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Latest Celiac Disease News & Research:
Everything posted by GottaSki
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ARCHIVED 2 Months In And Frustrated!
GottaSki replied to glutenfree015's topic in Coping with Celiac Disease
It is common to become more sensitive once gluten has been removed. Many that remove gluten do feel much better at first only to have some symptoms return. I know my digestive symptoms improved first, but there were times when they would return for seemingly no reason. It took months for me to prevent most glutenings and to figure out the difference between... -
ARCHIVED A Freedom Diet? Im So Lost!
GottaSki replied to Dejibo's topic in Food Intolerance & Leaky Gut
Welcome Dijibo! A couple thoughts: First - that you have had improvement in very serious symptoms in just three weeks is fantastic and seems that you may be on the right path. My guess is most of the improvement has come from removing all grains. The term "flour free" is confusing and I think if you search for "grain free" recipes you will... -
ARCHIVED Frustrated And Ready To Cry!
GottaSki replied to DavinaRN's topic in Coping with Celiac Disease
It gets easier. I am sorry you had a rotten day and hubs is less than supportive right now. First step is learning what you can and cannot eat yourself. As you learn and are consistent - he will learn too. As your health improves he'll see the reason for the change. Another possibilty is he is worried about what your dietary changes mean for... -
ARCHIVED Please Help :(
GottaSki replied to mammoth863's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wasn't sure that was a Total IgA because the range seemed odd. With a less than number as result I don't see how a deficiency would be found. -
The long thin leash we had worked well - it was really lightweight so she wasn't really hampered by it - it was about 15' long so she could investigate w/out wandering. As long as someone is hanging with her or there is nothing to get caught on - should work fine - combined with a breakaway kitty collar.
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Our little girlie travels with us. The only time we used a very long/very thin leash was when we were camping and worried she would wander too far. She was not pleased, but got over it. Shelby does often follow along when we walk our dog - no leash - she just tags along. Gracie will likely just hang out if let outside. Most cats don't wander far from...
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ARCHIVED Questions Re Shared Toaster Oven, Initialisms
GottaSki replied to KikiB's topic in Coping with Celiac Disease
Sure...as you can see -- there are more than a few of us that can help -- or you can PM me. Take Care! -
ARCHIVED Questions Re Shared Toaster Oven, Initialisms
GottaSki replied to KikiB's topic in Coping with Celiac Disease
Your doing great through a very frustrating process. Let us know if you have any last minute questions before you meet with the doctor on Tuesday. Hope you have a wonderful weekend - even if just during the daytime -
ARCHIVED Online Weight Loss Support?
GottaSki replied to DavinaRN's topic in Related Issues & Disorders
Hi Davina- Thought I'd add that it can be difficult to lose weight during the early days gluten-free - especially if you had unexplained weight gain prior to removing gluten. Once the digestive system begins to heal and is able to digest and absorb nutrients properly weight adjusts. Those that had unexplained weight loss begin to gain and those of us... -
ARCHIVED Newbie Questions
GottaSki replied to jonny00's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome John! Celiac Disease is an autoimmune disease where the immune system reacts to the ingestion of gluten causing damage to the small intestine - over 300 symptoms are associated. Non-Celiac Gluten Intolerance is also triggered by the ingestion of gluten and has many of the same symptoms of celiac. There are no medical tests to determine... -
ARCHIVED Please Help :(
GottaSki replied to mammoth863's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I missed reading this before my post. Amylase (pancreatic enzyme) is lower than reference range - Pancreatic enzymes can be affected by celiac - maybe others no more about this one. It would be a very good idea to add nutrient testing to your list of blood work. A, All Bs, D, K, Iron, Ferritin, Copper and Zinc -
ARCHIVED Please Help :(
GottaSki replied to mammoth863's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Mammoth- Without ranges it is hard to be sure, but I agree that your the numbers you provided look good. What was the range on the potassium? There are no specific tests for Celiac Disease included. You'll need to ask your doctor to order a full celiac panel. Reminder - to give the celiac blood panel the best opportunity for accuracy -- you need... -
We save the heals of our gluten-free bread and make them in the blender. There have been many threads of different breadcrumb ideas...try typing "breadcrumbs" into the "search forum via google" at the top right of your screen - you'll find lots of ideas.
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ARCHIVED What Did I Eat Wrong?
GottaSki replied to DavinaRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could have been anything. There is no way to know on your first day gluten-free. I would not consider a buffet to be gluten-free. The food could also just have been hard on your system. Eating out takes time to learn to do safely and even when all precautions are made, accidental gluten ingestion is a very real possibility. Read the "Newbie 101... -
ARCHIVED Questions Re Shared Toaster Oven, Initialisms
GottaSki replied to KikiB's topic in Coping with Celiac Disease
Ta Da --- I'd failed many times too...I had been using the "reply" button of the last post I selected for multiquote. Add Reply at the bottom of the thread - finally - thanks all! -
ARCHIVED Shall I Insist On More Testing?!
GottaSki replied to Kate35's topic in Parents, Friends and Loved Ones of Celiacs
Mom's worry. I can tell you that I was diagnosed when my children were teens and young adult. They have all had much improved health by living gluten-free which enables them to enjoy their teens, college experience and beyond. They all had much different symptoms - some very serious and their mom (me) became very, very ill from not being diagnosed... -
ARCHIVED Shall I Insist On More Testing?!
GottaSki replied to Kate35's topic in Parents, Friends and Loved Ones of Celiacs
Certainly does indicate gluten may be the problem. I agree with Cara - negative with symptoms - remove gluten and watch him improve -
ARCHIVED Shall I Insist On More Testing?!
GottaSki replied to Kate35's topic in Parents, Friends and Loved Ones of Celiacs
I believe the current number for first degree relatives (siblings, children) of someone diagnosed with Celiac Disease is 1 in 22. Although my kids are 3 for 3 so we tend to follow your theory -
ARCHIVED Is Deaminated Gliadin Iga Of 45 (0-19) A Yes Or No?
GottaSki replied to ksue12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome! I'd add that it is time for another full celiac panel. If you haven't removed gluten at all, you may now have more positive tests. Good luck to you -
It is not a bad thing. I think it is wise to rule out possible allergies. IMO you should discuss any reactions to food that you have encountered and you should request food allergy testing be completed. Since a gluten allergy is different from the immune response in Celiac Disease I would certainly add gluten and wheat to the list of foods being tested...
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ARCHIVED Questions Re Shared Toaster Oven, Initialisms
GottaSki replied to KikiB's topic in Coping with Celiac Disease
Make a "bucket list" of your favorite gluten containing foods - I forgot to add glazed old fashioned donuts to my list while I was being diagnosed - I hadn't had a donut like that for quite a while prior to dx and I really don't miss gluten very often, but boy does that image of a freshly made glazed old fashioned jump into my head at the strangest times -
ARCHIVED Please Help :(
GottaSki replied to mammoth863's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It can take days, weeks, months and even years for some gluten related symptoms to subside. If you are planning to proceed with more celiac related blood tests, you need to continue eating gluten. The antibodies measured in these tests are created in response to gluten ingestion. Removing gluten makes the tests inaccurate and often negative. -
The What's For Dinner Tonight Chat
GottaSki replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
carrot fries - brilliant I've been making oodles of butternut squash fries which I prefer over sweet potato fries...I'm off to turn carrots into fries - Thanks! -
ARCHIVED Need Advice About Testing My Son, Feeling So Conflicted
GottaSki replied to megsybeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are welcome...but credit for the article goes to Mushroom too She's right - stay positive -
I guess I should be more specific - I juiced/smoothied with mostly greens and vegies with small amounts of fruit. All fruit would be a very bad idea and way too much sugar.