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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Didn't annoy me in the least - I often add CYA statements and am glad you were covering mine this time when I was unclear -- Thanks!
  2. GottaSki
    Gemini is correct - you can't get glutened by touching surfaces containing gluten. In the shared "kitchen" of our office there was no sink - so rather than trudge down the hall to wash after warming my food I decided to use a paper towel to open/close the micro. It is far better to wash each time you encounter gluten - just not always convenient.
  3. GottaSki
    was just checking the sal content of squash - didn't want to recommend something you shouldn't be eating - and found this blurb on the page of sal content I was looking at: "Essential Sugars and Plant Lectins Dietary lectins are associated with some intolerance reactions to food. Lectins are not considered a part of the food chemical intolerance...
  4. GottaSki
    Welcome Paul! I had a bread maker that made one or two loaves of glutenous bread and was then relegated to a very dark corner of our storage room for years. I cleaned it and washed the bread pan - both by hand and ran through dishwasher. We never had a problem with it and have made many loaves of gluten-free bread. If you do clean it - pay careful attention...
  5. GottaSki
    My intolerances tend to be to high lectin foods. I can and do eat sweet potatoes, but I don't really care for them - they also leave me feeling "heavy" so I limit them to once a week or so. I make many, many batches of butternut squash fries. They are a pain to cut up - into very thin fry shapes, but oh so worth it. I cut up the whole squash and use...
  6. GottaSki
    Just wanted to clarify that I was recommending: The University of Chicago's Celiac Center (UoC) Open Original Shared Link I don't know if The University of Illinois at Chicago (UIC) also has a good Celiac Center. Good luck to you - I hope you are feeling better soon
  7. GottaSki
    That stinks Hope you are feeling much better very soon!
  8. GottaSki
    Sadly, this is quite common. Many doctors (even Gastroenterologists) lack specific training and experience with regard to Celiac Disease and NCGI. Trust your gut and keep looking for answers. Here is the Full Celiac Blood Panel: Total Serum IgA Tissue Transglutaminase IgA and IgG Gliadin IgA and IgG Endomysial Antibody IgA Deamidated Gliadin Peptide...
  9. GottaSki
    Hamburgers - we use Udi's hamburger buns or the two end's of normal udi's bread. We take them with us if we will be grabbing a burger on the road. Pizza - you can make your own - not the same convenience as take out, but does satisfy the craving very nicely without making you ill. Beer - there are more and more gluten-free beers everyday. Use...
  10. GottaSki
    Do not dismiss Celiac Disease of Non-Celiac Gluten Intolerance just yet. First, keep eating gluten until the day of your endoscopy. Second, once your endo is complete remove ALL gluten for a period of three months (six is better) to monitor symptom improvement. You need not wait for biopsy results. Elimination is the only test for Non-Celiac Gluten...
  11. GottaSki
    My liver was high at celiac dx and lowered at each check - was normal at my one year celiac follow-up. From what I understand the elevated liver enzymes is your liver working overtime to help clear waste. Made sense to me that mine was elevated with the stress my body was under. I would certainly ask your doctor what else could cause elevated liver enzymes...
  12. GottaSki
    Until all doctors are uniform in following the flowchart you state, there can be no assumption of what each doctor will do. I would love to live in a world where each and every doctor would diagnose based on positive blood work regardless of biopsy result. I just don't think that is our current reality. edited for typo
  13. GottaSki
    Here is the review of celiac center recommendations for gluten challenge that I posted in a similar thread two months ago: UCSD = 4-6 weeks, no specific amount of gluten was referenced University of Chicago = 12 weeks, 1/2 slice gluten bread per day Beth Israel = 4-6 weeks with increasing amounts of gluten Mayo Clinic and University of Maryland...
  14. GottaSki
    No one can know whether eating gluten light would lead to a false negative - there are unknown factors in each diagnosis. We can only suggest what we believe gives the best possible chance for accurate testing results. As everyone can read in all the recent posts regarding "Gluten Challenge" there are varying opinions of the procedures needed to give...
  15. GottaSki
    Welcome! Yes, you can still have Celiac Disease with all negative tests. Getting diagnosed with Celiac Disease with all negative tests is not often possible. There are all types of abdominal pain and digestive problems associated with Celiac Disease. Your symptoms are consistent with either Celiac or NCGI. If all tests are negative, the...
  16. GottaSki
    Yep, if your body likes quinoa it is a fantastic source of protein. It is not nightshade, nor legume. From what I understand it is a seed. The reason I removed it during my trial was based on it's high lectin content and was suspicious to me because I ate it nearly everyday after going gluten-free. Note: For anyone else reading along - I do not...
  17. GottaSki
    Thank you! This is very helpful. I've been recommending a slice or two based on what I had read from the different celiac centers that have their recommendations listed on their websites - great to have a direct response from University of Maryland. The letter also reinforces the unpredictable nature of any gluten challenge. Thanks again...
  18. GottaSki
    I too ate a lot more red, yellow and orange bell pepper once gluten-free - they added such nice bright colors to my food. When I trialed them - I had been joint pain free for weeks and had crippling paint within hours of trialing them. In fact bell pepper changed the way I trialed foods...I started by eating the item being challenged for breakfast, lunch...
  19. GottaSki
    You are absolutely correct, it is all to common. I was quite angry by the time I was finally diagnosed after being a "very good girl" as a child/teen followed by dismissal of symptoms by countless doctors for decades. On the flip side I was extremely relieved to know that food, rather than medical intervention could improve my health. This forum is...
  20. GottaSki
    I read a great deal about elimination diets before I undertook mine. There is conflicting information about the length of time to remove food. Suggestions ranged from one week to one month. I went three weeks before I started to trial foods, but I was eliminating so many foods I think my body needed a bit longer to detox. Since you've removed so many...
  21. GottaSki
    Hi Jenn- Which levels are high? Have the numbers come down from her original tests? It can take time for all antibodies to get down to normal ranges. Did her DGP IgA or IgG come down? DGP is often the first to rise with gluten ingestion and first to fall with gluten withdrawal. I'd think that if her health has improved drastically, you are doing...
  22. GottaSki
    Welcome WhoKnew! There is no problem in recommending a specific product - as long as you are not promoting your own business or product. It is actually helpful to post information regarding a specific product known to be gluten free - as well as warning of specific products containing gluten.
  23. GottaSki
    I can tell you that my reaction to many legumes is becoming extremely sleepy/tired within the hour of ingestion. Peas are like sleeping pills for me - beans are a slightly less reaction, but still make me very tired. Peanuts made me tired, cranky followed by weepy! Some legumes also caused joint pain within a day of ingestion. Food can do very strange...
  24. GottaSki
    Congratulations Laura! That reduction in less then six months is fantastic. I'm sure by the time your annual check runs around all your antibodies will be at good levels. I am concerned to hear about your increase joint pain and fatigue. The fatigue can be a matter of your body using energy to heal - fatigue can take longer than most symptoms...
  25. GottaSki
    Welcome Blevois! A couple thoughts: You may have a negative biopsy regardless of the time of the challenge. It is also possible that it will be positive even with restricted amounts of gluten. If you were gluten light - it is possible that you were ingesting enough to keep the immune system reacting to gluten - it just is not possible for any...
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