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KaitiUSA

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Everything posted by KaitiUSA

  1. KaitiUSA
    Yes, it is very encouraging to see even the slightest amount of positive change. It took me many months to feel better. Looks like he is definitely on the right track
  2. KaitiUSA
    I used to love Olive Garden but they really are not celiac friendly so I don't go there now.
  3. KaitiUSA
    I use Cascade or Seventh Generation and they both are gluten free.
  4. KaitiUSA
    Yep, Richard is right.. Just look for wheat,rye,barley, oats....if none is clearly stated then it is ok...they will not hide anything:)
  5. KaitiUSA
    No, oat bran is not safe
  6. KaitiUSA
    I would also hesitate to encourage oats because a portion of celiacs do get intestinal damage from pure oats and all the oats in the US have had problems with contamination.
  7. KaitiUSA
    Every slip up causes damage, even if you do not get symptoms. Some people just do not get symptoms but others can feel it. Some people get more sensitive to gluten(I certainly did) but others do not and some never get symptoms, some get symptoms with large amounts only, some get sick from the smallest amount so it all varies from person to person. They...
  8. KaitiUSA
    This brand has been known to clearly identify gluten and I consider them a celiac friendly brand.
  9. KaitiUSA
    A moderator approves the post and pins it in the proper section. If you did not post it in the section we feel is correct a moderator can move it to the section they feel is the best for the topic and pin it and thats why it will ask you to wait while it take you to that post. Spam we will not pin and and anything obscene we will not pin. Until a moderator...
  10. KaitiUSA
    Sorry to hear you have been feeling bad...since you know you have a problem with it and see even some improvement on the diet what is keeping you from following it? You have nothing to lose and everything to gain by it. Even if it's just an intolerance and not celiac you definitely seem to have an issue...I hope you get feeling better here soon
  11. KaitiUSA
    Ok well on Thanksgiving night I went to my aunts house. Some of my cousins and I were playing a game and while we were my younger cousin who is like 6 was behind me. Unknown to me at the time she was spraying some hairspray conditioner stuff in her hair right behind me. She brought it over to where I could see her and started to spray it again so I told her...
  12. KaitiUSA
    Welcome to the board Your sympoms sound like ones that can be associated with celiac. Also, the EMA is a pretty specific test so that being high my red flag just went up. Also, biopsies can only rule celiac in but not out...if you have beginning stages with little or no damage or sporadic damage they can easily miss it. Was the full panel run on...
  13. KaitiUSA
    First, there are no degrees of celiac. Some people may react to it and some may not but in both cases the damage is being done even with that small amount of gluten. I get very bad reactions even to the smallest amount but I know people that don't have any symptoms. You have celiac or you don't and if you have it you have to be 100% gluten free. The...
  14. KaitiUSA
    I like the more natural kinds of brands with not so many chemicals added but I do use alot of the Dove brand and have not had a problem with it at all.
  15. KaitiUSA
    Oats are not safe in the US because they are contaminated with wheat. Quaker might as well = wheat. A small portion of celiacs even react to the protein in even pure oats called avenin. If you do try oats make sure they are pure. Pure= grown by themselves, transported by themselves, in a facility by themselves....no chance for contamination. Keep in...
  16. KaitiUSA
    I ditto Tiffany. The total serum IgA needs to be done because that rules out IgA deficiency and if you have IgA deficiency then those tests were not accurate.
  17. KaitiUSA
    Do you know which tests were run for celiac? Celiac has a separate panel that needs to be done but all of them really need to be done to see the full picture...and some are more accurate than others. There can be false negatives especially if it has just been triggered. If you plan on getting more testing for celiac you need to wait to go gluten free...
  18. KaitiUSA
    No, you have to be on gluten in order to get testing...they use these tests to monitor compliance with the diet. The doctor sounds like he made something up thinking he could get away with it.
  19. KaitiUSA
    I am sorry to hear that. I am not sure what his mind set is but he may be feeling guilty that she has it and wants to be a hero of some sort. The reason I said that is because when I was first diagnosed my dad would let me have stuff I was not supposed to have either. If I was good following the diet I figured that eating something once in a while would not...
  20. KaitiUSA
    Oats in the US are contaminated with wheat so are not ok. Pure oats-meaning ones that are grow separately, transported separately, and in a facility of their own are tolerated by some celiacs but a small portion do react to the protein called avenin. I stay away from oats and would not recommend them at all.
  21. KaitiUSA
    Yep, I did not change my products at first because I really had no clue. I was improving but not really like I should have been. I then found out about my products and all that stuff and it all started to come together. I got all gluten free products from perfumes to hairsprays to makeup to cleaners and more...I can't tell you how much improvement I have...
  22. KaitiUSA
    If they did a biopsy and said that it sure sounds like celiac. I am curious to why they never said celiac though. Were they specifically looking for celiac when they did the biopsy. Obviously, by what you are saying it sounds like the biopsy came back showing damage which then means she should be on the diet 100%. A positive biopsy has been the "gold standard...
  23. KaitiUSA
    I get mine at the local health food store....they are in with the rest of the supplement by the brand(Enzymatic Therapy)-That brand is known for a good quality.
  24. KaitiUSA
    Alot of specialty brands have gluten free foods processed in the same facilities as wheat but have machines cleaned in between. Not many brands you will find are dedicated to 100% gluten free facilities. I am sensitive and I eat products that are gluten free but processed in facilities that also process wheat and have not had a problem with many, if any...
  25. KaitiUSA
    I find they help the digestion process alot. I still take supplements to try to keep my immune system high and always try to stay one step ahead of the game I use alot of the Enzymatic Therapy brand-I found this to be a great brand-I also use their probiotics, sublingual B12's and more. If you are accidentally glutened I would think they would...
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