perhaps you are gluten intolerant? Open...
  9. rosetapper23
    It sounds like Whipple's to me, too. That would explain what your doctor saw in the scope and the enlarged lymph nodes. At least, Whipple's can be cured with antibiotics. Please keep us posted on what you learn, okay?
  10. rosetapper23
    Raven, I've been thinking about you all day....and have been trying to remember everything I've researched in the past that might help you. Then, it came to me: Whipple's Disease. I looked it up, and--lo and behold--it causes skin discoloration and eye problems in addition to a lot of other things you've described. Here's a link: Open Original Shared...
  11. rosetapper23
    I suppose it varies with the individual, but after I've been glutened, the joint pain lasts 4-5 days.
  12. rosetapper23
    I would advise you to reschedule the biopsy...or just cancel it altogether. Although an endoscopy was once considered the gold standard, the leading expert in the field of celiac now believes that that is no longer the case. (BTW, your gastro probably hasn't yet received that memo.) If you truly feel that gluten is an issue for you, simply eliminate it...
  13. rosetapper23
    My dentist told me years ago that my mother, son, and I all suffered from some type of unexplained auto-immune disease where our tooth buds had not formed properly in utero. He said he had no idea what type of disease we had but that ALL of us, indeed, suffered from the same thing. He retired years ago, so I was never able to tell him that we all now know...
  14. rosetapper23
    Gee, Skylark and I must be going to the same restaurants--could we have bumped into each other without knowing (???). I have had identical experiences and follow the same policies: No eating at restaurants where English is not spoken or where the chef has not been well schooled, no eating at Mom and Pop restaurants, no eating at establishments where the...
  15. rosetapper23
    Ah, the familiar shin pains. Yes, I know them well. I started having them when I was seven years old, so I had to wrap my lower legs in heating pads each morning or take a long hot bath in order to be able to go to school. As an adult, the pain was especially bad after I drank beer. I rarely drank beer (preferred wine...and still do), but after parties...
  16. rosetapper23
    I believe it's possible that you have celiac, but you should also get your thyroid tested because thyroid problems can cause memory problems, joint pain, and fatigue.
  17. rosetapper23
    If BOTH hands and feet are feeling numb, you may be suffering from B-1 deficiency. You might try taking a co-enzyme Vitamin B complex vitamin.
  18. rosetapper23
    Hmmmm....your symptoms do possibly indicate nutritional deficiencies. Vitamin D deficiency can cause blurred vision (actually seems like myopia), magnesium deficiency can cause hypothermia and muscle pain, iodine deficiency can cause low basal body temperature, Vitamin A deficiency can cause hairloss and hyperkeratosis (darkening of the skin), and zinc deficiency...
  19. rosetapper23
    I had those symptoms for years, especially after I developed Rheumatic Fever. It's called paresthesia. However, since it largely resolved after going gluten free, it may be that you're suffering from inflammation caused by gluten in your diet. I do recall, though, that whenever I was handling construction materials (especially lacquers and bonding substances...
  20. rosetapper23
    But (*sniff!*), they contain SOY! I'm brokenhearted!
  21. rosetapper23
    The two diseases share a common gene. However, I'm wondering if you might simply be sensitive to another food, such as dairy or soy. Many celiacs can't eat one or the other (or both). For me, soy makes me feel bloated and gassy, and then I end up having diarrhea. Have you tried eliminating other foods yet?
  22. rosetapper23
    Yes, I can definitely affirm that I have had tendon problems as a result of eating gluten. Actually, I've experienced tendon and ligament problems since I was 11 years old, when my celiac was triggered. Most recently, when I was glutened (after seven years of eating gluten free) in April 2009, the tendons were so badly affected in my feet, I ended up with...
  23. rosetapper23
    The last annual conference of the Gluten Intolerance Group of North America was in Minneapolis, and I was impressed with the level of volunteerism there--apparently, there are a LOT of diagnosed celiacs in Minnesota. Have you contacted the Gluten Intolerance Group (GIG) to see if there are any support groups nearby? Also, have you checked with Meetup.com...
  24. rosetapper23
    Bubba's Mom, I'm sorry--I'm sick with the stomach flu right now, so I'm not prepared to do a search on candida and candidiasis...though I wish I felt well enough to do so. Perhaps you could re-post with a thread asking about testing for yeast overgrowth. I do hope you start feeling better soon--I'm worried about you!
  25. rosetapper23
    You may be ingesting more iodine than you're aware of, especially if you eat processed foods. Manufacturers don't identify whether or not the salt they use is iodized, so you can get it from chips, fries, processed foods, foods prepared by restaurants, etc. It's also in vegetables, especially asparagus.
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