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CeliacAndCfsCrusader

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Everything posted by CeliacAndCfsCrusader

  1. CeliacAndCfsCrusader
    You DO know that you can be c/c'd, without symptoms, and can still be causing damage to your intestines, right? Yes, I'm sure I'm consuming gluten in trace amounts, whether I want to or not. But, to lessen the opportunities that gluten is killing me from the insides/out, I'll take every opportunity to NOT consume foods that are disclosed "may have been...
  2. CeliacAndCfsCrusader
    Amazon is great for the dry goods. I would suggest putting together a list of things can be bought locally and trying to either find a volunteer, a senior services organization or even a personal shopper to do the shopping. I know here in Denver, the local Kroger-affiliated supermarket does deliver. Perhaps there's another local chain where your mom...
  3. CeliacAndCfsCrusader
    Count me in as one that says I don't eat food "processed in a factory that also processes wheat...." Interestingly, Trader Joe's is coming to CO soon. Now I know to read every label...which I do anyway.
  4. CeliacAndCfsCrusader
    I live in Denver and I'll be happy to help! When I was diagnosed 5 years ago, there were slim pickin's. Now, our world is so much "more normal". My favorite store in Denver is Vitamin Cottage. They have the best selection and prices in town. I'll note that some locations can carry slightly different selections of items, so I suggest that you visit a...
  5. CeliacAndCfsCrusader
    Bravo, Dr. Fasano!
  6. CeliacAndCfsCrusader
    The company that is making this pizza for them "Conte's Pasta" has fantastic gluten-free ravioli. It's available at both Whole Foods and Vitamin Cottage stores here in CO. (Haven't had their pizza, but I'd give it a try...but maybe not at a Chucky Cheese....).
  7. CeliacAndCfsCrusader
    Having Celiac Disease means ZERO gluten in your diet. I agree with the folks that say "learn everything you can about Celiac" and then teach your kid. You're on the right track. I am hypersensitive, but I don't pretend that I haven't been c/c'd without symptoms...I assume that I have. Despite the 'chance' that I won't FEEL it, I KNOW it is poisoning...
  8. CeliacAndCfsCrusader
    A good allergist can help. Eliminate other issues, then your body can heal. If you have CFS or Fibro, (in my case) my experience is that a gluten-free diet helps a lot (but remember that your body didn't get screwed up overnight, it will take time to heal). I had severe fatigue for years, I had to adjust my lifestyle and "listen" to my body. Don't overdue...
  9. CeliacAndCfsCrusader
    Here's my take. Get yourself to a GOOD allergist and get tested for EVERYTHING. You will most likely find some things that you had no idea were a problem. Don't cheat. If you are indeed Celiac, you're foolish to intentionally consume what your body considers poison. My symptoms were prevalent for about 20 years, but it was never an equally symptomatic...
  10. CeliacAndCfsCrusader
    For places to stay, I would recommend: www.venere.it and www.vrbo.com Both are good choices for private homes/apartments and hotels. As a Celiac, I always prefer to have a kitchen. I have rented via vrbo.com perhaps 12 times and have never been disappointed. Look for listings with reviews, lots of photos and "get a feel" for the owner's communication...
  11. CeliacAndCfsCrusader
    Yup, I found this out too. As I waited in the drive-thru line, my one and only time there, I saw MY "protein style" burger being scooped by the same spatula as the buns (and maybe the onions?). I had a brief moment of weakness and said "it'll be ok". I tossed the burger before I left the parking lot. Some things are just not worth it. I haven't been back...
  12. CeliacAndCfsCrusader
    I have limited information, but maybe it'll help. I was in a car accident a few years before my celiac diagnosis. I began to have "sunburn" feeling and red-shading on my feet at first. Then my legs. Then my abdomen. Ultimately, after nerve conduction studies, many exams (including docs who either said nothing or I should seek psychiatric help, ha!)...
  13. CeliacAndCfsCrusader
    My doc's basically told me that a scope isn't necessary after the initial one, as long as I don't cheat and my blood work comes back negative. Even thought I didn't mind the actual procedure, their feeling is that ANY surgical procedure should be "necessary". That being said, I think it's ultimately up to us whether our bodies are telling us something...
  14. CeliacAndCfsCrusader
    Remember that the scoops for gelato may be c/c, even if the flavor itself is ok. Pharmacies have gluten-free food, great for on the go snacks. Enjoy FRESH vegetables, prepared exquisitely....yum! Jealous here....
  15. CeliacAndCfsCrusader
    Disney did a great job for me at their new resort in Hawaii. Make reservation ahead of time and you'll be well taken care of. Have fun!
  16. CeliacAndCfsCrusader
    Agreed, if you go gluten free PRIOR to testing, you will ruin the potential for an accurate result. NO OATS...often cross-contaminated (at least for me and many others) Rudi's, Udi's, Outside the Breadbox, Against the Grain = Good breads Pamela's Cookies Tinkyada Pasta (brown rice is best, spaghetti) Kinnikinnick donuts I usually have French...
  17. CeliacAndCfsCrusader
    I eat the following shredded brands with zero problems (always check the label yourself): Target Brand Kraft Albertson's Sargento Precious Mozzarella Tillamook
  18. CeliacAndCfsCrusader
    FYI, there's also a Costco next to the airport. Very easy to stop on the way to your destination on Maui.
  19. CeliacAndCfsCrusader
    Coming up on 5 years since I've been diagnosed, ZERO cheating. Gluten = Poison What's not to understand? PS: I just had a horrible dinner with DeBoles rice pasta, and if I ever wanted to cheat, it would be this instant DeBoles...you stink!
  20. CeliacAndCfsCrusader
    I too was severely deficient in Vitamin D. Have all of your levels checked. Keep the faith, it DOES get better.
  21. CeliacAndCfsCrusader
    Add me to the list, but it wasn't Mono, I was diagnosed with Chronic Fatigue Syndrom. I have family in the medical field and no amount of guidance/suggestions would lead me to Celiac until 20 years later (after a car accident which I thought gave me "peripheral neuropathy....low and behold it's Celiac). I adjusted my lifestyle after being diagnosed with...
  22. CeliacAndCfsCrusader
    I totally agree, for years Honey Baked Ham had wheat in the glaze. I've seen it here in the US in sausage. Why NOT read the label? Peace of mind is worth a lot when trying to enjoy your meal.
  23. CeliacAndCfsCrusader
    Regarding "seasonings"; a local breakfast place here uses a small amount of Ranch Dressing flavored dry mix on their potatoes...guess what? Gluten!
  24. CeliacAndCfsCrusader
    When really, really stuck...a hot fudge sundae or milk shake at McDonald's will do (I always order without cherry and whipped cream, just in case). Never had a reaction.
  25. CeliacAndCfsCrusader
    I know this won't help, but no matter how difficult, you have to stick to your guns. I went to the birthday party of a dear friend, "guys night out party" and the steaks were 2 inches thick, grilled potatoes, etc etc and I had to turn it down. It was tough to be left out, but I still enjoyed myself...especially knowing that I ate at Chipotle beforehand...
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