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GottaSki

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by GottaSki

  1. The test you had run is a screening test to detect if you are producing antibodies that indicate Celiac Disease. Yours is negative, meaning you are not making the antibodies. A negative tTG IgA is good, but not enough to rule out Celiac Disease if you have symptoms &/or nutritional deficiencies. From what I understand pernicious anaemia means you...
  2. oh yes, we make chopped spinach, red onion, hard boiled egg and bacon salad too - never tried it warm - something new
  3. I like color in salad. Many of these items are among my current food intolerances, but I still add them for the family. yellow, orange, red bell peppers red onion carrots - we like grated celery - we like diced small broccoli corn - set a handful of frozen kernals out early or rinse with warm water apples - all variety grapes - red or black pears...
  4. Great! Sounds like you should begin improving - unfortunately it can take time - hang in there
  5. Different ranges, but yes mine were very low - my celiac doc was surprised by the severity of the damage during the first endo - my symptoms matched the endo, not the blood tests. Weak Positive Range (20-30) Positive Range (31 or greater) tTG IgA 23 Gliadin Peptide IgA 21 Gliadin Peptide IgG 35 3 months gluten-free tTG IgA 6 6 months gluten...
  6. Your body can not produce neurotransmitters without amino acids that you acquire from your food. Celiac Disease disrupts this process because your digestive system is not properly breaking down nor absorbing food. As your digestive system heals from removing gluten you should begin to absorb nutrients better which will allow your body to breakdown food...
  7. Welcome! The celiac blood tests are very confusing because they can have slightly different names for the same tests. You had the tTG IgA (Tissue Transglutaminase IgA) which is the typical/most common screening test for Celiac Disease. Below is the full celiac blood panel. The entire panel gives the best information available with regard to Celiac...
  8. You can have negative blood and positive biopsy. Given the positive Marsh 3B biopsies I'd imagine your GI will stick with Celiac Diagnosis. The most important comment you made to me is that your diet was mostly gluten-free before diagnosis. This can effect your blood work. While I understand the doubt the negative blood work has caused, I can tell you...
  9. She is absolutely wrong on two points - IgA deficiency does conflict with IgA test results just as IgG deficiency would skew IgG test results. The tiniest amount of gluten can absolutely cause a reaction in the body of someone with Celiac Disease, but would not absolutely cause a positive blood result - ESPECIALLY in someone that is IgA deficient. My Celiac...
  10. I was 43 - had symptoms (gastro, fatigue, joint weakness/pain, weight increase with healthy diet/major exercise and many more) my entire life. No doctor of any discipline ever suggested Celiac Disease. The symptoms worsened each decade until I was so ill that I had a couple hours out of bed at the most each day and was bloating after meals so much that...
  11. It is possible he got glutened or something else he ate is bothering him. Since he has never reacted to gluten before it is possible that your kitchen still needs some fine tuning. If you are preparing gluten items for the rest of the family, it is likely that he could become ill from cross contamination. The colander would also be my first guess, but...
  12. The biggest obstacles to removing gluten with a 7 year old is either the child or the parent. I'd suggest it is time to remove all gluten even if your son wasn't onboard - that you both are ready will make a difficult process much easier. I understand the desire for a diagnosis, but another endoscopy may yield more negative biopsies. With deficiencies...
  13. I actually enjoy going out to restaurants now - why? For the first year I tried to dine out - order everything perfectly - quiz the staff - researched every restaurant - etc. Eventually I had so many food intolerances along with severe cc reactions I was not able to eat out anywhere safely. Once there was no possibility to eat out without getting sick...
  14. Certainly no one can decide for you that you need to live gluten-free. The positive blood tests indicate Celiac Disease. It is possible that you are one of the very lucky few that discover Celiac Disease while still in it's early stage - it is rare and I can only tell you that if I tested positive for Celiac Disease at 21 - the past 26 years would have...
  15. Just makes me angry that we have to fight for tests to rule out a disease that has so many varied symptoms - I was dismissed by so many doctors for decades there were years that I didn't even try to get an answer. Makes it very difficult to keep fighting for answers - yet we need to. Personally, I'd switch gastroenterologist before having a colonoscopy...
  16. Positive Celiac Biopsy = Celiac Disease. Glad you are improving gluten-free! Stick with it.
  17. Hi Troy! Tonsils out here. I did have positive antibody tests, BUT they were only weakly or moderately positive when diagnosed while I had severe to total villous atrophy. My antibody tests were low when compared with damage - did having my tonsils out at age 7 effect the amount of antibodies produced? No idea -- I did learn with hindsight that...
  18. Just had to add a positive review in here. I don't currently eat it because I am grain free, but my family some gluten-free, some not - all use it regularly. When first gluten free I was buying many various flours for a variety of gluten-free recipes. Eventually we reverted back to all our gluten filled recipes by replacing traditional flour with BRM...
  19. That stinks Completely understand - I sure wish you got better news today Hang in there! It will get better. It will get better. It will get better. Can you tell I read 'The Little Engine That Could' a few too many times over the years?
  20. I am so sorry - unfortunately that was the case for me as well - very frustrating when docs are telling you all you have to do is remove gluten. For those of us that went undiagnosed for years - decades in my case - removing gluten is not enough to heal the damage. The only improvement I had during my first three months gluten-free was slightly less bloating...
  21. While it is important to make sure you have everything tested...you also need to remember that it took a long time to for Celiac Disease to cause damage, so it can some time to heal. Celebrate even very small improvements - sometimes those are all we have during the healing. It is great that you are very strict with your gluten-free diet - if you don...
  22. Would be a very good idea to get all your nutrients checked - you definitely need to supplement to get your D up and likely are missing other important nutrients. Removing all gluten will eventually allow you to absorb the nutrients your body needs - until then supplementation is important! My celiac doc recommends these blood tests - both at diagnosis...
  23. Forgot to add Thyroid Antibody Tests to rule out Hashimoto Thyroiditis.
  24. Welcome! THE BIGGEST problem with doctors and most information related to Celiac Disease online/in the media is that you have to be underweight with diarrhea to be considered for Celiac Disease. FALSE! FALSE! FALSE! Sorry for the rant, but I went undiagnosed for 43 years because of this misinformation throughout the medical community. Many...
  25. Ok...I read the label. Didn't understand it was a flavored powder. If you are set on this product, I'd contact the manufacturer to confirm all the ingredients are gluten free and whether it is manufactured on equipment shared with items that do contain gluten. Citric acid can be hard on the stomach and healing digestive system. So if it bothering your...
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