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T.H.

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Everything posted by T.H.

  1. T.H.
    I believe this is where I sound like granpa Simpson and say: welcome to my world! Most Celiacs notice that their symptoms to gluten increase - or start in the first place - after they have been gluten free for a while. So...sounds like you may have found out something about your health, eh? That is completely where I'm at, although I was diagnosed...
  2. T.H.
    Yeah, baking is going to be very difficult to do safely. Perhaps if you wore a mask, like a dental hygienist type, it might be enough to keep the wheat from your mouth and nose, but it might not be enough, even then. In Europe, last I heard, it's actually not legal for a diagnosed Celiac to work in a bakery or other places where flour is everywhere...
  3. T.H.
    If you can find some safe whole grain amaranth (Barry farms was recommended to me, but I haven't tried it yet. It's on-line), you can pop it in a pan - it makes teeny, tiny popcorn like stuff. You pop it 1 Tb at a time in a hot pan. You can mix that with gluten-free honey or agave syrup (they sell this in bulk on (Company Name Removed - They Spammed This...
  4. T.H.
    Sorry it's going to be difficult for a while! And a few other things that, I'm sorry to say, will add difficulty. 1. Gluten free facilities may STILL make foods that have too much gluten for you to handle because the grains come from somewhere else and can get contaminated on the way into the facility. It differs how 'gluten free' the gluten-free...
  5. T.H.
    Just came across this a couple days ago: Open Original Shared Link We've all seen companies that say something is so processed that the tests can't detect any gluten, yeah? The above article had some interesting information on the unreliability of tests that detect barley, specifically. Even recommended that companies who are making gluten free...
  6. T.H.
    I was just reading about gluten from barley recently. The tests for it are not as good as the tests to detect wheat gluten. Different tests tend to greatly underestimate or overestimate the amounts. The following advice was for companies who are looking to call their foods gluten-free ( Open Original Shared Link ) "Thomas Grace, CEO of Bia Diagnostics...
  7. T.H.
    The ones we use are made by a company called Ancient Harvest. In a little beige box, about 1/2 the size of the normal cereal boxes, maybe a little smaller. You can usually find them in a cereal section at the health food stores, or in the 'natural' or 'organic' section among cereals, if your normal store has these. You can also buy them online from the...
  8. T.H.
    Oh hon - so, so sorry!! Please, hang in there. Truly, I know it's so freaking hard when it takes forever to resolve, when we just get sick over and over, and it feels like it is just not going to resolve. When we start to think we're going the right direction and then just get dumped right back on our butts where we feel as horrible as we did before...
  9. T.H.
    Just curious if you have seen any information on people getting relief from anger as opposed to anxiety? I didn't have the anxiety issues, but I have had irrational anger that wasn't effected by circumstances, but disappeared on going gluten free. I hope we get to see the paper when you've finished it; it sounds like it will be very interesting!
  10. T.H.
    Congratulations! It's really nice not to have to worry about it at home all the time, isn't it?
  11. T.H.
    So sorry you feel so bad! And I'm right there with you on the guilt. I was sending Amy's gluten free microwave meals, like the gluten-free mac and cheese, with my daughter to sleep overs, and half the time she'd come back having a gluten reaction. I thought for a long time she wasn't washing her hands or being careful enough with CC while in their...
  12. T.H.
    >>> think people throw flour parties in there?? I guess I'm not surprised, previous inhabitants could have gone through a packet of biscuits and left crumbs and sticky fingers everywhere :/ Snicker - I'm imagining people dusting everywhere with flour now, LOL. Aw, man, I think that might help me lighten up a little. Just imagine the flour...
  13. T.H.
    Heya, Thanks very much for such a detailed post. Really appreciate the thought you put into this. The quick reaction to gluten has been, sadly, consistent whether it's happened at home or out and about. It's never taken longer than 15 minutes to react, but it's usually 5 minutes or so. It's one of the reasons at first that my doctors and I were...
  14. T.H.
    Well, just things to check to see if they might be of use? 1. Fructose Malabsorption: veggies, fruits, and whole grains can set this off. Often involves lots of gas and stool problems, and then other issues from poor absorption of other foods since your gut is messed up. Apples are a definite 'bad' food for this problem, but white rice is a definite 'good...
  15. T.H.
    #1 - very good point. I think kind of like that Buddhist philosophy: life is pain. If we spend all our time trying to avoid the pain, we avoid a lot of life. So accepting that getting glutened is gonna happen...thank you. I think that might actually help my brain think about it. in a bubble. #2 - I'm definitely working on that one. I think the biggest...
  16. T.H.
    That is wonderful for you! My dad and brother are like that. They go out to eat and just eat carefully or get plain food, and they usually do quite well. Wish I could say that same, but sadly...I very much do get sick from touching stuff that might have a few specks of gluten, if I screw up and touch my food, my plate, my fork, my mouth right afterward...
  17. T.H.
    Oh, congrats on the trip! >>I'm now at a friend's place and she and her husband are being great but I do feel like a pain in the neck having to point possible problems all the time. But I have my own food and she's not the cooking type so I don't have to worry about not being able to eat her food. It is so very hard when someone is...
  18. T.H.
    Oh, I'm about a year in, too! congrats on making it this far. Yeah, I'm definitely more sensitive than I was. Very frustrating. The paranoia is really frustrating, but not as much as the glutening. I just wish I could be vigilant AND relaxed at the same time. Not sure that's possible, but that's my goal, I think! Are there any celiac groups...
  19. T.H.
    >>You have to find a way to control your fear or this disease will ruin your life and it shouldn't. You know, that was the weird thing about all of this. I really wasn't expecting to be this nervous at all. I don't feel that way in my house, or normally when I go out. I suppose I never thought very much about how often I simply don't eat when I...
  20. T.H.
    Oh goodness, that would stress you really didn't need, goodness! I'm so glad though that you had some safe places to eat that turned out well. Ha, I know what you mean on the relatives - I have to keep my Mother in law away to keep the food gluten-free and safe, LOL. Good luck at the beach house!
  21. T.H.
    I hope your trip gores very well for you - I'm in the same boat almost exactly! 7 hour drive for this trip, where I'm the only driver. I think the extra planning sounds like a good idea. I spent lot of time planning out the MENU - cooked like a madwoman for me and the kids both, since we're all gluten-free and my daughter and I are very sensitive. But I...
  22. T.H.
    Any wet catfood that anyone knows of that's gluten free? We have an old kitty who won't eat dry food at all, so we've been looking!
  23. T.H.
    aw, everyone needs a few minutes to let out some boo hoos every once in a while, I think. Although there are so many things that could be affecting you, since you already know gluten is affecting you, assuming that some of these products might have more gluten than you can tolerate might be the easiest first step. - I can't have any gluten...
  24. T.H.
    Do they actually have an age restriction on age of development? I had always heard that it could trigger at any age, although I admit the earliest I know of was a few months old.
  25. T.H.
    It could be...but if they haven't been tested, I'd say they aren't off the hook, yet. I believe it's 1 in 6 celiacs who are found to have 'silent' celiac disease, where there are no overt symptoms. Some of the silent celiac symptoms that my family had were the following: depression exhaustion mental confusion getting sick often, or quirky/rare illnesses...
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