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Everything posted by GottaSki
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ARCHIVED Does This Look Like Dh To You?
GottaSki replied to jmb002's topic in Dermatitis Herpetiformis
Oh my goodness - Jenn, your description is exactly the rash I had for four months just prior to celiac diagnosis. Started with a section on my upper stomach just below the bra line - insanely itchy - patches of red welts - very much looked like hives - spread all over my stomach/chest, then had patches on legs, arms and scalp. Improved with a med primary... -
ARCHIVED Curious About What Vitamins Are You Deficient?
GottaSki replied to roxieb73's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At Dx I was low in B1 and B12 - extremely low in D, K, Zinc and Copper. Currently I am not deficient in any nutrients - took just over two years gluten-free plus supplementation to get to normal ranges. For decades I had very low iron - it became normal when I stopped menstruating at 37. Anemia/iron supplementation was the only diagnosis I received from... -
ARCHIVED One Positive Biopsy, Two Negative And Two Negative Blood Tests
GottaSki replied to Kar1972's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe your dietary response confirms the 1999 positive biopsy. The wonderful 6 months gluten free FAR outweighs the negative biopsy in 2008. I am curious: Was there a report from the 1999 endoscopy or simply a reference to a positive celiac biopsy? Did your 1999 medical history reference any celiac blood work? Was the negative blood work... -
ARCHIVED Joint Pain Caused By Gluten Intolerance?
GottaSki replied to spirit-walk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You mention allergy testing. Have you had a full celiac blood panel? I agree you should remove all gluten for at least three months to see if your joint pain improves, but think it wise that you get the full celiac panel done first. Once you remove gluten you lose your best opportunity for accurate celiac blood work. With several possible symptoms... -
ARCHIVED Other Tests To Do
GottaSki replied to parmeisan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree - give it three months or more gluten-free before you decide whether a challenge is a good idea. Removing gluten for a sufficient amount of time is often the best test. Good Luck -
ARCHIVED What Should I Cut Out Before Egd?
GottaSki replied to user853's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Glad you got your results and that you are now certain that you must remove gluten. Even if you once again have periods of time that some symptoms get worse - they will improve/disappear with time gluten free. And you are right - it is good news that the damage was minimal/minor and will hopefully speed healing time. Thanks for sharing your results... -
ARCHIVED Blood Tests......what Is Correct?
GottaSki replied to bobtom's topic in Parents, Friends and Loved Ones of Celiacs
Gliadin is one of two proteins in gluten. Upon digestion proteins are broken down into peptides. A positive DGP IgA shows that antibodies are being created to fight these peptides specific to gluten. I don't know of anything other than a problem with gluten being the cause of a positive DGP IgA. Anyone else? -
ARCHIVED How To Deal With Hypocrite Mother
GottaSki replied to Persei V.'s topic in Coping with Celiac Disease
Perhaps your mother just does not understand how careful you need to be? I found this article that explains it very clearly - maybe you can share it with her to start a conversation at a time that you are feeling good, rather than only discussing when you are feeling poorly - let her know that whether or not it is true, you feel she is dismissing the... -
We like Bob's Red Mill Pizza Mix - it makes enough for two pizzas, so I usually make one and save the second dough ball in the fridge for up to a week to make another. I'd second the suggestion to stick with a mix rather than a recipe in these early days - gluten free baking can be very tricky for even accomplished bakers.
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ARCHIVED Allergic To Scented Candles?
GottaSki replied to *lee-lee*'s topic in Introduce Yourself / Share Stuff
We use many types of birthday candles - the cheapest plain white, simple colored, the tall skinny curly type and many more. Honestly, I never thought that they could contain gluten and we have made hundreds of gluten-free cakes over the past years without any of the five people in my family with Celiac having any problem. Does anyone know if birthday... -
Gracie is very happy to have found her family - she will learn to stay off counters - out of the blue our little princess started counter cruising, didn't take long to train her that it was not allowed -- we finally figured out she was looking for water that was more convenient &/or more fresh than her water bowl - Shelby is fascinated with water - she...
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ARCHIVED Blood Tests......what Is Correct?
GottaSki replied to bobtom's topic in Parents, Friends and Loved Ones of Celiacs
From what I understand that your son's high DGP IgA indicates Celiac Disease even if the tTG IgA is currently negative. Here is one journal article that talks about DGP IgA as a useful tool in children because the DGP antibodies may show up before tTG antibodies in blood and is better at monitoring compliance once gluten free. Open Original Shared Link... -
ARCHIVED Vitamins Not Digesting
GottaSki replied to Newbee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are liquid vitamins - they can be quite pricey, but if you aren't absorbing the capsules it might be a good idea to try liquid. Also I know B vitamins are available in sublingual (dissolves under the tongue) form, perhaps other vitamins are available sublingually as well. Can you add the capsules you have to a smoothie? If there are too many it probably... -
ARCHIVED Could My Terrible Beer Hangovers Indicate A Wheat/gluten Allergy?
GottaSki replied to smileen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What if it is a gluten problem? Reactions can be very confusing - I don't think it safe to dismiss getting tested because you don't react as strongly to certain foods. There are people with Celiac Disease that have little or no noticeable reaction to gluten, but the intestinal damage is happening. After it is removed they often become highly intolerant... -
ARCHIVED The "holidays Are Coming"
GottaSki replied to 1desperateladysaved's topic in Super Sensitive People
Traditional Thanksgiving dinner is mostly gluten free. The only thing we had to replace was stuffing - I replaced traditional stuffing with two choices: cornbread stuffing and wild rice cranberry stuffing - no complaints. Oh and we changed pie crust to rice flour crust and the gluten-free flour in the gravy. Not much changed at all - my gluten eating... -
ARCHIVED School Activities
GottaSki replied to come dance with me's topic in Parents, Friends and Loved Ones of Celiacs
I'm sorry that is awful - staff? Goodness gracious - can you bring your concerns the Principal? That's not just rude, it is potentially dangerous for your daughter. -
ARCHIVED My First Post, New To Intolerance And Still In Distress
GottaSki replied to AnnJay's topic in Coping with Celiac Disease
Welcome AnnJay! Wasn't sure if something was clear to you because celiac testing is so very frustrating - but keeping gluten in the diet before endoscopy gives the BEST CHANCE for accurate biopsy. This does not mean that it will not be beneficial for you to have one done. It is possible to have a biopsy that is positive shortly after removing gluten... -
ARCHIVED Deli Meat
GottaSki replied to GottaSki's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you all! Very nice to have a jump start list. Concern started today - teen son really wanted sliced turkey so ran up to the store (my teens generally don't go to the store without being asked/bribed to do so) and bought Jennie-O because he thought their products were all gluten free. A quick search of their gluten free product list didn't... -
My family has been happy with leftover dinner meat to make sandwiches for quite awhile, but there is a bit of repetitive grumbling in my home about never having deli meat anymore. So what is your favorite gluten free deli meat? I'm looking for packaged meats in particular, simply because I don't feel like hitting the deli counter until I can enjoy processed...
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ARCHIVED The "holidays Are Coming"
GottaSki replied to 1desperateladysaved's topic in Super Sensitive People
I've done it both ways. We have huge family meals here whenever possible -- When I was first gluten-free everyone brought dishes to share. We had a buffet table ready to for full meal of items we were serving and then a card table set up for their gluten filled items so that they were completely separate (kinda reverse of the norm of separating the gluten... -
ARCHIVED Last Ditch Rant... I Need Serious Help
GottaSki replied to Littllemel's topic in Food Intolerance & Leaky Gut
You are not alone. My first year post celiac diagnosis was horrid. For over two years I kept a detailed food log while removing individual foods or groups of foods. I had some minor victories, but no major nor consistent improvement. I see at one point you were eating meat, vegies and fruit. Did you ever eat just these consistently and if so was... -
ARCHIVED Am I Reacting To Rice?
GottaSki replied to dinosinclair's topic in Food Intolerance & Leaky Gut
Just wanted to add...you should definitely trial a food (sunflower seeds) before giving it up -- many people have no problem with seeds. Just because you had a similar reaction to peanuts (a legume) is no reason to avoid nuts or seeds without reason - they are very healthful foods! -
ARCHIVED Six Month Followup
GottaSki replied to Chuck1004's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Chuck- I completely understand why you would question the dx without symptoms. It would be hard to not question it. I can only tell you how much damage gluten can do to a person with Celiac Disease - from this side of the fence you are fortunate to avoid the complications of Celiac. I have read that some folks that where symptom free prior to diagnosis... -
ARCHIVED Am I Reacting To Rice?
GottaSki replied to dinosinclair's topic in Food Intolerance & Leaky Gut
Peanuts were gluten free and reaction was completely different from my gluten reaction. I've NEVER tested positive on any skin, IgE or IgG blood tests for food -- yet I have severe reactions. Part of the reason this is so difficult to figure out. Once gluten-free I was eating quinoa with peas and red peppers quite often at work and regularly had peanuts... -
ARCHIVED Six Month Followup
GottaSki replied to Chuck1004's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can tell you that my ALT was only slightly elevated at diagnosis - low 40s with 0-35 range. At six months it had not lowered, but was in the twenties after a year and has remained there for the past two years. My tTG IgA had dropped from positive to 6 (3 months) and 3 (6 months). From what I understand the elevated liver enzymes is your liver working...