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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    You will be ready. Most Celiac Centers recommend 6 weeks for challenge. The University of Chicago recommends 12 weeks. Sounds like you'll be at 12 weeks by the time of your endo on the 25th. Also, you don't need to ingest gluten at every meal. One slice of gluten containing bread per day is plenty. Good Luck! Make sure your GI takes at least ...
  2. GottaSki
    The tTG IgA blood test measures the amount of antibodies in the blood, not necessarily the severity of damage caused by Celiac Disease. Some people with Celiac Disease test blood negative. In my case I was only mildly positive after decades of undiagnosed Celiac Disease with all biopsies positive with total villous atrophy. I am also "super-sensitive...
  3. GottaSki
    So sorry - unfortunately I know the frustration of doctors dismissing symptoms - had my symptoms dismissed for years. Glad you are ready and willing to go gluten-free. The transition can be very tough, but elimination is often the best test. Wishing you speedy healing
  4. GottaSki
    Your body has been thru a lot! It sounds like you are on the right track for eating the proper foods to allow for weight loss. Often the newly gluten-free body will not lose weight because it is still making up for the lack of nutrients it has experienced during undiagnosed Celiac Disease by remaining in starvation mode. Once your body heals and is properly...
  5. GottaSki
    Wow...can possibly help inflammation for me and allergies for my son - I just ordered some for us as well. Felt funny buying something that I avoid like the plague on a hike, but I'm in for another experiment that can possibly reduce chronic inflammation. Thanks for sharing!
  6. GottaSki
    Welcome! You should definitely get tested. In addition to the Full Celiac Blood Panel, you can ask your primary to order vitamin/mineral blood tests. Low nutrients are another strong indication of Celiac Disease. Celiac damages the small intestine which prevents proper breakdown and absorption of nutrients. These were run for me at diagnosis...
  7. GottaSki
    Without specific reaction to gluten it is hard to know if you are consuming small amounts of gluten and whether these small amounts of gluten are causing damage. I can tell you that you may still develop reactions - I became much more sensitive at about three months gluten-free and super sensitive by six months. If you don't develop any reaction,...
  8. GottaSki
    Mushroom is right...there is no way to know how long you have had active Celiac Disease. You may find that your acid reflux along with some minor aches, pains or digestive symptoms that were never enough to cause concern before disappear once you are gluten-free. My first indication of healing was my hair, nails and skin - my nails were brittle and peeled...
  9. GottaSki
    OMGoodness! Kahlua in pudding and pie? I've been going without alcohol of late, but do think I may need to try a touch of Kahlua in my Cocoa/Coconut Milk pudding like substance
  10. GottaSki
    Enemas can be helpful for severe constipation - of course care should be utilized. Coffee enemas are not used to remedy compaction - a very small quantity of organic coffee can be used to stimulate the liver to release toxins and was originally used to reduce pain, but this is a very different technique from using water to flush the colon. I had...
  11. GottaSki
    I don't have experience with the home test...others on this board have used them successfully. From what I understand the home test tests tTG IgA which is the most common screening test. You should request full celiac blood panel from your doctor. Yes, removing gluten for a week can reduce the amount of antibodies in the blood. This does not mean you...
  12. GottaSki
    Wow! Great Job. My now 17 year old son was Buzz's biggest fan for almost 5 years - wore his Buzz costume every day it wasn't in the wash for a good six months after his third Halloween. Have a wonderful party - your son is very lucky boy. "To Infinity and Beyond"
  13. GottaSki
    I took a peek at your other post listing your symptoms. Are you currently eating gluten? If so, I'd push for a full celiac blood panel. Perhaps print the list of symptoms you posted along with information about the various symptoms of Celiac Disease to take along to your next appointment. If you have already been mostly gluten-free for some time you...
  14. GottaSki
    Welcome! Just wanted to clarify - because this discussion would have confused me when I first learned that I had a positive blood test for Celiac - those with Celiac Disease can have: positive blood work / positive biopsy positive blood work / negative biopsy negative blood work / positive biopsy There are over 300 symptoms - many...
  15. GottaSki
    Welcome! All of the symptoms in your family are possibly Celiac - it presents in a large variety of ways. My kids symptoms are completely different from me and each other. You should be tested. For the blood tests to be accurate you need to be eating gluten - they measure the antibodies that are produced in reaction to gluten ingestion. Contact...
  16. GottaSki
    Welcome! There are others on this board that were diagnosed by biopsy with negative blood work. My own blood work was only weakly positive with total villous atrophy after decades of undiagnosed Celiac Disease. More research is needed to understand the reasons behind the variety of antibody levels in the blood of those with Celiac Disease. For Celiac...
  17. GottaSki
    Agreed. Not fair. On the glass half full side of the equation - your body is letting you know where gluten is so you can prevent further damage/complications. It will still get easier with time - the first year is the toughest. Hang in there.
  18. GottaSki
    I understand your frustration, but strongly encourage you to get a full celiac blood panel now. Once gluten free you lose the possibility of accurate blood tests and people often regret not getting the blood tests before going gluten-free. As time passes you may doubt the need to be gluten free - improvement can be slow - often you have improvement at first...
  19. GottaSki
    The combination of Celiac and recovering from child birth most certainly can do this. The Celiac causes your body to hord because it has not been absorbing nutrients. Once you start healing and absorbing nutrients, the weight will begin to come off &/or your tummy area will become smaller. Some of this can be caused by the hormonal shift from pregnancy...
  20. GottaSki
    It does take time. I lost about 30 pounds during my first year gluten-free - most of that was not in the first six months. Your body is recovering from not absorbing nutrients. Once you body is able to absorb nutrients for some time it will regulate and pounds will come of &/or you will shape will change and you will feel lighter/clothes will fit looser...
  21. GottaSki
    I don't think you are going to get any more information until your system has more time to heal from the salmonella infection/H Pylori treatment. Since gluten doesn't seem to bother you there is no problem continuing to eat it - in fact you should until you test for celiac again. If your symptoms don't improve within the next few months, I'd suggest you...
  22. GottaSki
    It could be a bit of both. Many of us find that minor glutenings from cross contamination become much more severe as time goes on. My guess is the problem is CC. One way to test would be by removing all dairy for at least a week - a month would be better and continue to dine out and eat gluten-free items prepared by others. If you are still having...
  23. GottaSki
    Really no side effects other than groggy - the groggy can be a little or a lot! They usually require someone to pick you up - if not during an appointment, they usually send written confirmation of your procedure that will spell out the need for a ride home. You may feel like going out after, but I would stock a simple meal or two in your frig in case...
  24. GottaSki
    Rice milk doesn't really taste like cow's milk, but to pour over milk and cook with it is a great substitution. You might want to grab one rice and one almond at the store. I have one son that prefers almond and one that prefers rice - no telling which you'll prefer.
  25. GottaSki
    Remember you are able to eat gluten filled bread - your son doesn't have that option. It does taste better toasted or in grilled cheese, but my teens and their gluten eating friends mow thru loaves with no complaints. My gluten eating husband switched a few years ago and toasts his even when packing a sandwich for lunch. I eat it both ways. Homemade...
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