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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Yep...I can certainly attest to the frustration of the patient doctors are unable to diagnose in cases of non-responsive celiac and other autoimmune disorders. There is much more to learn with regard to the human digestive system.
  2. GottaSki
    I've never had sugar issues. Only abnormal tests were celiac antibodies, nutrients and slightly elevated liver enzymes - abnormal liver numbers were after many years of undx'd celiac.
  3. GottaSki
    I've. read much of the same info, but remain very interested in all causes of intestinal damage/villous atrophy. Thanks
  4. GottaSki
    I too was curious after you posed your question, have been doing a bit of reading and had a similar thought to Tom's - do you know which antibodies can be the direct cause of tissue damage? Perhaps a better question would be -- do you have a reference for endomysial antibodies not causing tissue damage? I'll give it another search myself as well. Thanks...
  5. GottaSki
    Welcome Zak! I agree with Jillian. Just wanted to add it can help during your transition to eat more often - smaller meals and healthy snacks rather than three large meals. Chocolate milk or protein shakes after workouts can help your muscles recover
  6. GottaSki
    Glad to hear you survived - I too forget everything during and for about two hours after - depends on the meds administered and how you tolerate them As long as all celiac related blood testing is complete before the procedure you can remove ALL gluten as soon as it is done - good luck to you
  7. GottaSki
    A big hug along with a couple thoughts: Some of us become more sensitive to minor amounts of gluten as time gluten-free increases - is it possible you could be getting minute amounts of gluten from cc at home or while dining out - thus keeping the symptoms of the muffin mishap going? If you improved by removing lactose when first gluten-free, I...
  8. GottaSki
    Not a silly question at all - I use different brands and always check that they are gluten-free.
  9. GottaSki
    I'd bet it would taste great - maybe mix a bit of cinnamon into the brown sugar before you sprinkle. I've made coffee cake with BC's yellow cake - followed direction for regular cake then added a crumble mixture of cinnamon, brown sugar, gluten-free flour and butter on top - this would work great as muffin/cupcakes too -- demolished by the gluten eaters...
  10. GottaSki
    In addition to B12, D and Ferritin: B1, K, Iron, Copper and Zinc I'm pretty my doc tests B2 and B6 as well...I'd have to double check those.
  11. GottaSki
    I've used ginger tea for stomach aches since ginger ale stopped working for me...it works great Haven't added cinnamon - but will do next time - thanks for sharing Neroli!
  12. GottaSki
    I'll add a third to Patti's post.
  13. GottaSki
    Welcome! Here is a basic explanation of the Marsh Scale used to type Celiac Disease - looks like your biopsies were likely Stage 3A or 3B. Stage 1, the cells on the surface of the intestinal lining (the epithelial cells) have more lymphocytes (white blood cells) among them than normal - Stage one is not specific to Celiac Disease. Stage 2,...
  14. GottaSki
    I'm a legging/yoga pant fan - also used to wear alot of vests to cover the bloat. Never thought about it until post dx - but jeans used to bug the hell out of me back in the 80's - thank goodness they evolved into low rise with a bit of stretch!!!
  15. GottaSki
    Tough call. Some great docs have horrible interpersonal skills so I wouldn't change docs because of her rudeness. At least she did realize that a Total IgA had been missed and is willing to schedule endo based on your symptoms with negative blood work - there are many docs that won't consider endo without positive blood work. I actually think that...
  16. GottaSki
    I agree - I wouldn't risk it. I'd make one or more shelves of the freeze - "Before gluten-free" and let the gluten eaters use it up.
  17. GottaSki
    Been there....my back pain, weak ankles and knees that popped out regularly from age 11 magically disappeared since I removed gluten three and half years ago! My back problems were blamed on missing a part of my last vertebrae and a rear-end collision at age 18 - crazy that it was what I was eating - but true. So glad I never had the back surgery they wanted...
  18. GottaSki
    My youngest two sons were 13 and 15 when I was diagnosed. Each had completely different symptoms. We let them decide to go gluten-free for themselves - as it really wouldn't be possible to make teenagers stick with it unless it was their decision - IMHO. The 15 year old decided first - his symptoms were GERD, along with recurring flu type symptoms -...
  19. GottaSki
    LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention
  20. GottaSki
    Sad, but true.
  21. GottaSki
    If I'm reading your report correctly, you have a single DQ2.2 - which as IH mentioned is a gene regarded at lower risk to develop Celiac Disease - note...lower risk, not without risk. I find your numbers interesting as they are very close to my own kid's negative numbers - all of whom had celiac symptoms resolve after removing gluten. I have often wondered...
  22. GottaSki
    Tried and true
  23. GottaSki
    I agree - tell your hubs to try not to feel bad - I know mine always did each time he's made a mistake with ingredients - we both cook. It happens - more frequently in the early days, but accidents will happen again. Each accident will not reset your son back to day one - although he may develop a few more symptoms to accidental glutening as his time gluten...
  24. GottaSki
    I can see this statement in my future. "Really Hon, I'm drinking this tart cherry martini to reduce inflammation!" Thanks for the idea Patti - I am going to try adding to the tea soon
  25. GottaSki
    yep...I was teasing...I actually had my own toaster I kept in my office at one point - never had to justify it, but would have happily explained that the common toaster was medically unsafe for me.
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