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T.H.

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Everything posted by T.H.

  1. T.H.
    Oh, goodnes, hon, I sympathize!!! I have had to drop so many foods, and reacting to things that were just processed in the same facility as others, etc... I've been dropping weight and only sometimes can I maintain, and then it can start dropping so quickly it's frustrating as heck! So, I know where you're coming from, except I'm in the mainland USA...
  2. T.H.
    My son tested negative for celiac disease, but when the whole family went gluten free (myself, daughter, brother, and father all tested positive), he showed remarkable improvement. He's 81/2 years old and only 48 inches tall, still had that toddler-like melon belly, or so I thought, until it disappeared when we changed his diet. His mood improvement was...
  3. T.H.

    ARCHIVED Recommend A Doctor In You State

    T.H. replied to a topic in Doctors

    Have you checked out your local celiac group? That's how I ended up finally finding a celiac friendly doc where I am. I had found a link for the group in your area here: Open Original Shared Link
  4. T.H.
    I kind of had the same thought on the gluten, that my son could do a gluten challenge when he's older, if he wishes. It's a terrible feeling to think we're hurting them just with food, yes? I'm not sure how long it takes for a child to start gaining, honestly. I know my GI said that the healing can be slowed by dairy, because most unhealed celiacs are...
  5. T.H.
    This might help? My GI's plan for people going on a gluten free diet was to introduce the gluten-free foods with the gluten foods for a while, to get used to, and then slowly phase out the gluten. Over 2-3 weeks or so. If you make your own muffins, breads, and such, you could start substituting some gluten-free flours for portions of the wheat, at...
  6. T.H.
    Well, I do know children without gluten problems who are this sensitive to temperature, but it does seem curious that all three are having an issue. However, thyroid issues might apply - they can make the temperature regulation out of wack. Also, allergies, intolerances, and sensitivities to food could cause issues, too. I've been finding out that for...
  7. T.H.
    OH yeah, that'll do it to you. If it's inhaled, that means it's hit your throat, so there is going to be some of the gluten that makes it down to your stomach, almost without fail. I am very sensitive, and if I don't wear a paper mask near gluten (and a few other foods I'm sensitive to), then I bite the dust.
  8. T.H.
    Congratulations on getting the numbers down! My daughter is 11 and celiac positive as well, and her 6 month check up will be coming up soon, so I feel for ya! So, something my GI doc told me, plus a few hidden gluten things that might apply? My GI doc said that if your daughter has any other food allergies or sensitivities, it can actually keep her...
  9. T.H.
    This is what we did, for what it's worth! I was diagnosed last August, and had the kids tested with the bloodwork - one came back positive, one came back negative. My brother and father came back positive, as well. Here's some things that I've read (I can't confirm all these, however. They seem reliable, but I haven't researched fully on some ...
  10. T.H.
    From what I've seen of Dr. Osborne, I don't totally trust his science. I agree with one of the previous commenters: the gluten in each grain is not the same, so it shouldn't be treated the same. If that is the only reason you have to avoid these two, I'd...think carefully, I suppose. :-) That said...there is one reason that corn and rice might bother...
  11. T.H.
    You could also be having a reaction to another food, either an allergen or something you are intolerant or sensitive to. I ran into that within a few weeks of going gluten free, and had all three. I had the nausea, fatigue, dizziness, etc... But no hives or itching or anything. If you keep a food log of every ingredient and how you feel, that may...
  12. T.H.
    I had a quick question: have you had the kids tested, either for celiac disease or the gene? You might already know this, but for relatives who are one degree separated from a celiac positive person(parents, siblings, kids), about 1 in 22 will be positive for it. When I pestered my family to be tested, even though none of my kids had gut symptoms, one...
  13. T.H.
    I'd agree that it could be something other than gluten, too. But if it IS gluten? Been kissing anyone lately who wears lipstick? Lipstick and chapstick almost always has gluten, but we don't usually think of it when we're not the ones wearing it, eh? Makeup, powders, or anything that could be on someone ELSE'S skin might be an issue if you've been...
  14. T.H.
    Oh goodness, I feel your pain! Same thing happened to me. I went gluten free last August and soon after I started reacting to all sorts of thing. Miserable, sick all the time. Sluggish, exhausted, gut pain and cramping, the whole deal. It got worse, as well. So...here's what I did, in case it helps, and some ideas for other stuff it might be, that I...
  15. T.H.
    You might to check out multiple sclerosis on-line to see if your symptoms match up. this sounds somewhat similar to how it started for my friend with MS, if I recall right.
  16. T.H.
    Hmmm...well, a couple ideas, for what they are worth! 1. Could be that you have issues with more than just gluten. My GI doc says that most of his celiac patients end up having allergies or sensitivities to other foods, and that definitely applied to me. Certain foods now make me sick as a dog. Some of them were allergies, some of them don't show up on...
  17. T.H.
    I definitely had the starving thing - about a month, for me, at least. That's pretty normal if your gut is healing, and it takes weeks for it to heal up. Re: the aches and pains? I would just cut your diet to the bone and do a food journal, honestly (record what you eat, how you feel, and then reintroduce the foods slowly, one every few days, to see...
  18. T.H.
    I'm really sensitive, but I've never reacted to it. However, when I was first researching what I could and couldn't eat, I recall seeing that quinoa was on the 'maybe' list for celiacs. From what I read, they have actually only 'officially' tested a few of the other grains for celiac folk. Doctors assume all others that aren't wheat, rye, or barley are fine...
  19. T.H.
    Oh, my understanding is that wood and plastic can absorb gluten, and it will slowly release into any food they are used on. Teflon isn't porous to gluten, but any scratches in the teflon will be porous, too, and gluten can be absorbed from gluten and released back into the foo. but I've never heard whether this is an issue for all celiac folk or just...
  20. T.H.
    Thank you so much everyone for your replies!! That makes me feel so much better, to know how much variety celiacs seem to have in their experiences. Makes me feel a little less alone, and more like I'm just part of a set of people that can have the same problem and still have totally different problems at the same time, essentially. :-)
  21. T.H.
    A little while after I went gluten free, I started getting migraines, dizziness, nausea, etc... Some lasted all the time, some came and went. For me? It's other foods. I found out I have other food allergies - none of them cause this. But after keeping a food log, and cutting my foods down to the bone, so I barely ate anything, and nothing I hadn't...
  22. T.H.
    Well....any food can cause bloating and gassiness, if you are intolerant to it. And there are only reliable medical tests to test for lactose intolerance and fructose intolerance. The rest? You get to keep a food journal, record every ingredient that enters your mouth, record your symptoms, and hope to find a pattern. Allergies can do it, too, but it...
  23. T.H.
    Oh...did you start taking the Nystatin??? If so, you should really stop - it has gluten in it!! I was put on nystatin after my diagnosis, and felt ill, and finally looked it up and found out it had gluten and had to get a different perscription, ugh. There's a good site for looking up your drugs, here: Open Original Shared Link It's been a life-saver...
  24. T.H.
    I read what I considered the best advice on this topic on a gluten free blog a few weeks back (sorry, I can't remember which one!) They said the following: 1. scientifically, maltodextrin is processed so much that it has less than 20ppm of gluten, which is the best our equipment and methods can detect, and that seems to be less than does damage to celiacs...
  25. T.H.
    I have had localized neurological symptoms, on my left side primarily, too, curiously enough. No twitching, just pain, weakness, etc... However, I do know that MS and celiac disease can often be found together - once diagnosed for one, you're in a higher risk category to get the other (along with hashimoto's disease, diabetes, and hypothyroidism) and...
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