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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    I wish they would do more studies on DH--the textbooks simply have all the "facts" mixed up...and in most cases absolutely incorrect. Yes, DH CAN present symmetrically, but it has been my own personal experience (and that of my son) that it can also present in a way that is NOT symmetrical. As for the DH on my face and neck, the symmetry can be uncanny...
  2. rosetapper23
    Kyle, I do think that you've probably stumbled onto what may actually be at the root of your problems: celiac. As I'm sure you've read from your research, neurological problems, tooth problems, sinus problems, and digestive problems are very common with celiac. Regarding your teeth, many of us are born with defective tooth buds, so our teeth don't form...
  3. rosetapper23
    Only you can make that determination....and I understand how hard choices regarding medications have to be made sometimes. You might try taking Co-Enzyme B Complex by Country Life to see if you can get some of the symptoms to abate. Although Thiamin deficiency might not be the problem (again, this was based only on my research at an old-fashioned library...
  4. rosetapper23
    Okay, the symptoms you describe dovetail EXACTLY with those that I suffered when taking a low-dose birth control pill that I took many years ago before I even knew I had celiac. Every single one of your symptoms happened to me--and the cramps and diarrhea that began after the other symptoms started (especially poor memory, difficulty sleeping, the compulsion...
  5. rosetapper23

    ARCHIVED New

    rosetapper23 replied to Songbird1976's topic in Super Sensitive People

    I would just like to add to the discussion that many of us with celiac cannot tolerate soy. You mentioned that you'd like to keep that in your diet....but you might wish to rethink that.
  6. rosetapper23
    It could be that you are eating minute amounts of gluten still (from CC). It doesn't take much to activate the DH. And, yes, I think what you have may, in fact, be DH. As for the soft stools, it took 18 months being gluten free for me to get past that. What finally helped me in that regard was a product called Metagenics UltraClear Sustain Medical Food...
  7. rosetapper23
    First, you should be tested for thyroid problems (perhaps your doctors already have?), because an underactive or overactive thyroid can be a cause for hairloss, and many of us suffer from thyroid conditions. However, if the hairloss is truly a result of nutritional deficiencies, you might consider taking a B complex vitamin that contains biotin, chelated...
  8. rosetapper23
    My kitties prefer a dry food that contains wheat, so I use a scooper--no contamination, as a result. As long as you don't physically touch the food, there should be no contamination.
  9. rosetapper23
    Okay, I think I know the answer to this particular question. My son, who has celiac, was projected to be between 6'5" and 6'8" inches, but his celiac was triggered at 11 just as he entered puberty. Until then, he'd been at 110% of the population, but then he began to fall behind. He was finally diagnosed with celiac a month before his 16th birthday, and...
  10. rosetapper23
    Yes, I've been plagued with "sleep paralysis" for all of my life, but--come to think of it--it got much worse when my celiac worsened 15 years ago....and, by golly, I hadn't noticed that it hasn't happened since I've gone gluten free. Imagine that! I wonder if it's yet another neurological problem caused by celiac. You bring up an interesting point. ...
  11. rosetapper23
    You can eat all See's candies except those that have hard frosting on them (like Easter eggs). That means everything in the display case is fine to eat. My favorite is the Butterscotch Square. Nestle's chocolate chips are gluten free as are Reese's Peanut Butter Cups, Hershey Bars, and a lot of Trader Joe's chocolates. Actually, there are quite a few...
  12. rosetapper23
    Listen to your body--stop!
  13. rosetapper23
    It's possible that you were glutened--a study on this subject stated that when equipment is used for both gluten and gluten-free products, there is a 70% chance of contamination. If the manufacturer only produces the product in a facility that also produces gluten-containing products, then there is a 30% chance of contamination. So....you may have been...
  14. rosetapper23
    Good luck on both scores. It is rare to find a dermatologist who knows how to correctly biopsy for DH (the clear skin next to a lesion and not directly on it), but if you're lucky enough to find one and then test positive for DH, there's no reason to see a gastro. If you have DH, you have celiac....so all you have to do is follow a gluten-free diet from...
  15. rosetapper23
    I have no experience with Cyrex Labs, but I know a number of people on this forum do. All I know about Dr. O'Bryan is that he has been a lead presenter at a number of national conferences of the Gluten Intolerance Group of North America. I've heard him speak twice and have found his presentations to be very informative, and he cites studies. I'm not surprised...
  16. rosetapper23
    I agree with Peter that you probably have DH, because two of its hallmarks are that it takes a while for the lesions to heal and then they leave awful scars. From people's descriptions here on the Forum, some people's DH doesn't itch as much as others'. I also get it on my face, and it looks and feels a lot like cystic acne. I was diagnosed with that for...
  17. rosetapper23
    It was very difficult for about two years, because, as the thyroid slowly died, my medication had to be adjusted up and down. Sometimes I would become hyperthyroid and then bounce back to being hypothyroid. Now that I know the symptoms of both, I can usually detect when I need to adjust my meds. Even after five years, it sometimes still becomes an issue...
  18. rosetapper23
    Yes, unfortunately, weightloss does not go hand in hand with a gluten-free diet. Oftentimes gluten-free foods that are processed have a lot of unhealthy ingredients in them. If you're eating a whole-food diet, though, just be sure that you are getting enough healthy saturated fats. A lot of people are afraid to eat them because they equate eating fat with...
  19. rosetapper23
    Yes, I had thought the same....but I didn't develop Hashimoto's until after I'd been strictly gluten free for three years.
  20. rosetapper23
    Geez....you're experiencing a lot of symptoms. All I can say is that Hashimoto's Thyroiditis (which affects quite a few people with celiac, including me) can present with a sore throat, fatigue, joint pain, foggy thinking, and dry eyes. Also, it can cause constipation. It can come on suddenly because the thyroid will produce enough hormone, and then, all...
  21. rosetapper23
    I agree that there are MANY products that contain gluten that you may be unaware of: lipstick and other cosmetics (and shampoos, etc.), supplements, medications, oats (unless certified gluten free), frozen hash browns, condiments, soups and broths, chips, etc. Also, it is important to know that for many people, once they go pretty much gluten free, they...
  22. rosetapper23
    I'm sorry to hear that it takes so long to see a doctor. When you attempt to get an appointment, please stress that you're experiencing muscle weakness upon exertion that worsens the more you exercise. Hopefully, they'll wake up and schedule an appointment soon. Good luck! And please let us know what happens, okay?
  23. rosetapper23
    You're welcome! But, please, see a doctor if you can--the muscle weakness you describe is very worrisome.
  24. rosetapper23
    It certainly sounds like DH, and if it is, then you definitely have celiac disease, which is at the root of many (if not all) of your ills. As the poster above mentioned, you'll need to cut way back on iodine until you get a handle on this rash, and you'll need to be extremely stringent about following a gluten-free diet. You can certainly get a biopsy...
  25. rosetapper23
    Your post is so very positive and heartening--thanks for sharing your story!
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