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pixiegirl

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Latest Celiac Disease News & Research:

Everything posted by pixiegirl

  1. pixiegirl
    I use to be able to drink 3 glasses of wine over the course of a meal and feel fine. Now 1 glass and I get drunk faster and feel terrible the next day. My theory is that my gut is very leaky still (I have other digestive issues as well) and that the minute I have a drink instead of being absorbed thru my stomach at a "normal" pace it just leaks right into...
  2. pixiegirl
    I love Anna's. I've tried others and they either don't bake right or taste awful. I pour Anna's in my very old bread maker and in 4 hours its done perfectly every time. Susan
  3. pixiegirl
    Well now that Celiac is being diagnosed more readily I'm sure the medical communtiy will grapple with how and when to say who has it and who doesn't. For me the Gold Standard was the diet. I never heard of Celiac but due to all my GI issues my Dr. tested for it. Immediately after taking the test I went gluten free and in 2 days I felt wonderful, my runs...
  4. pixiegirl
    Hi Cathy, well certainly everyone is different and I wasn't referring to any single post but it seems everyone was assuming the "pill" would just mask symptoms so I wanted to clairfy what the original poster said (or at least how I understood it) . But you've shown that everyone has a different take. Makes the world interesting! I too started reacting...
  5. pixiegirl
    I think it works wonderfully! I use it for colds, flu, menopause, it has a wide range of uses. It has its limits, like most other types of medicine (including western). I think the trick is with all the various forms of healing out there is to find what works with what. I heard Andrew Weil once say this sort of thing. He said if I break my arm or...
  6. pixiegirl
    I think some of you have mis understood the question, or at least how I understand it is this: Lets pretend there was a pill that really did cure you, then what? Or for those of you that keep saying its just a treatment (remember we are pretending here)... lets say they figure out a way thru stem cells or gene splicing or whatever to cure Celiac, then what...
  7. pixiegirl
    If in fact your intolerances are allergy related then you can do damage there as well, if you continue to eat an item that you are allergic to, your body continues to mount an allergic response to it each time you consume it, often this response gets more severe each time you consume the food, leading to more allergies and more serious allergy. I think...
  8. pixiegirl
    I believe Stephanies on Newbury Street has some gluten-free items. I've also eaten at Grill 23 and Capitol Grill without any problems. Turner Fisheries as well. PF Changs. I do fairly well when I'm in Boston. And I've never called elephant Walk ahead of time and never had any problems. Susan
  9. pixiegirl
    I have EGID in my stomach, and large and small intestines. I was diagnosed via endoscopy. I had allergy tests and an elimination diet and I take Gastrocrom prior to eating. I'm doing well for now. I avoid foods that cause me problems. The Gastrocrom really helped me turn the corner and without it I don't do well at all. I believe on the scale of...
  10. pixiegirl
    You get diagnosed with biopsies done by endoscopy and colonoscopy. At first I could eat very little but it seemed as I healed my gut up I was able to tolerate more. I can only have tomatoes in small amounts, no peanuts, no squash and of course no gluten. Things like fresh fruits and veggies I can only have in small amounts but when they are cooked I...
  11. pixiegirl
    Ahh here I go, always one to take the other side ... well not really... it does sound like the bride is out of control but thats certainly not unusual for some weddings... its a stressful time and sadly people put such focus (financial, mental, emotional) on one single day, in the entire context of our lifetimes or one's marriage its seems a little silly...
  12. pixiegirl
    i have mixed feelings about the nut free school issue, mostly at the elementary level if there are children with peanut allergies like my daughter's then I support it. My daughter had reactions almost every day in her elementary school, they would give her benadryl and then she would sleep thru the afternoon (whether in class or at home). It got to the...
  13. pixiegirl
    I really don't know why that is with bee stings and peanuts... in elementary schools peanut better is virtually everywhere... kids eat and touch stuff. But my daughter reacts in airplanes when they pass out peanuts. She is very sensitive now. Susan
  14. pixiegirl
    I posted in the EG topic about this. Both my daughter and I have peanut allergies, mine is mild hers is severe. My daughter is also allergic to tree nuts and peas (legumes like peanuts). We both carry epi pens. There is a ton of info on the net about peanut allergies, its certainly well documented and studied... its not an allergy that is commonly...
  15. pixiegirl
    Ok it seems like you all are cooking the stuffing in a pan of some sort (either oven or stove top) and mine was inside the bird, which of course cooked for hours and I think thats what broke the stuffing down. I will try some in a baking dish in the oven but I still want to stuff the bird and I'm thinking of a rice/sausage stuffing for that. I've never...
  16. pixiegirl
    what is hydroxizine and is it as effective as an epi? Susan
  17. pixiegirl
    Both my daughter and I have peanut allergies.. we both carry epi pens even though my allergy isn't in the "anaphalactic" area with blood tests its really hard to tell and most important (to me at least) is that peanut allergies often become worse with each exposure, so you don't really know if the next exposure will be the one you need the epi for. My daughters...
  18. pixiegirl
    Hi Mandy, I grew up in Michigan and I always tell everyone I've had my life time quota of snow while growing up. I bet I hate winter more then you do, with a passion, believe me. I'm like you with the temp, I'm ok until about 50 ish and below that I really can't get warm. I have a dog that I have to walk at least a couple times a day (the other...
  19. pixiegirl
    Hi I'm sorry I'm late on this topic but I'm only a part time poster (too busy with work stuff). I have eosinophilic gastroenteritis. Its more common in children (or at least more diagnosed) so initially I was very frustrated with trying to get info for adults, so you should have a somewhat easier time finding info for kids. I was diagnosed with Celiac...
  20. pixiegirl
    Last year was my first year making gluten-free stuffing. I used gluten-free bread and made corn bread and cut that into cubes and dried it. Well it wasn't so good, the cornbread turned to mush and so did a lot of the gluten-free bread, how do you avoid this, I want a stuffing I can cook inside the turkey not on the stove top. I'm thinking of maybe...
  21. pixiegirl
    You mentioned that you like to take cruises... just so you know I've cruised a number of times since going gluten-free and have had no problem. I've taken royal caribbean and Windstar with no problems. Susan
  22. pixiegirl
    I eat out often (by choice and due to frequent business travel) and I'm not often glutened any more, I've really got it down to a science, however I'm assertive and I get a lot of people involved (maitre de, waiter, chef). When I'm with my boyfriend he always asks to speak with the chef and I don't think we've ever been told that we can't. However all...
  23. pixiegirl
    My mom uses that excuse... that she only has a touch of Celiac, or that I have it "worse then she does". I've explained to her a million times that its more like being pregnant, you either are or your not, there is no gray area. So you either have Celiac or you don't. Since I do and I already have other issues cause by the Celiac (food allergies, leaky...
  24. pixiegirl
    I honestly think I do all of those... how embarrassing. Susan
  25. pixiegirl
    I'm not at home right now so if you can wait I have a wonderful recipe for cheese cake. Virtually all cheesecakes recipes are gluten-free other then the crust. And the good thing about cheesecake is it sets up so you don't need a crust. I've also made a crust out of gluten-free cookies. Susan
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