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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    One biopsy is not enough. Perhaps your GI does not have a lot of experience looking specifically for Celiac Diesease? Positive blood test + improvement on gluten-free diet = Celiac Disease. Do you have your blood test results? Do you know if you had a full Celiac panel? Were your vitamins/minerals besides iron tested? Doctors are practicing...
  2. GottaSki
    OP said that the chicken was fresh, not frozen - so it wouldn't have had the ingredients I listed....therefore the chicken he ate was gluten-free.
  3. GottaSki
    Hmmmm.....have you checked your personal care items for gluten - shampoo, soap, lotion, toothpaste? It sounds like your are reacting to something else -- I know it can be tough to figure out...hang in there...it does get easier.
  4. GottaSki
    hmmm...I just googled spartan chicken breast and found those ingredients...if it was fresh I'd assume there are no additives. What else did you eat with the meal? or earlier in the day that you may have had a delayed reaction?
  5. GottaSki
    I found that they were gluten free. Here are the ingredients: Chicken Breast Meat with Rib Meat, Water, Contains 2% or Less of Sea Salt, Modified Food Starch, Sodium Phosphates, Chicken Flavor (Salt, Chicken Broth, Natural Flavors), Flavoring. I'd guess you are reacting to something besides gluten...like with the bean soup earlier this week. Might...
  6. GottaSki
    I also have had weak/many twisted ankles - always thought I was just klutzy - interesting thing is I had rubber knees my entire life - they would dislocate often - even get knocked out by my husband's legs bumping mine while sleeping -- that hasn't happened in the past couple years! I'd lean toward the tendons being effected by the mal-aborption of nutrients...
  7. GottaSki
    Have you tried pineapple separately from the edible arrangement piece dipped in chocolate? I've lost pineapple and citrus while healing - never had a problem with pineapple before I went gluten-free. You may discover a few things start bothering you while healing. You really didn't make a mistake, your digestive track is very sensitive right now and it...
  8. GottaSki
    Good to know Perhaps it was just our neighborhood Carl's - haven't tried any others in the past two years because of the bad experiences...my teens will be very happy to hear they can try again! Thanks!
  9. GottaSki
    He won't miss one little hair
  10. GottaSki

    ARCHIVED How To Trust Doctors Again?

    GottaSki replied to kittty's topic in Doctors

    I miss Dr. Harmon - he was at UCSD before he moved to UCLA - I like his replacement, but he remains the best Celiac Doctor (IMHO). You are lucky to have him! Dr. Harmon is the doctor that restored my faith in physicians. He takes his time and considers everything his patient says - and is extremely knowledgeable and curious to boot -- a welcome relief...
  11. GottaSki
    Hello! Not sure where in the US you are headed - just re-read your post...maybe someone else can help with eastern states. I'm in California and the best bets are In & Out and Wendy's. McDonalds - problem with fries, never tried their shakes (I have ordered their salad safely as it is prepared offsite). Carl's Jr. - we went there a few...
  12. GottaSki
    Clone him - quick
  13. GottaSki
    Here is the link to find Udi's near you: Open Original Shared Link I check it every so often as more and more stores seem to be carrying it and the price can vary between stores - especially when they put it on special.
  14. GottaSki
    Goodness gracious -- it is beyond frustrating that we have to pay so much for so little -- no other profession gets paid so handsomely to practice If my husband built a house and said "Your house is all finished -- oh, I forgot to install a roof" do you think he'd get paid? Don't blame you for being angry - I'm angry for you! beachbirdie...
  15. GottaSki
    All in your head? Nope - all in your gut. Glad to hear that you have had improvement with digestive issues since going gluten-free, sorry to hear you have not had improvement in other areas - is it possible you have food intolerances that are contributing to your other symptoms? Have you tried removing Dairy, Legumes, Nightshades (tomato, potato...
  16. GottaSki
    Welcome! Happy to hear you have a great doctor - not enough doctors understand the havoc gluten can play in the body. Since you are improving and ready to stay gluten-free, I'd say there is no need for further testing. It can be very tough to go back on gluten for testing as it is recommended that you eat substantial amounts for at least three months...
  17. GottaSki
    Hi Lolli- So sorry you are having such a rough time. Just wanted to second what bartfull posted. We have all posted our frustrations a time or two or maybe ten! Feel free to vent - there is always someone popping on that will try to help alleviate frustration or answer questions. You will improve if you keep at it - try to notice and celebrate any...
  18. GottaSki
    Not sure what you have tried making him to match these foods. "chicken nuggets" from pork...rice flour works great to make the coating chocolate chip pancakes = gluten-free bisquick is easy to use and add choc chips to cinnamon toast = try it with udi's white bread (there are alot of gluten-free breads out there that taste like drywall -- udi...
  19. GottaSki
    My first thought was not that you are crazy, but that a GI doc that is not familiar with Celiac's connection to DH may not be the best one to take the biopsies of your small intestine in the first place. It is amazing - sad, but true - that all gastroenterologists are not well versed in Celiac Disease - we had a pediatric GI tell me that my son could not...
  20. GottaSki
    Ditto - minimum of three months on significant gluten. You may have a tough time getting gluten into you now that you have been gluten-free for over 7 months -- if your symptoms return or become worse, I'd say you have your answer that you can not eat gluten and will have to weigh the possibility of getting very sick and/or damaging your intestines against...
  21. GottaSki
    When I first went gluten-free, I had three gluten eaters (teens later went gluten-free). It worked fine. I got small round green dot stickers and we put them on everything that was gluten-free -- eventually almost everything in the fridge/pantry had green stickers, so we then decided that the gluten eaters would only have gluten bread and cereal in the...
  22. GottaSki
    That is a tough question to answer. Maybe. It depends on a lot of factors. Some Celiacs are able to heal by removing gluten only; Others are able to heal by eating mostly whole/non-processed foods; Some have to remove other intolerances in order to heal and are able to add those foods back into their diet after healing. Wish I could give a clear cut answer...
  23. GottaSki
    Both blood and biopsy can be negative. Two samples is not very many. My Celiac GI takes 6, some say 3 is enough. Regardless, if you have symptoms that led you to Celiac testing, it seems the next step is to completely remove gluten for at least three months. If it turns out you improve on gluten-free trial, you have your answer - don't eat gluten...
  24. GottaSki
    Welcome! I was curious so I found the ingredients online: Great Northern Beans, Potatoes, Modified Corn Starch, Natural And Artificial Flavor, Hydrolyzed Soy Protein, Onions, Salt, Carrots, Whey (from Milk), Tomatoes, Navy Beans, Celery, Maltodextrin, Palm Oil, Sherry Wine Flavor, Garlic, Parsley, Vinegar, Sodium Caseinate (from Milk), Turmeric, Paprika...
  25. GottaSki
    Great thread! I'm a native San Diegan - San Diego is becoming much more gluten friendly - my daughter lives in Santa Rosa (hour north of San Francisco) - our family finds that the entire Bay Area is much more gluten friendly/knowledgeable in comparison with San Diego.
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