Jump to content

CeliacAndCfsCrusader

Advanced Members
 View Profile  See their activity

  • Posts

    149

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by CeliacAndCfsCrusader

  1. CeliacAndCfsCrusader
    For those monitoring this thread, here are some options: Panzano (higher-end, owner has Celiac) PF Chang's, 15th and Market (near free shuttle stop) Chipotle, multi Maggiano's (middle of 16th St pedestrian mall, near theater) Spaghetti Factory (have not been to this location) BTW, Coor's Field has one dedicated gluten-free food outlet on the main concourse...
  2. CeliacAndCfsCrusader
    I prefer Outback. I've dined there dozens of times without one issue of C/C. Love Outback! PS: Yes, you have to still be careful and verify everything when you order and when it arrives at table. I do this at mom's house too!
  3. CeliacAndCfsCrusader
    Boulder Sausage is great, Costco may have it in the cheese aisle (it's local to me). Jones is another that is easy to find. BTW: Hormel Pepperoni is easy to find and is gluten free.
  4. CeliacAndCfsCrusader
    My two cents. In the beginning (especially), don't eat ANY foods that are clearly marked "made in a facility that shares....". If you don't, you're only guessing that these foods aren't the problem. Then, you can add them in one at a time if you like. I was diagnosed about 8 years ago and I still won't eat these foods. There are other choices and...
  5. CeliacAndCfsCrusader
    My discovering this was about 15 years after I first had symptoms of a food allergy. It started with banana and fresh orange, both made my mouth sensitive and my tongue swollen a bit. It wasn't critical, but noticiable. Then it went to colored bell peppers, except for green. Even cooked. Ultimately, the final straw was watermelon closing my airway enough...
  6. CeliacAndCfsCrusader
    I might be able to help with this. I ate fresh fruits and veggies all of my life until I had a reaction to watermelon and bell pepper. My mouth got itchy and my voice got hoarse (airway closing). This didn't happen until my 20's. Ultimately, I was diagnosed with OAS or Oral Allergy Syndrome, which essentially is an allergy to a PROTEIN in many foods...
  7. CeliacAndCfsCrusader
    I'm probably the biggest advocate of Chipotle there is, but that doesn't mean they can ever be perfect. I've been enjoying their food since they opened about 15 years ago, the last 5 being since I was diagnosed with Celiac. My experience is that the CO run stores are cleaner and better run overall. This may be part of the problem. Since the OP...
  8. CeliacAndCfsCrusader
    Open Original Shared Link This is one link, it was widely reported on Yahoo and MSN around the time of my original post. It's interesting, the difference between a "Forum" and a "Blog"..... As someone who has worked in restaurants, it's not unbelievable that this happens. In fact, it's unbelievable if you think it doesn't.
  9. CeliacAndCfsCrusader
    I thought I'd pass along something interesting that I read recently about their workers. An employee mentioned in a blog that "employees like to experiment with the ingredients after hours"....he included the recipes for "home-made donuts". They take rolls, douse them in milkshake mix and deep fry them. So, in addition to the normal c/c that we...
  10. CeliacAndCfsCrusader
    As a newbie, I encourage you to read EVERY label. It's the best way to not only get educated, but also to help you learn the "suspect ingredients" much faster. I know when I was first diagnosed, some trips to the grocery store were over an hour, as I was reading every label. Good luck. It gets easier!
  11. CeliacAndCfsCrusader
    I think Gatorade is ok, but I seem to recall Powerade (some varieties) may have some gluten in it.....just an fyi.
  12. CeliacAndCfsCrusader
    Another vote for Against the Grain! In fact, I just finished a great meatball hero for dinner. If you ask your local grocer, they may be able to specialty order for you (maybe a case at a time?). Trust me (us) it's SOOOOO WORTH IT! The best gluten-free anything I've found.
  13. CeliacAndCfsCrusader
    I was diagnosed with CFS at the age of 24. It took more than 6 months before I found a doctor that would verify "it wasn't in my head". Something I already knew. I was young, buff and strong as an ox. Within days after coming down with something similar to Mono, I couldn't walk up a flight of stairs without sitting down. You will find many, many people...
  14. CeliacAndCfsCrusader
    Darn it, that's my old hometown!
  15. CeliacAndCfsCrusader
    I can vouch for the Pecan Pie, Apple Pie, Cupcakes and the soooo good Almond Scones. Haven't tried the other items.
  16. CeliacAndCfsCrusader
    If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand. Thanks for the information!
  17. CeliacAndCfsCrusader
    I didn't see the show, but I'm always happy when even "half of our story" gets out. I don't expect your average viewer to be overly interested in intestinal biopsies, stool changes, etc etc If the mainstream media includeds a story about Celiac and features questions about symptoms and "talk to your doctor", it's a win for all of us. No one show...
  18. CeliacAndCfsCrusader
    All good tips so far. Remember to download some Italian phrases regarding having Celiac and take them with you to show to waiters, etc. Also, pharmacies or drug stores can usually be found quite easily in Italy and often stock a selection of gluten-free food (pasta, bread, snacks, etc). I saw this prior to being diagnosed myself and wondered "why do...
  19. CeliacAndCfsCrusader
    As have you, apparently.
  20. CeliacAndCfsCrusader
    Also, the "Against the Grain" company makes a FANTASTIC Baguette. Best "hero" bread I've had AND it's great as a side with Italian.. Find it. Order it. Love it.
  21. CeliacAndCfsCrusader
    You have to learn which establishments you trust and apply common sense. I "might" trust a pizza joint....if I hadn't worked in one. Just my two cents.
  22. CeliacAndCfsCrusader
    Ditto- I'm very sensitive and have no problems with their regular pepperoni. One thing, their turkey pepperoni and I don't agree, but sometimes other turkey products bother me....maybe that's something that affects you too?
  23. CeliacAndCfsCrusader
    Sorry, I missed your response. Maybe things are different here in the US, but I'll stand by experience. IMHO, pizza places are full of kids behind the scenes, no matter how much training, there will be tons of "fooling around" in back. Flour fights, wiping utensils on the same aprons, cleaning pans 1/2 way because there is a big game on tv and it's busy...
  24. CeliacAndCfsCrusader
    When I was a kid, I made pizza's at a local place. Based on what I saw there, I would be hard-pressed to make it a safe environment for myself if I was once again behind the counter. A pizza oven is FULL of old pieces of pizza crust. The counters are full of flour. The utensils, rags, pans and pizza board cannot be "protected" to remain uncontaminated...
  25. CeliacAndCfsCrusader
    FYI: I'm told that although Soba Noodles are listed as "buckwheat", which would be ok, they're actually often made with wheat as an ingredient as well.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.