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Latest Celiac Disease News & Research:
Everything posted by captaincrab55
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Check out the following link..
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Lgood, Your not alone... I've suffered with shoulder, neck, arm, wrist, hand, knee, leg, foot, jaw and finger pain.... I've complained about finger pain for years... It felt like I had 10 thumbs instead of 2... I had a MRI of my shoulder and nothing stood out as a problem...My shoulder bothered me since I was in my 20s and that pain went down...
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ARCHIVED Everything Seems To Irritate My Gut Now
captaincrab55 replied to sandsurfgirl's topic in Coping with Celiac Disease
sandsurfgirl, I feel your pain!!!! I will agree that my allergy and sinus issues are much better too. I'm suffering my first sinus problem since going gluten-free last June... Before that it was 3 or more sinus infections per year... I just had allergy testing @ Johns Hopkins Asthma and Allergy Center... Other then a known Lactaid issue, food... -
ARCHIVED Dr. Oz Show - Discusses Celiac Disease
captaincrab55 replied to Lisa's topic in Publications & Publicity
Long story short, I've been off work on Medical Leave for Carpal Tunnel Release.. During that time, I watched the Dr OZ Show and emailed many concerns about Celiac Disease... I may never know if it helped celiac disease get a spot on the Show, but I'm sure it didn't hurt... Maybe celiac disease could get another, but more in depth spot on the show... -
ARCHIVED Dr. Oz Show - Discusses Celiac Disease
captaincrab55 replied to Lisa's topic in Publications & Publicity
I used today's show as an awareness opportunity... Last week I sent an email to my friends and relatives (son & daughter too) about the the Dr OZ show's Topic of Celiac Disease.. Hopefully my friends and relatives saw the show today, so they can better understand that I can't cheat one day a week to just eat around the bad foods when I'm at their... -
Long story short, I saw an Oral Surgeon Monday about a molar that split.. All 4 molars came in with the enamel missing in the center of the teeth (when I was 6)... I'm sure it was undiagnosed Celiac... When I filled out the Medical History sheet, I didn't give Iodine a thought as an allergic to..... My question is if one has Dermatitis Herpetiformis...
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ARCHIVED Vanilla Ice Creams
captaincrab55 replied to CeciliaCeliac's topic in Gluten-Free Foods, Products, Shopping & Medications
Vanilla ice creams may be plagued with CC issues.... Both brands (Blue Bunny & Country Rich) of vanilla @ Walmart caused major gut problems and itchy skin (DH)... The Market Pantry vanilla @ Target agrees with me, but lacks some of the flavor... Target was very friendly about answering questions about ingredients and warned about possible... -
Check tools....
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ARCHIVED Bugs Crawling On Skin Feeling?
captaincrab55 replied to Heahterisadork's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sure sounds like Dermatitis Herpetiformis... -
Here's another choice; Open Original Shared Link Gluten-Free Menu Carrabba's Italian Grill, in cooperation with the Gluten Intolerance Group
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ARCHIVED Pa. Snack Makers Snyder's Of Hanover, Utz To Merge
captaincrab55 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
FYI Friends, Pa. snack makers Snyder's of Hanover, UTZ to merge One needs to keep an eye on UTZ products, just in case they drop the gluten-free labeling... Open Original Shared Link -
ARCHIVED Name Brand Foods Please....
captaincrab55 replied to tmbarke's topic in Coping with Celiac Disease
I checked the web-site and V8 is Gluten Free... I can't figure out why the person on the phone when I called said different.... -
ARCHIVED Name Brand Foods Please....
captaincrab55 replied to tmbarke's topic in Coping with Celiac Disease
It may just be the cc issue?? -
ARCHIVED Name Brand Foods Please....
captaincrab55 replied to tmbarke's topic in Coping with Celiac Disease
Are you sure the V8 products are Gluten Free???... I contacted Campbell's in the last 30 days and was advised that all of their products may contain Gluten.. Maybe someone else has a better responce... -
ARCHIVED Positive Dh Biopsies And Blood Tests - Do I Need Gi Biopsy?
captaincrab55 replied to esammarie's topic in Dermatitis Herpetiformis
IMO, An endoscopy should be done if you suffered with indigestion/reflux... I don't see a need for consuming gluten just to make a Doctor happy for him to have a positive biopsy.. As others have said, You've got it... Sounds like you need a new Doctor. BTW, I'm looking for a new GI.... -
ARCHIVED Just Not Sleepy/tired!
captaincrab55 replied to roxnhead's topic in Related Issues & Disorders
For 20 plus years I've told my Doctors that I was tired, but not sleepy... During that time I had many different blood tests including yearly Lyme test to identify the problem... Test were always negative... Over the last 20 years or so I could only sleep about 6 hours @ night, but could easily dose off for a short nap... Every 2 or 3 months... -
ARCHIVED Swine Flu Shot /egg Allergy
captaincrab55 replied to captaincrab55's topic in Introduce Yourself / Share Stuff
I guess that's why my Doctor never mentioned the spray..... -
ARCHIVED Swine Flu Shot /egg Allergy
captaincrab55 replied to captaincrab55's topic in Introduce Yourself / Share Stuff
Thanks for the tip on the nasal spray... I'll see my Doctor next week and run that by him.. We had only discussed the flu shot in the past... -
ARCHIVED Swine Flu Shot /egg Allergy
captaincrab55 posted a topic in Introduce Yourself / Share Stuff
No Flu shots for me, because of an egg allergy that once bothered me... My Doctor told me that I'm not a candidate for Flu Shots even if I out grew the egg allergy... Anybody else told this by their Doctor? Anybody out there that has an egg allergy and had Flu Shots? -
ARCHIVED gluten-free Grahm Crackers
captaincrab55 replied to arkoflove's topic in Gluten-Free Foods, Products, Shopping & Medications
I got some chocolate grams at the Health Food Store back in July... JO-SEF was the Brand name... Not sure that I miss them enough to buy more... -
ARCHIVED Where Do You Buy Your Almonds, Cashews, Etc?
captaincrab55 replied to taweavmo3's topic in Gluten-Free Foods, Products, Shopping & Medications
Just wondering, are the cashews sold at your Costco labeled with a, "Packed on" warning??? I stopped buying them, because I continued to experience set-back issues with my diet. I would be happy to find out that they are safe to eat... -
ARCHIVED Juror Questionnaire
captaincrab55 replied to lindalee's topic in Coping with Celiac Disease
It's Great that you have an opinion... In my case, DH is a factor too. My Doctor feels that I don't need any added stress that could contribute to a DH outbreak... Not to be dis-respectable, in my case it's Doctors orders over opinion. btw, It was my Doctor's idea/orders that I pass on jury duty in the future... -
ARCHIVED Article About Topical Dapsone
captaincrab55 replied to ChemistMama's topic in Dermatitis Herpetiformis
I saw my Dermatologist 11 days ago... I inquired about Aczone and was informed that it had a limited use for DH patients... My Doc gave me 4 small sample tubes of Aczone to use on outbreaks and report back my results.. I was informed that only the oral dapsone would prevent outbreaks until the gluten was out of my system... -
ARCHIVED Juror Questionnaire
captaincrab55 replied to lindalee's topic in Coping with Celiac Disease
That's a Great Opinion, but there are facts that some people may have on-going issues!!... I've been called multiple times for Jury Duty and even served on the Grand Jury.... I suffered undiagnosed during each event... Being recently diagnosed, I see Dermatitis Herpetiformis & celiac disease as my out... I've served my time... Keep in...