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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Just read adalaide's post and thought I'd add a very easy treat: Cocoa Pebbles Treats -- Rice Crispies have gluten (there is a new gluten free rice crispie, but my kids like the pebbles treats much better) Cocoa Pebbles (recipe on the box) Kraft Marshmallows Butter Optional: Cinnamon Tons of sugar in these, but they are one of my teens...
  2. GottaSki
    Thank you GFAustinite- Refractory Celiac is a possibility -- confused because I have had two windows of great health over the past years since Celiac Diagnosis. A future step may be the meds for refractory, but have avoided thus far as I have horrid reactions/side effects/hyper sensitivity to nearly every medication. Hi Laura- No, I don't catch...
  3. GottaSki
    Being diagnosed with Celiac Disease rough and the learning curve is very tough - no matter what the age. Transitioning to gluten-free is not easy -- there will be many days of frustration and even tears. In time your family will find replacements to all of her favorite foods. For now I'd suggest you figure out how to make some of her favorite meals gluten...
  4. GottaSki
    Others have given all excellent advice -- one other thing that helped my extreme nausea during my pregnancies was wrist bands you can purchase at the pharmacy -- they are called "seabands" and are made to prevent sea sickness by putting pressure on a point inside your wrist. I wore them 24 hours a day once my husband brought them home - didn't prevent all...
  5. GottaSki
    Perhaps you need to be seriously gluten free for a longer period of time to have your gut heal and allow you to process other foods better? If that doesn't bring improvement I'd suggest strict elimination diet/symptom log to identify any food intolerance you may have. It can be confusing trying to weed out other intolerance one at a time.
  6. GottaSki
    As far as I have read, the jury is still out with regard to a genetic link in gluten intolerance -- someone else may have better intel with regard to the genetic link to intolerance.
  7. GottaSki
    I too have lost my Spring and Summer - it sucks! I know all to well how hard it is to have your life highjacked by a malfunctioning body - the only thing I can suggest is be very kind to yourself, you have been through a lot -- you may still be healing from surgery and it often takes a long time to heal from undiagnosed celiac disease. Take it an hour...
  8. GottaSki
    Thanks all! We've ruled out most of those...but I will check the list closely again. Bubba's Mom - My doc also suspected SIBO (breath test negative, but that happens often) so I went from my already restrictive diet to GAPS intro along with antibiotics followed by strong probiotics - no change thus far. Happy to hear you have had some healing...
  9. GottaSki
    Hi Laura- Only had repeated full blood counts - one out of maybe five over the past few years showed low lympocytes, but all others were "normal". I'll look into other blood tests for immunodeficiencies. Thanks for the suggestion
  10. GottaSki
    Frito Lay's Website sites two types of products: Gluten-Free Products and Products Not Containing Gluten Ingredients - these are made on equipment that also make products containing gluten. Your options could be limited depending on your sensitivity to items made on shared equipment.
  11. GottaSki
    What else can cause Celiac damage to Villi? I was diagnosed three years ago with Marsh Stage 3B and 3C. At a year completely gluten-free I had some digestive improvement, but still had severely damaged villi. This past year I removed every food intolerance via a very strict elimination diet/symptom log - had remarkable improvement was healthier...
  12. GottaSki
    Negative blood work does not mean that you do not have Celiac Disease. If you have the genes, the symptoms along with improved symptoms while gluten free - you have your answer -- stay gluten free.
  13. GottaSki
    Nacho flavored Doritos are NOT gluten-free! Here is a list of their snacks that are: Open Original Shared Link
  14. GottaSki
    Yes, for Celiac Disease you must have a celiac gene from birth, but the disease can be triggered at anytime for a variety of reasons. I was diagnosed at 42 but had obvious symptoms from my early 20s along with some symptoms my entire life that weren't apparent until I was diagnosed and learned about celiac.
  15. GottaSki
    I'd go with #5 plus B, D, K, Copper, Feritin, Iron and Zinc.
  16. GottaSki
    So sorry - no fun at all, but unfortunately very common Perhaps it was the drink, but I'd guess cross contamination in the kitchen and/or gluten in seasonings on the salmon and potatoes or salad dressing. Could be a bit of each. No smacking of the head icon needed -- what we need is for restaurants to become educated about gluten handling issues...
  17. GottaSki
    I had many of the same symptoms as you when I was diagnosed with Celiac - after going gluten free in 2009 I had many other food intolerances become apparent - took a long time and a very strict elimination diet to weed them all out. First things first though -- a negative celiac panel does not rule out Celiac. My original celiac panel came back...
  18. GottaSki
    Hang in there - this is hard and I will pray for you and your family! It is hard, but it will get much easier with time - until then you have found the perfect place to vent and get great answers to all the questions that will be bouncing around during transition to gluten-free and beyond
  19. GottaSki
    Had to respond because I laughed out loud -- I have so many intolerances that on long bike rides I do bring a chicken thigh in my jersey -- I've gotten some strange looks. Gu packs are gluten free and give a great boost. Pretty sure they are rice free, but you'd need to check. Good Luck! PS Chocolate Milk is a great to help muscle recover after...
  20. GottaSki
    IF you have Celiac Disease - removing gluten brings health - priceless. At first you will have a lot of frustrating days thinking of what you can not have -- as time goes on you will find replacements for all the things gluten. The learning curve is tough, but there is nothing our family has not replicated or replaced - in fact some foods taste better...
  21. GottaSki
    That is wonderful news! I am hopeful for your continued improvement -- which in turn will bring more hope to all of us
  22. GottaSki
    Hip-hip-hooray! Improvement is wonderful to hear and very encouraging for others - especially when it happens to a little one with a great Mom. Congratulations...well done...keep up the great work
  23. GottaSki
    Ditto all of the others comments....no need to mention and there is always someone happy to eat my portion! I did have one bride insist on ordering me a gluten free meal because she went thru the whole diagnosis learning curve with me -- but I still brought my own food -- just in case as I have had a some great experiences with caterers and some horrid...
  24. GottaSki
    It took 42 years of mis-diagnosis before I learned about celiac disease and gluten free -- had I known I had celiac disease and carried a pair plus one celiac gene before my kids were born I would have kept them gluten free in our home and dealt with any problems of them ingesting gluten outside the home if they arose. Would love to be able to re-do...
  25. GottaSki
    Thanks for sharing your great news. Welcome Back and Congratulations!
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