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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    I know it's tough - but try not to be hard on yourself. The reality is this will happen again and you may never figure out what causes each reaction. All you can do is try each day to limit the possibility of exposure. It is possible he is becoming more sensitive to cross contamination, but I wouldn't jump to the bread. Just make sure the bread pan...
  2. GottaSki
    I think you are correct and can cross off the Mess Head product. Aquafresh is safe. The item I suspect on your list is the MAC makeup. I didn't use this exact foundation, but did use another of their foundations and it was not safe. I can't remember the problem ingredient, but do remember it took me a while to find out it wasn't gluten free. That...
  3. GottaSki
    Red wine is gluten free - and regularly confirmed as such
  4. GottaSki
    Wow...I thought this was no longer legal. Good to know.
  5. GottaSki
    Hey Nicole and Kiki- I've seen these claims as well. I think it stems from the history of health insurance refusing people with pre-existing conditions. This was only a problem when applying for private insurance - not from your or your spouse's employer. The recent changes to health care laws in the US now prevent health insurance companies from refusing...
  6. GottaSki
    Glazed Old Fashioned Donut - forgot to have one in the days before going gluten-free - coulda, shoulda - didn't. Flaky, buttery Croissant --- Ohhhhh FRESH bread, French or Sourdough - warm with butter --- Ahhhhh It really is a rare occasion for me to miss any gluten item, but I frequently wish for the ability to go to a restaurant and try whatever...
  7. GottaSki
    No reason to worry yet. There are many very good doctors and knowledge regarding Celiac Disease is slowly improving. The best thing you can do is be prepared. Bring a written list of your symptoms that can possibly be Celiac Disease or Non-Celiac Gluten Intolerance. I find it comforting to have my list of symptoms and all the questions I have thought...
  8. GottaSki
    Welcome Angie! The tests you listed are negative. The tests could be negative because the length of your challenge was too short. It takes time to accumulate antibodies in your blood in reaction to gluten consumption. Most celiac centers recommend between 6 and 12 weeks for the tests to be most accurate. If you choose to have more testing, continue...
  9. GottaSki

    ARCHIVED I

    GottaSki replied to Mr Happy's topic in Coping with Celiac Disease

    Welcome Mr. Happy! I'd second the suggestion of getting blood tests done ASAP. Your primary doc can order a full celiac panel. I am not suggesting that you resume eating gluten...only that the tests still may be positive and the information in those tests may become useful to you in the future. If you haven't had them I'd urge you to add nutrient...
  10. GottaSki
    Hey Peg- I've had lifelong inner ear problems. Had significant hearing loss in my left ear by 7 years of age. Had tubes as a child, an inner ear surgery at 18 to replace part of an inner ear bone (this improved my hearing dramatically in the operating room, but the anesthesia caused severe nausea - threw up after the surgery and lost any improvement...
  11. GottaSki
    Another good link in the chain! Here's hoping it leads to many more research projects.
  12. GottaSki
    It could...but I would wait a bit longer before removing anything else. Bloating, etc. can happen for many reasons while you are newly gluten-free. If your digestive symptoms don't improve in the coming weeks, then I'd look to other possibilities. Another way to check the half & half specifically would be to remove it for a week to see if you still...
  13. GottaSki
    I agree and think you were absolutely correct to refuse the repeat endoscopy. Aside from being cruel - there is no guarantee that a challenge would produce positive biopsy results - while it would certainly harm your daughter's health. Should you find you need a diagnosis for school or other reason in the future - perhaps you can try a GI that specializes...
  14. GottaSki
    Welcome Lola! It is possible and highly probable during your first weeks and possibly months. If the symptoms persist you may need to remove dairy - it is tough to digest while the villi of the small intestine are healing. Don't remove anything else besides gluten during these first weeks unless you are certain the food is bothering you. Sometimes...
  15. GottaSki
    I'd say Celiac Disease is a definitely possible. Glad you are having him tested. A couple thoughts: Should he have all negative tests, talk to the GI about an endoscopy. It is not uncommon for children to have negative blood tests with positive endoscopic biopsy. If you don't wish to have an endo - I highly suggest removing ALL gluten for at...
  16. GottaSki
    Hair makes sense to me. I tend to go with those "weird senses" myself - I get them, my kids get them, trust them until you've proved them wrong. You could add a list to suspect products on this thread or start a new thread with just the list - up to you. I think you said you've done this already, but I find an email to manufacturer is the best way...
  17. GottaSki
    Welcome Eric! Pyro hasn't been online for over a year, but hopefully someone else can help verify the ground beef in question. Perhaps you can contact the company and ask if they process any wheat or gluten in the same facility where the ground beef is packaged? Good Luck!
  18. GottaSki
    I hope I'm understanding your questions, but I think I've got it: You both have extremely low IgA, but you do have some so I wouldn't expect your results to be less than zero. As far as I know the slight response does not mean anything...perhaps if your gluten challenge was longer your numbers would rise - it is just not possible to guess. Some other...
  19. GottaSki
    You don't need an endoscopy with positive blood work and symptoms. It has been the "gold standard" of diagnosis for a very long time, but this is changing. I would be surprised that a doctor would diagnose you with Celiac Disease with negative blood work, unless you are IgA deficient. Other considerations would be severe nutritional deficiencies in blood...
  20. GottaSki
    My first thought is - do you go out to eat together? Could it be cross-contamination from dining out? Or any food that you eat only when you are with her? Second - has it happened every time you've seen her? That would indicate something she uses every day could contain gluten. Shampoo, conditioner, bath gel (haven't seen gluten in soap, but have in...
  21. GottaSki
    I like to say I'm 99.99% gluten-free - no matter how careful you are, accidental glutenings are very difficult to completely avoid. You can only do your best to learn all the hidden sources of gluten and how avoid them. One way to determine you know you are successful in removing gluten is symptom improvement. Another is follow up testing. My celiac...
  22. GottaSki
    Welcome Andres! You already have what you need most in order to help. Your desire to learn the ins and outs of her diagnosis is the most important part of tackling this issue. As Mushroom mentioned start with the Newbie 101 info. Read as much as you can and ask any questions - it will speed the learning curve. If she doesn't already know of this...
  23. GottaSki
    Welcome! The most glaring item in both your's and your daughter's test is that you are both IgA deficient. Neither one of you can expect to ever have a positive IgA based test. I've never heard of a Total IgG, but you may want to check if that may be causing negative IgG testing. With symptoms and deficient IgA you &/or your children could have...
  24. GottaSki
    I'm glad you found this place to vent - we all have a time or two Just wanted to add a note. I have severe intolerances that have all been identified or gotten worse in my time gluten-free. I have tested negative to ALL food allergies several times in both blood and scratch tests. During the past year my reactions became much more allergy-like....
  25. GottaSki
    You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with...
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